Epilepsy Foundation

cathy
  • Female
  • Big Bend, WI
  • United States
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Latest Activity

cathy replied to masonsmom's discussion Keppra side effects and Allegra in the group Parents Talking w/Parents
"The reason I ask is because it seems like a lot of ppl  don't talk about their children having simple partials . After a seizure, my daughter says first she feels "tongue twisting", then she starts to drool, sometimes…"
Oct 16, 2012
cathy replied to masonsmom's discussion Keppra side effects and Allegra in the group Parents Talking w/Parents
"My daughter is a thin 10 year old. She takes 2125 mg/day of keppra (generic). She also has simple partials. When she first went on 3 yrs ago she did have mucus isssues, and it did say this could be an initial side effect of keppra. It lasted…"
Oct 16, 2012
cathy replied to Leslie's dad's discussion College Crisis in the group Parents Talking w/Parents
"Having sent a son off to the Marine Corp and two deployments, I still cannot even imagine what you are going through. My prayers are with you."
Sep 16, 2012
cathy replied to masonsmom's discussion Can you help me? in the group Parents Talking w/Parents
"My daughter mostly has simple paritals, although they have generalized. She is completely alert and aware of what is going on. She drools and can not talk although she tries , it is completely slurred. She has some right facial twitching and right…"
Jul 2, 2012
cathy replied to Gwendolyn D'Amico's discussion Advanced Alzheimer's and myoclonic seizures in the group Parents Talking w/Parents
"Sorry to hear this...I am a caregiver in a dementia assisted living and my heart goes out to you. I don't have any answers, just wanted to say you are not alone."
Jun 28, 2012
cathy replied to masonsmom's discussion Can you help me? in the group Parents Talking w/Parents
"I agree with everyone here, except that they sound like simple partials to me. When the person is aware, aren't those generally simples?? That is my understanding at least."
Jun 28, 2012
cathy replied to Gwendolyn D'Amico's discussion Marching to which drummer? in the group Parents Talking w/Parents
"I agree with all of the above about seeing a Neuro-Psychologist. As far as insurance, we ended up paying 500 out of pocket when our daughter was tested. I believe the testing was around 2000, (we had it done 3 yrs ago). It was well worth it. I…"
Jun 7, 2012
cathy replied to Bshawty's discussion Looking for answers in the group Parents Talking w/Parents
"It is definitely possible to have seizures and yet have a normal EEG, absolutely...what you're seeing does sound like seizures to me."
May 24, 2012
cathy replied to Tammieka's discussion Venting!!!! in the group Parents Talking w/Parents
"Keep hanging in there Tammieka!! You'll get your answers if you keep pushing, and ask A LOT of questions!"
May 18, 2012
cathy replied to Tara's discussion Does this look like lamictal reaction? in the group Parents Talking w/Parents
"I would say call the doc. My daughter got a "benign" rash from lamictal. It did look simliar to that. She had to see the dermatologist 3 times in a week, just to make sure it didn't flare into the bad one. It was the worst on her…"
May 18, 2012
cathy replied to Tammieka's discussion Venting!!!! in the group Parents Talking w/Parents
"Very good idea Stephanie! Like what did he (she) see that this Dr. doesn't..sounds so strange!"
May 16, 2012
cathy replied to Tammieka's discussion Venting!!!! in the group Parents Talking w/Parents
"Tammieka, that is ridiculous!! I'm so sorry you are experiencing this. My daughter's EEG also showed little blips from all over the brain, however the last one shows it has settled down a bit and is only coming from the left temporal lobe.…"
May 16, 2012
cathy commented on Renea Mitchell's group Parents Talking w/Parents
"I have a question about my daughter and E. She will be getting retainers very shortly. When I originally called the neuro on advice on this, I left a very detailed message. No call was forthcoming. We went ahead and had all the impressions done and…"
May 14, 2012
cathy replied to Lora Bayati's discussion Depakote Side Effects in the group Parents Talking w/Parents
"Lora, It can be a very trying journey, no doubt! Learning issues can definitely be a possiblity, but also side effects from the meds and E itself. I'd call the neuro and see what they have to say about a possible med change and maybe testing in…"
May 8, 2012
cathy replied to Carly McPherson's discussion How to you know? in the group Parents Talking w/Parents
"Carly, My daughter's seizures are usually few and far between. She is in an eight month stretch right now! We've gone as long as  nine months and as few as 3 seizures in a week. She has simple partials that have generalized. She has…"
May 1, 2012
cathy replied to Elizabeth Baron's discussion Drooling: Normal or Seizures? in the group Parents Talking w/Parents
"My daughter has simple partial seizures that have generalized, but not always. She always drools durng the seizure. As of right now her EEG activity is in the left temporal lobe, although it seems to be different everytime we go in for one. She is…"
Apr 14, 2012

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