Epilepsy Foundation

Michael Igoe
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  • Durham
  • United Kingdom
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The Impossible Dream?

Started this discussion. Last reply by Cassandra Renee Nelson Feb 19, 2012. 15 Replies

Not so long ago, I used to dream vividly almost every night.  It caused me no problems at all.  In fact, I rather enjoyed it.Then along came Keppra, 4 or so years ago, 3,000 mg daily.  Almost…Continue

Tags: dreams, and, Sleep

 

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Service(s) denied

Posted on August 13, 2013 at 8:54am 5 Comments

Released here today (13/08) a report on epilepsy services in the UK.  They vary from place to place, naturally, but they’re generally not good.  Every year, about 900 people die during seizures; half of these could be prevented, but aren’t.  Specialist epilepsy nurses: hard to come by (I’m lucky).  Perhaps worst of all, though: general ignorance of the condition and what to do about it is no better in society than it was in the 1950s.  And that’s although epilepsy is about as common as…

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Silence reigns. Why?

Posted on May 26, 2012 at 7:08am 0 Comments

This last week was Epilepsy Awareness week.  You wouldn't have know from the mainstream media, with almost zero mention.  One exception was the Guardian newspaper (UK), 21st, which had a special supplement on the subject.  If you can bring this up, please do.  One objection, though: why direct almost all attention on children?  A problem, certainly - I should know that.  But adult careers and marriages are regularly destroyed for this most senseless reason.  That's an experience of mine…

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The Way Things Are

Posted on April 17, 2012 at 8:48am 0 Comments

I don’t like stereotypes very much, do you?  If you’re in a stereotyped group – and most people reading this probably are, or know well someone who is – you have good reason not to.  If you don’t fit the stereotype, you irritate people.  And that can make them doubt if you genuinely are part of that group, or just say you are.  We find a lot of stereotypes in the medical area, don’t we?  So, what’s the epilepsy stereotype?  I think I’m broadly right here.  The person with epilepsy is still a…

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A "Flash of Inspiration"

Posted on February 19, 2012 at 10:10am 1 Comment

I think that practically anybody who reads this site will be familiar with the word ‘photosensitivity’.   Most people with no connection with epilepsy probably think it has something to do with cameras.  No it’s not, very much not.   I’ve read in one leaflet or book after another that it’s comparatively rare.  Is it really?  Or possibly we often don’t recognise it would be nearer the truth.  I’m convinced it’s far more common than these publications suggest.  And that could be…

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Comment Wall (16 comments)

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At 2:45pm on October 28, 2011, Donna L Lowe said…
I totaly agree with you on that one. I have not let it hold me back and I have accepted it. What is the title of your book I would love to read it. How can I get a copy of it?  I think that we are more apt to live life better than those who don't have it. We see life in a better way than most do. We keep on going forward with no holds bared. At least that is what I am doing. Please let me know how can get a copy of your book. Thanks Micheal.
At 4:48pm on April 19, 2011, Tonya Heathco said…

All is good in Tennessee today. Let me know if you need anything.

Tonya Heathco

National Seizure Disorders Foundation

At 9:27am on November 3, 2010, George Raybould said…
Hi from New York, Michael. The weather here, though it's November, still feels incredible. All good reason to get out, start moving and smiling away the day! Now you do the same!
At 4:54pm on May 25, 2010, Jess said…
I always try to get back up when I fall, even though it sometimes takes more of an effort than what it should. My family is very close-knit and often times I do it for them if for no other reason, simply because I don't want this to be the only part of my life that I get to experience. Please keep posting blogs. I'll be sure to follow them :)
At 10:02pm on May 23, 2010, Jess said…
hi. just wanted to say that i read some of your blogs and they really make sense. thank you for putting your thoughts out there for others to see. they made me smile and feel better too :)
At 5:51am on March 27, 2010, sparky triggers said…
hello michael. how are you my friend ? what are you up to you crazy miser. lol.have a great day. sparky triggers
At 1:00pm on December 5, 2009, Stephen Harris-Leach said…
it is a game where you try to 3 x's or 3 o's in a row
At 10:14pm on November 4, 2009, Mary Lou Connolly said…
Michael,

The name escapes me at the moment---your conservative leader in Parliment---David Cameron????? His 6 yo son died this past year from a seizure. G. Brown gave a touching speech. The NY Times ran a great article by John Burns, Chief London correspondent. I'm sure if you do a search you'll come up w/ something in short order. Should be of some help re awareness. You were going to send me your book. Still? Thanks, Mary Lou
At 3:29pm on November 3, 2009, Mary Lou Connolly said…
Hi Michael,

Several of us are making lots of noise. Katie Couric had an epilepsy segment on 60 Minutes a week ago Sunday. Personally I thought it was quite well done. It has generated some discussions on eCommunities and the CBS web site that are very interesting. You should check it out at www.CBSnews.com and go to 60 Minutes.
Hope your absence doesn't mean things aren't okay with you.
Mary Lou
At 3:46pm on September 28, 2009, INA NEAL said…
Thanks Michael for your comments. I feel better already. I can't do anything about the memory lapse, but I could still enjoy life. With you as a friend I now know it's possible. Ina
 
 
 

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