"Hi Phyllis, very nice picture. How have you been feeling? I am going thru changes in medicine again but doing better. I went to Duke for a 6 day stay for a video eeg study. I go back Oct 1 for the results. Hope to hear…"
"BRAIN, I FEEL THE SAME WAY. I WENT FISHING ABOUT A MONTH AGO. WITH MY HUSBAND AND SON. WAS HAVING A GREAT TIME. AND GUESS WHAT I HAD A SIZURE THERE. I KNOW PEOPLE WERE STARING AT ME. THERE WAS A VERY NICE LADY THERE MY HUSBAND SAID. THAT WAS A…"
"I GOT MY DISABILTY .CAUSE OF MY SIZURES WHEN I WAS WORKING FOR THEY WERE GETTING SO BAD ON ME. AND I KEPT KEEPING WROTE UP FOR THEM. AND THEY WERE GOING TO FIRE ME. THEN AFTER A FEW YEARS THEY TOOK IT AWAY FROM ME, CAUSE I WASNT HAVING ENOUGH. LOL…"
"YES I GOT MY DISABILTY FROM SIZURES. I WAS GETTING WROTE UP ALL THE TIME CAUSE FROM THEM. FOR MY DR. SAID ENOUGH. FOR HE WAS SCARE THEY WERE GOING TO KILL ME. I REALLY DO MISS WORKING. BUT THE STRESS WAS KILLING ME. AT TIMES NOW I STILL BAD ONES.…"
"I do the same thing sweetie. I would be talking to someone, then right out of the blue cant remember what i want to say. this makes me so bad at myself. but my friends got so they say Phyllis dont worry about it. In time it will come to you. Or at…"
"I have a male cat. And if me brain bottoms out as i call it. And I cant stay awake and Im very tire at once. I call my husband and let him know whats going on and that im going to lay down and to keep calling me every few. My male cat gets right my…"
Just wanted to let you know Im on the genertic, tegretal, and im on a genertic form of neurontin too. Im doing ok on these. Maybe once a year now I do have a really bad one. Which isnt bad. For I was having them alot. So I dont know if…"
"Merry Christmas! Yes Christmas can be very depressing. But Im so thankful Im still here, and breathing the air on this earth. Im thankful my mom is still with us. Im thankful for the sister I have that we can talk and laugh. And 2 brothers that I…"
"HELLO ALL, Yes Patrica, Christmas is a beautiful time of the year. and i love every minute of it. Just having a hard time this year, guess like everyone else. Oh yes we love watching Christmas movies. Lol we have watch them over and over this year.…"
Its been awhile since Ive been in here. Im so sorry for that. And yes Melissa, I am depress this year. But I shouldnt be for Im still here and I have my loving family. Tom is still with out work and its have been rough this year. No…"
"HELLO TO YOU IM NEW TO THIS TOO. AND I TOO WOULD LIKE TO MAKE FRIENDS. IM 56 YEARS OLD AND I TOO HAVE SIZURES. I BELEIVE WE JUST CHAT WITH EACH OTHER AND TALK ABOUT ANYTHING WE WANT TOO. AND BECOME FRIENDS. I DIDNT START HAVING SIZURES TILL 1998. I…"
Hi Phyllis, Sorry I haven't responded to your most recent note. We have been busy moving 1 daughter and 1 moved in with us as she in unemployed now. Things have been hectic but we are blessed. I like your pictures. I need to get some more online here. Please pray for our daugher, Holly to get a job if you will. Let me know if you have any specific prayer request. I have to go because I am volunteering at church and can't be online very long. Bless you.
Phyllis, No, my dr. has never said anything about me getting that violent that i would want to kill someone or even harm someone. if you are feeling that way i suggest you get another opinion. that doesnt sound normal to me. i know people get stronger during a grand mal seizure but dont have feelings of killing someone or locking themselves in a room which is dangerous. i really feel you need another opinion and maybe a medicine change (but i am no expert). maybe you should put a forum question for everyone's opinion on here about that problem you face, to get other's opinions and list your meds too. i am concerned about you. Melissa
yeah I thought it was bad having them in school (they started in 6th grade), but it turns out that having them infront of my kids hurts worst. I fell on an old furnce grill and got 3rd degree burns on 15% of my body. They didn't have my meds ready so I was afew hours late on them. My daughter was 11 months old and she had gone down for a nap for the first time (she was always stuck on me) in a long time. I layed her down and walked out of the room and had it. I know God was watching out for us that day. We were home alone and if I had her in my arms...it would have been worst. She had to learn by the time she was 2 what Epilepsy was, what to do... all of it. And she did. I always hoped she never wopuld have to use it but she did when she was 3. She saved me that day and hated the color blue after it. It hurts the heart to have your child tell you how scared she was that I wasn't going to wake up. That was my last one for 5 and half years. I figured they were done with.. that I "grew out" of them like some. It was wishfull thinking. I had one the day before Christmas eve in front of both of my daughters (7 and 2). My family/friends have set "rules" for me... 1. I can't lock doors 2.NO funny noises. I can't get a job b/c nobody will hire me b/c of them. They don't say that but you know thats why. Its put a lot of stress on my relationship. Its been hard. They has been times when I have had to count pennies out for a pill, gone without eating to have my meds, I'm in debt so bad from having to go to the ER so much for a dose of meds. It drives me crazy that Epilepsy is one of the oldest recorded disorders and I feel its but one the back burner. Not saying other things aren't important its that they should be closer to a cure by now.
I never know when mine are coming on so I can't really do that. If I "don't feel right in my head", I call it that funny feeling I sit...but I don't always have one when I feel like that. It hurts my pride having to ask people...!