Epilepsy Foundation

Epilepsy Foundation of America® is the national agency dedicated to the welfare of the more than 3 million people with epilepsy in the U.S.

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Videos

Photos

Meeting with Missouri Director of Health Margaret Donnelly about Epilepsy.

by Ryan Dillon

Meeting with Sam Licklider about Epilepsy.

by Ryan Dillon

Meeting with Missouri Attorney General Chris Koster about Seizure First Aid.

by Ryan Dillon

Groups

Seizure Tracker

78 members
'Epilepsy & Behavior'

196 members

The Storm Within

323 members
Research Junkies

244 members

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Members

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Seizure First Aid Segment on Dr. Oz

Dr. Oz explains what causes seizures and takes you through the Do’s and Don’ts of seizure first aid.

Blog Posts

A Moving Issue

Posted by Mary Lou Connolly on March 9, 2010 at 4:19pm

Help is not far away!!!

Posted by Denise Wilson on March 9, 2010 at 9:57am

BE CAREFUL!

Posted by Kari Lynne Brauer on March 8, 2010 at 1:10pm — 2 Comments

Ignorance on National TV

Posted by Ashley on March 8, 2010 at 12:30pm — 2 Comments

When it rains it.....

Posted by Dennis Wessel on March 8, 2010 at 1:41am — 1 Comment

Latest Activity

James Edgar Barrett replied to Helen Stevens's discussion 'Are auras bad things or just the seizures?'

Helen, Seems as though it may be 100 per cent. I have to agree with my friends here at EFA. The simple partial and partial seizures may well be a nuisance, bu in no way interfere with actual brain damage. There are all kinds of auras. .....bad tas…

20 minutes ago

James Edgar Barrett joined Jennifer's group

Everyday problems with Epilepsy

This group is for anyone who just needs to talk about all there problems that they have with Epilepsy. We all need to talk sometimes and express how we feel, which makes us sometimes feel better.

57 minutes ago

cmscribbles replied to Chrissy Winkelmann's discussion 'Does anyone know anything about Phenobarb withdrawls?'

We've done a few phenobarbital weans here with my son. The main thing you have to be cautious of is that phenobarbital is one of the drugs with a high risk of withdrawal seizures. Therefore, as Babs mentioned, a SLOW wean stretched out over time wit…

1 hour ago

Southie ~ Sharon commented on Raymond Dahlstrom's group 'Runners & Walkers'

There are cooler wraps (cheap) that are gel, which are in terry cloths which can be worn anywhere, around the neck, headband, wrist band, etc - depending on what you need them for. Toss them in the refrigerator and they last for hours. There are som…

1 hour ago

Irishmum replied to Jen C's discussion 'Older child with Infantile Spasms - any advice?'

You could email Dr chugani in Detroit for a second opinion. He is highly regarded by IS parents.

1 hour ago

Robert G. Neely commented on Laurie Pullen's blog post 'My daughter Cecily'

Hi Laurie, I just ran across your Event posting on the E-Community site and also read your first posting where you found your daughter with her first seizure. I'm not a mom, but I could visualize and feel what you were feeling. I'm glad to see you a…

2 hours ago

Irishmum replied to Helen Stevens's discussion 'Timing of temporal lobectomy: how did you decide when to have surgery?'

I did come to peace with it. In my heart I knew it was the only chance for her. It was still scary. Handing over your awake daughter for surgery is very difficult. It helped that I was not in touch with reality at the time. It took months for the en…

2 hours ago

LaurensStory replied to Southie ~ Sharon's discussion 'What was your worst nightmarish AED (Anti-Epileptic Drug)?'

Sadly it seems like they say that about every medicine. I'll complain about a side effect that developed, and is even listed as a possibility. Then, I tell my doctor, and she laughs and shakes her head like I am delusional.

2 hours ago

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