"Colleen, considering all you are going through, your loving heart caring for others. Wish there was something i could say to help you. Yes, epilepsy does suck! But the people with it, like you, are wonderful, filled with love for others. Thank you,…"
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Jeaneen Andretta
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- Chatham, NJ
- United States
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Jeaneen Andretta's Discussions
Seizure Medicine
Started this discussion. Last reply by FighterNC Feb 22. 11 Replies 0 Likes
Hi, i have been having that feeling we all dread, a seizure maybe coming. so i had a blood test and the Dilantin was down to only 9 and it should be around 15. So my doctor has me taking 4 caps one…Continue
Love
Started this discussion. Last reply by jessie zosaya Dec 21, 2010. 1 Reply 0 Likes
A happy and peaceful weekend to all. Blessings and Love. jeaneen
Tags: Love
Jeaneen Andretta's Page
Latest Activity
Jeaneen Andretta replied to Colleen Duff's discussion Employment in the group Living Well With Epilepsy
FighterNC replied to Jeaneen Andretta's discussion Seizure Medicine"Melody, Welcome to the forums. People here are pretty informative about things and I want you to make a careful consideration prior to driving. Please understand that this will be risking the lives of every person in each car you approach on…"
Melody Wenz replied to Jeaneen Andretta's discussion Seizure Medicine"I have had seizures in the past, randomly. I hadn't had one in 7 years and then in July in the middle of Wal-Mart, I had one. I was lucky enough to have my husband with me. If it had been 15 minutes later I would of been behind the…"
Nightowl replied to Jeaneen Andretta's discussion Seizure Medicine"I see I made a mistake in my previous post. I meant to say switches in AED's have caused the dilantin dose to be either higher or lower, rather than levels.. I've been taking dilantin for many yrs. and know what the correct levels…"
ejl1558 replied to Jeaneen Andretta's discussion Seizure Medicine"Since it could return and has returned to some people like my cousin, I'll just go with "fully controlled" so I'm covered either way. :)
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Jeaneen Andretta commented on Jessica Wallace's group Living Well With Epilepsy"Ina, i meant fly the plane yourself or skydive by yourself. I have been on many planes they have never been a problem for me either."
FighterNC replied to Jeaneen Andretta's discussion Seizure Medicine"Please try to get blood counts done on a regular basis. Have your Neuro. explain what the numbers stand for and where he expects you to be reading. If he says . "a little high" or "a little low" Stop him in his tracks. You, as…"
Nightowl replied to Jeaneen Andretta's discussion Seizure Medicine"I've been taking dilantin for over 40 yrs., and my dose has been between 300-400 mgs. over the yrs. Switches in AED's have caused the level to either go high or low, so when it's low it'll be raised 50 mgs, and when it's…"
Jeaneen Andretta replied to Tiffany Overby's discussion Seizures beginning at age 38... in the group Living Well With Epilepsy"Tiffany, glad your med is helping you. I can appreciate what you mean by it can be a great relief to know what the problem is. When i finally found out it was epilepsy, i too, was relieved, at least you know. I use to have - what i call brown outs-…"
Jeaneen Andretta commented on Jessica Wallace's group Living Well With Epilepsy"Brian, so sorry to read that meds do not help you. Hopefully your doctors will find something to help you."
Jeaneen Andretta replied to Jeaneen Andretta's discussion Seizure Medicine"That is wonderful! My doctor said the operation would just make my scarring worse, glad your operation has made such a great difference in your life. Does this mean you no longer have Epilepsy?"
ejl1558 replied to Jeaneen Andretta's discussion Seizure Medicine"I had the left temporal lobectomy in December of 2000 and I've been seizure-free ever since. I was on three meds and got off of two of them in a year. I held on to Dilantin because I had been taking it for 30 years but when they…"
Jeaneen Andretta commented on Jessica Wallace's group Living Well With Epilepsy"I have read that really heavy, over exercising can bring on a seizure. The most amazing item i read was that beer causes seizures more than anything. So, i never drink any alcohol, i believe with dilantin you are not suppose to drink alcohol,…"
Jeaneen Andretta commented on Jessica Wallace's group Living Well With Epilepsy"When i had my first seizure in front of my husband, he was so scared. A couple of times before going on Dilantin, i had seizures in front of my husbands Mom and Sister, for weeks all the did was stare at me, just watching to make sure i was all…"
Jeaneen Andretta replied to Jeaneen Andretta's discussion Seizure Medicine"I have been on Dilantin for 40 years and most of the time it works well, only occasionally it go down. Fortunately it has never gone way high. I heard from others that their doctors talked them into a new med with horrible results. When i was little…"
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Comment Wall (9 comments)
- At 2:28pm on January 12, 2012,
Melissa Bryan said…
How have you been Jeaneen? Hope 2012 is good for you!
- At 11:10am on September 13, 2011,
Jan said… Just want to drop you a hello and see how you are doing? I have been busy with work. Been taking apart my garden . The weather is just starting to cool AAAAAAAAAAARRRRRGGGGGGGGGGG . That means leaves start to change. Which is pretty . Then snow waaaaaaaaaaaa . So far remain seizure free for 16 months knock on wood. I started having nightmares , not sure what to make of them but they are very vivid. Other than that life is the same old.
I hope all is well with you and your family .Did that flooding affecting you?
- At 2:50pm on February 6, 2011,
Tom said… - Thanks for the friend invitation. It's nice to meet other people. I am new to that group-an innvitation from another group member. My dog is Snowball-a lhasa apso. See you around the site.
Tom
- At 3:17pm on February 2, 2011, Kari Lynne Brauer said…
Hi Jeaneen,
It is great to have you as a friend! Keep Smiling!
Blessings, Kari
- At 3:33pm on August 24, 2010, Lorne Lee said…
- Nice to talk to you again Jeaneen, I am on Epival twice day,Primidone (mysoline) three times a day an Lamctical, half at breakfast, half at noon and one and a half at bedtime. It comes in 100gm I am well under control with those meds. I hope to talk to you soon.
Lorne
- At 8:29am on August 24, 2010, Lorne Lee said…
- Hello Jeaneen, It is nice to meet you too. I hope that we can talk to each other about our Epilepsy, or what ever you want to. I have two sisters and one brother. I am the oldest. Do you take many seizures, and if so are they very bad. I am well under control now. I hope to talk to you again soon.
Your friend, Lorne
- At 2:30am on June 19, 2010,
Brianna said… - I have been pretty good Jeaneen except for transitioning my meds. Hope you are doing well. :)
- At 6:39pm on June 17, 2010, Brianna said…
- Hi Jeaneen,
I hope you are having a blessed day. Great to be friends again! I believe we were friends on another site as well. :)
- At 8:27am on May 11, 2010, Jan said…
- Thanks for your reply. I have never had problems with depression and lately it has been the biggest issue in my life. Not to sound scarey but its one thing to have a seizure in my own home but I do patient care . I would be completely devestated if I had a seizure at work. One I would be fear for my patient and there support people , NEVER be able to face my co - workers and fear of loosing my job. If this ever happened I fear I would take measures in to my own hands, that a seizure would NEVER happen again. I have come to this site for support and hearing others stories has helped
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