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LaQuida Monea' Jackson commented on bryan farley's blog post Epilepsy and Perspective
"@I'm glad you are able to drive too! Thank God the air bag was deployed and it saved you too!"
9 hours ago
LaQuida Monea' Jackson commented on bryan farley's blog post Epilepsy and Perspective
"@bryan your welcome! Well, I'm glad it wasn't epilepsy related. But, I thank God that you are alive and he spared your life! Good your recovering!"
9 hours ago
Dawn Parker commented on bryan farley's blog post Epilepsy and Perspective
"The main thing is that you're OK and I'm so glad it is not seizure related. It has been so many years since I have drove that it almost seemed like a way of life. Looks like that's not going to be an issue now. How exciting!I just got…"
14 hours ago
Melissa Smith commented on bryan farley's blog post Epilepsy and Perspective
"I hope your recovery goes well then, glad to hear it didn't harm your seizure disorder."
15 hours ago
bryan farley commented on bryan farley's blog post Epilepsy and Perspective
"Fortunately, epilepsy was not the cause of the accident. The other driver was at fault, and though the collision was strong enough to cause my airbag to deploy, I did not have a seizure afterwards either. Mostly, I am just sore from the collision…"
16 hours ago
Melissa Smith commented on bryan farley's blog post Epilepsy and Perspective
"Have they told you if any changes are being made to your driving records or if your still allowed to drive?"
17 hours ago
bryan farley commented on bryan farley's blog post Epilepsy and Perspective
"Thanks LaQuida for asking about my accident. (For those who did not receive my direct message, I was in an auto accident several weeks ago, and I did not post for a while.) Initially, I started writing about perspective, because I was grateful to…"
17 hours ago
LaQuida Monea' Jackson commented on bryan farley's blog post Epilepsy and Perspective
"What happened that caused the accident to occur? Well, we can continue to make the walk more safe by getting police to monitor us while on the walk and make sure we are safe from harm. We can encourage more participation by making flyers or sending…"
19 hours ago
bryan farley commented on Shannon Newcomb's blog post I'm Ready to Leave
"Shannon, For many years, I struggled with depression. Part of it was caused by the food I was eating. When I started drinking more water and eating less processed food (especially wheat), I began feeling better. Supposedly, many people have some…"
yesterday
bryan farley commented on Kimberly Burger's blog post When does start getting better?
"Kimberly, If his whole life is a battle, at least he has a loving family to help him through the difficult times."
yesterday
bryan farley commented on Sonja L. Kimball's blog post A Four Day Visit
"this does not sound like much fun. how are you now?"
yesterday
bryan farley commented on Shannon Newcomb's blog post I'm Ready to Leave
"Shannon, That sucks. If you are still around, may I ask how you relieve stress? What do you eat? Have you found other support people? If we do not hear from you again, hope you find peace. bf "
yesterday
bryan farley posted a blog post

Epilepsy and Perspective

A popular Mahatma Gandhi quote illustrates the slow progress of social movements. “First they ignore you, then they laugh at you, then they fight you, then you win.”I joined the epilepsy social progress train while we were being ignored. Because my life changed suddenly, I did not consider myself fortunate at the time of my first seizure, but life could have been worse. Before we were ignored, we were exterminated, exorcized and sterilized. We were not merely ignored. We were hiding.  …See More
Monday
bryan farley commented on Craig Davis's blog post No Title
"Even if you had research, would you advise a new epilepsy patient differently?"
Saturday
Craig Davis left a comment for bryan farley
"Bryan,         Trust me this is kinda new to me.  You have replied back 2 times and I have been loooong in my answers. I see just looking on your ID name how you talk to others. maybe I can do that but I would…"
Thursday
bryan farley commented on Craig Davis's blog post No Title
"You are doing fine... I use this one for epilepsy, because it is run by the Epilepsy Foundation of America and I want to support the national organization but I also support my local affiliate. I just wanted you to write less at a time so I could…"
Thursday

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Bryan farley's Blog

Epilepsy and Perspective

Posted on May 28, 2012 at 5:30am 8 Comments

A popular Mahatma Gandhi quote illustrates the slow progress of social movements.

 

“First they ignore you, then they laugh at you, then they fight you, then you win.”

I joined the epilepsy social progress train while we were being ignored. Because my life changed suddenly, I did not consider myself fortunate at the time of my first seizure, but life could have been worse. Before we were ignored, we were…

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2012 National Walk for Epilepsy and Social Media

Posted on April 11, 2012 at 5:00pm 10 Comments

On March 31, 2012, I attended my third National Walk for Epilepsy. This year's walk was the 6th Annual National Walk for Epilepsy on the National Mall. Seeing thousands of people inspired me. Being seen motivated me to do more for our community so that we can connect to all those who feel isolated.

 

 

 

At the walk, Epilepsy Foundation…

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2012 Epilepsy Foundation VIP Heroes of Epilepsy Photography

Posted on April 6, 2012 at 5:00pm 20 Comments

My Featured Blog is called "If I Talk About It, Will You Listen?"

 

For the last year, I started all my posts with the first two words "If I." I developed the idea during last year's walk when I suspected that some people emphasized talking without interacting. As difficult as it is to talk about it, listening is difficult, especially to the reasons behind the silence.  

Talking does not necessarily heal, but denial rarely helps. There is power in being heard. Sometimes,…

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If an Expert and a Thought Leader had a baby

Posted on March 21, 2012 at 11:30pm 0 Comments

We do not need thought leaders. We need thoughtful leaders.

I ask a lot of questions. Sometimes, I ask whimsical questions about experts having children. Other times I ask serious questions about how people become experts. I hope you will know which questions to take seriously.

What qualifies someone as an epilepsy expert?

What is the difference between a leader and a "thought leader?"  Is a thought leader someone who thinks about…

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At 7:44pm on May 24, 2012, Craig Davis said…

Bryan,

 

      Trust me this is kinda new to me.  You have replied back 2 times and I have been loooong in my answers. I see just looking on your ID name how you talk to others. maybe I can do that but I would rather then contact me first. It's hard not to say what is on your mind when the thoughts pop out and you're afraid you'll forget your thoughts a few hours later. I am not making my issue about ME only. I know there are many many more diagnosis in the past 25 years that what was done the previous 25 years from 1960 to 1985. and 1986 to 2012. Just say in 35 years and the number of cases are 150% more. You know what I mean since 1980. That is why what I believe should be researched and studied, if they ever have it in my lifetime, it should be included in every active study as an add on tests to be done in old study protacol research, as well as a new case for a new person who's ever had a clinical study for the 1st time. Even people like me and people before my who still have seizures who were never tested about this WHO HAS ? should all be tested even if they are 100 years old and have seizures to the extent that can prove it wont kill anybody. Hmmmmm,, Is that why there has been no clinical study or research trials to this day ? As I call it S E C D E P,,, Sudden Explained Cause/s of Death in EPilepsy. SUDEP is a myth.  

At 12:50pm on March 11, 2012, Shawn West said…

Sorry Bryan, I had another seizure and was unable to get back to you until now. So, you are in my back yard. I live here in the mountains.

The high schools here are; Skyline High School(I've had 3 kids go there) and Warren County High School.

My ex wife has blocked my visitation again and I am pretty distraught right now. After everything "they" put me through, seeing my kids was just about all I had left.

Hope all is well with you and yours and remember, I will "carry the flag" and fight this to the end, but what I(we) need is for all of us to stand up and not take this abuse anymore. One(me) can be silenced, all of us, NEVER!


Everyone should read, follow and be very, very scared by my ongoing abuse by the government.


At 10:08pm on March 1, 2012, ejl1558 said…

Thank you, Bryan.

At 9:20am on February 27, 2012, Jamiee Patterson said…

Thanks Bryan, I am learning so much.  Still battling through my emotions of all of it.  But have found just being able to vent to people who actually understand has been a great help.

 

At 12:22am on February 27, 2012, Beth Baker said…

Thans so much! Many blessings to you and your family, - Beth

At 12:29pm on February 15, 2012, Alyssa Henriques said…

Yes! I am an Special Events Intern at EFA

At 9:48pm on January 28, 2012, Sara Pena-Gonzalez said…

if you havenot checked out the book Mindsight by DR Dan Siegel you should check it out also you should check out his website where he has videos and other cool stuff. The website is www.drdansiegel.com

At 7:32pm on January 27, 2012, Sara Pena-Gonzalez said…

Your video touched me ever since my seizure on August 4th and being diagnosed with Epilepsy on september 13th I have been an emotional mess scared of having another seizure and feeling misunderstood I have been seizure free since that seizure and Im on lamictal 100mg twice a day. After seeing your video I have decided that instead of keeping all of my emotions inside i need to let it all out and just enjoy each day and realize what does not kill me will make me stronger and I can handle anything.

At 1:44pm on January 18, 2012, Lawren Romero said…

Yes, I did read it!  My next blog post will be in epilepsy, so I will follow your suggestion and also post here on the eCommunity.  My site is http://anotherblessedpilgrimage.com.  I also use Tumblr.  ;)

 

Thanks for your post, and I feel the same way, so I found it very motivational!

At 1:11pm on January 18, 2012, Lawren Romero said…

Thanks, Bryan!  I found you on Twitter!  :)  This year I also want to get more involved.  I was diagnosed at 14 and am now 27.  I find it really hard to volunteer because of my schedule.  I also work in a health non-profit.  I am really interested to see if there are ways to become more integrated in the online community.  :)  I'm a little addicted to social networking.  ;)

 
 
 

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