Epilepsy Foundation

Michael Igoe
  • Male
  • Durham
  • United Kingdom
Share on Facebook Share Twitter

Michael Igoe's Friends

  • Donna L Lowe
  • willard  william smith
  • Patricia Hodges
  • Bethany Hahlbeck
  • Matthew Denos
  • James Edgar Barrett
  • Jess
  • Tonya Heathco
  • sparky triggers
  • Alysse
  • TAMIE JENSEN
  • Elizabeth Weeks
  • bryan farley
  • sharon
  • Judy Karbritz

Michael Igoe's Groups

Michael Igoe's Discussions

The Impossible Dream?

Started this discussion. Last reply by Cassandra Renee Nelson Feb 19, 2012. 15 Replies

Not so long ago, I used to dream vividly almost every night.  It caused me no problems at all.  In fact, I rather enjoyed it.Then along came Keppra, 4 or so years ago, 3,000 mg daily.  Almost…Continue

Tags: dreams, and, Sleep

 

Michael Igoe's Page

Latest Activity

TimM commented on Michael Igoe's blog post Service(s) denied
"Michael, The letters from the students sound wonderful. I teach maths at a small college, and it's always a delight to hear from a student that one has made a difference. Fortunately, my own seizures have all been nocturnal, so there has never…"
Aug 31, 2013
Michael Igoe commented on Michael Igoe's blog post Service(s) denied
"I can't say anything about social awareness, Tim, since I'm not in the US to see for myself.  I was speaking about energetic sites like this.  Epilepsy Action (the UK equivalent) is certainly improving, but attracting media…"
Aug 31, 2013
TimM commented on Michael Igoe's blog post Service(s) denied
"Michael, I have to smile at your titles, even though I think people here are less comfortable with the word "fit" than in the UK. I've said that if I become able to drive again, I'm quite attracted by a small model of car called…"
Aug 30, 2013
Michael Igoe commented on Michael Igoe's blog post Service(s) denied
"Hello, Adz.  Yes, I know there is an awareness campaign here in the UK, but it's on nothing like the scale it needs to be.  Waves must be made, or more people's lives and livelihoods will be threatened by stupidity.  I…"
Aug 14, 2013
Adz commented on Michael Igoe's blog post Service(s) denied
"Hi Michael, although I agree with you about the 1950's attitude (or is that 1850's?) of people - employers mostly - towards Epilepsy, it is very untrue that there is no awareness campaign in the UK. Epilepsy Connections pushes Purple…"
Aug 13, 2013
Michael Igoe posted a blog post

Service(s) denied

Released here today (13/08) a report on epilepsy services in the UK.  They vary from place to place, naturally, but they’re generally not good.  Every year, about 900 people die during seizures; half of these could be prevented, but aren’t.  Specialist epilepsy nurses: hard to come by (I’m lucky).  Perhaps worst of all, though: general ignorance of the condition and what to do about it is no better in society than it was in the 1950s.  And that’s although epilepsy is about as common as…See More
Aug 13, 2013
Michael Igoe posted a blog post

Silence reigns. Why?

This last week was Epilepsy Awareness week.  You wouldn't have know from the mainstream media, with almost zero mention.  One exception was the Guardian newspaper (UK), 21st, which had a special supplement on the subject.  If you can bring this up, please do.  One objection, though: why direct almost all attention on children?  A problem, certainly - I should know that.  But adult careers and marriages are regularly destroyed for this most senseless reason.  That's an experience of mine too. …See More
May 26, 2012
Michael Igoe posted a blog post

The Way Things Are

I don’t like stereotypes very much, do you?  If you’re in a stereotyped group – and most people reading this probably are, or know well someone who is – you have good reason not to.  If you don’t fit the stereotype, you irritate people.  And that can make them doubt if you genuinely are part of that group, or just say you are.  We find a lot of stereotypes in the medical area, don’t we?  So, what’s the epilepsy stereotype?  I think I’m broadly right here.  The person with epilepsy is still a…See More
Apr 17, 2012
bryan farley commented on Michael Igoe's blog post A "Flash of Inspiration"
"isn't this funny? strange I mean. By avoiding driving, we can put ourselves in risk of being "hit by a bus?" I am convinced that one reason my health has improved is that I have become more aware of my visual triggers. Light,…"
Feb 23, 2012
Cassandra Renee Nelson replied to Michael Igoe's discussion The Impossible Dream?
"Hi everyone. I'm on 1,500 mgs of Depakote and I have vivid and realistic dreams all the time. My dreams feel so real and they're all in color, too. Maybe it's my schizoaffective disorder? A combination? Who knows.."
Feb 19, 2012
Michael Igoe posted a blog post

A "Flash of Inspiration"

I think that practically anybody who reads this site will be familiar with the word ‘photosensitivity’.   Most people with no connection with epilepsy probably think it has something to do with cameras.  No it’s not, very much not.   I’ve read in one leaflet or book after another that it’s comparatively rare.  Is it really?  Or possibly we often don’t recognise it would be nearer the truth.  I’m convinced it’s far more common than these publications suggest.  And that could be risky.A story of…See More
Feb 19, 2012
Michael Igoe commented on bryan farley's blog post If You Could Thank Someone Who Changed Your Life
"Even in the UK here, thanks to my now late US contact in New York, I'm familiar with Mr Coelho and have read some of his speeches.  I greatly admire his work, for the only true weapon against stigma is openness, which is why I wear my…"
Jan 15, 2012
Michael Igoe posted a blog post

A controlling idea.

Some time ago, I invented – as far as I know, anyway – the terms ‘epiphobia’ and ‘epiphobe’.  I think most people would agree that the usual reaction when they mention having epilepsy isn’t so much hostility as a sort of unease, uncertainty.  It’s a word, a reality, the listener would rather not hear, much the same as with almost any psychiatric condition too (which I know epilepsy isn’t).  With things like this, there’s a strange prurience.  Ask why they’re uneasy (I have done this) and they…See More
Jan 15, 2012
Jamie Campbell replied to Michael Igoe's discussion The Impossible Dream?
"I dream, however not often.. I'm on 2250 mg keppra..."
Dec 26, 2011
Hubert replied to Michael Igoe's discussion The Impossible Dream?
"Seems like Diamox 250 mgs taken in the end 3 times a day so as to allow for more Dilantn & Phenobarital to be taken (the seizures were less violent with all that, but I sure was a zombie at times).  Worst of all, just as I was about to…"
Dec 26, 2011
Michael Igoe posted a blog post

The Right Emphasis or not?

An epilepsy association here in the UK, and it's not alone, has said its main aim is to eradicate seizures, make them a thing of the past.  It's hard to disagree with that.  But, I wonder, should that be its main aim?Think for a few minutes: which causes you more problems: having attacks of one kind or another (and I have a number of different kinds), or the way other people react to them?  I have to say that I've learned to live with the attacks themselves, except when they're most severe…See More
Dec 15, 2011

Profile Information

Michael Igoe's Blog

Service(s) denied

Posted on August 13, 2013 at 8:54am 5 Comments

Released here today (13/08) a report on epilepsy services in the UK.  They vary from place to place, naturally, but they’re generally not good.  Every year, about 900 people die during seizures; half of these could be prevented, but aren’t.  Specialist epilepsy nurses: hard to come by (I’m lucky).  Perhaps worst of all, though: general ignorance of the condition and what to do about it is no better in society than it was in the 1950s.  And that’s although epilepsy is about as common as…

Continue

Silence reigns. Why?

Posted on May 26, 2012 at 7:08am 0 Comments

This last week was Epilepsy Awareness week.  You wouldn't have know from the mainstream media, with almost zero mention.  One exception was the Guardian newspaper (UK), 21st, which had a special supplement on the subject.  If you can bring this up, please do.  One objection, though: why direct almost all attention on children?  A problem, certainly - I should know that.  But adult careers and marriages are regularly destroyed for this most senseless reason.  That's an experience of mine…

Continue

The Way Things Are

Posted on April 17, 2012 at 8:48am 0 Comments

I don’t like stereotypes very much, do you?  If you’re in a stereotyped group – and most people reading this probably are, or know well someone who is – you have good reason not to.  If you don’t fit the stereotype, you irritate people.  And that can make them doubt if you genuinely are part of that group, or just say you are.  We find a lot of stereotypes in the medical area, don’t we?  So, what’s the epilepsy stereotype?  I think I’m broadly right here.  The person with epilepsy is still a…

Continue

A "Flash of Inspiration"

Posted on February 19, 2012 at 10:10am 1 Comment

I think that practically anybody who reads this site will be familiar with the word ‘photosensitivity’.   Most people with no connection with epilepsy probably think it has something to do with cameras.  No it’s not, very much not.   I’ve read in one leaflet or book after another that it’s comparatively rare.  Is it really?  Or possibly we often don’t recognise it would be nearer the truth.  I’m convinced it’s far more common than these publications suggest.  And that could be…

Continue

Comment Wall (17 comments)

You need to be a member of Epilepsy Foundation to add comments!

Join Epilepsy Foundation

At 2:45pm on October 28, 2011, Donna L Lowe said…
I totaly agree with you on that one. I have not let it hold me back and I have accepted it. What is the title of your book I would love to read it. How can I get a copy of it?  I think that we are more apt to live life better than those who don't have it. We see life in a better way than most do. We keep on going forward with no holds bared. At least that is what I am doing. Please let me know how can get a copy of your book. Thanks Micheal.
At 11:44am on August 24, 2011, mercy said…
Hello,
My Name is Mercy Elvis, i saw your profile today at www.epilepsyfoundation.ning.com and like to know you and please here is my email address (mercyelvis41@yahoo.com) so that i will tell you more about my self and also give you my picture for you to know whom i am,
Mercy,

mercyelvis41@yahoo.com
At 4:48pm on April 19, 2011, Tonya Heathco said…

All is good in Tennessee today. Let me know if you need anything.

Tonya Heathco

National Seizure Disorders Foundation

At 9:27am on November 3, 2010, George Raybould said…
Hi from New York, Michael. The weather here, though it's November, still feels incredible. All good reason to get out, start moving and smiling away the day! Now you do the same!
At 4:54pm on May 25, 2010, Jess said…
I always try to get back up when I fall, even though it sometimes takes more of an effort than what it should. My family is very close-knit and often times I do it for them if for no other reason, simply because I don't want this to be the only part of my life that I get to experience. Please keep posting blogs. I'll be sure to follow them :)
At 10:02pm on May 23, 2010, Jess said…
hi. just wanted to say that i read some of your blogs and they really make sense. thank you for putting your thoughts out there for others to see. they made me smile and feel better too :)
At 5:51am on March 27, 2010, sparky triggers said…
hello michael. how are you my friend ? what are you up to you crazy miser. lol.have a great day. sparky triggers
At 1:00pm on December 5, 2009, Stephen Harris-Leach said…
it is a game where you try to 3 x's or 3 o's in a row
At 10:14pm on November 4, 2009, Mary Lou Connolly said…
Michael,

The name escapes me at the moment---your conservative leader in Parliment---David Cameron????? His 6 yo son died this past year from a seizure. G. Brown gave a touching speech. The NY Times ran a great article by John Burns, Chief London correspondent. I'm sure if you do a search you'll come up w/ something in short order. Should be of some help re awareness. You were going to send me your book. Still? Thanks, Mary Lou
At 3:29pm on November 3, 2009, Mary Lou Connolly said…
Hi Michael,

Several of us are making lots of noise. Katie Couric had an epilepsy segment on 60 Minutes a week ago Sunday. Personally I thought it was quite well done. It has generated some discussions on eCommunities and the CBS web site that are very interesting. You should check it out at www.CBSnews.com and go to 60 Minutes.
Hope your absence doesn't mean things aren't okay with you.
Mary Lou
 
 
 

Terms of Service Update 6/4/2012

We have updated our Terms of Service for eCommunities Groups.

Events

October 2014
SMTWTFS
1234
567891011
12131415161718
19202122232425
262728293031
       

© 2014   Created by EF Admin.

Badges  |  Report an Issue  |  Privacy Policy  |  Terms of Service