"My son just turned 9 (he is average build) and he takes 125 mg 2x a day of Lamictal and 1200 mg 2x a day of Keppra. He has secondary generalized epilepsy. I kind of feel like he is overmedicated but he still has occasional breakthroughs."
"My 8 year old son has been on Trileptal for over a year. He was at 12 mL twice a day. He never got a rash or hives but side effects included, memory loss, extreme weight gain and always being tired. I think the side…"
"I wish I had some advice. My son is 7 and has secondary generalized epilepsy and ADHD (both diagnosed last March). He is medicated for both and has a very hard time with simple recall, whether it is math or where he was sitting 5 minutes…"
"Do any of you with E ever see or hear things that are not really there. I think this is happening to my 7 year old son. It does not seem to scare him but I wondered if, as an older person, you know that you are hearing/seeing things that are not…"
"Alysia, I work in South Bend. Let me know if you can think of anyway I could be of support to him. I do not have epilesy, my 7 year old son does, so I won't be able to relate to him in that way. If I find out about anything local I will let…"
"I got the following from the EFI October Newsletter, "We are in the process of developing some support groups in different locations in Indiana. If you are interested, please e-mail me and the areas which have the greatest response are the…"
"Does anyone know at approximately what age were you or your child, depending on who has epilepsy, able to identify your aura and know what it was? When were you able to understand when you were having a seizure and how it made you feel physically…"
Welcome to the Epilepsy Foundation's creation of conversations
and information as well! I hope you find the Communities as
constructive and positive as I have. I'm here if you wish to talk
with someone who has a seizure disorder! (:
I hope it's nice in Goshen today,