Epilepsy Foundation

Video for the Epilepsy Foundation of America to support the National Epilepsy Awareness Month campaign.

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Comment by bryan farley on February 1, 2014 at 10:35pm

Robert,

Thank you for your comment and information about EpilepsyCharlotte.com. After having just responded that people should support the national website, it might sound like a contradiction that I support the regional sites too. We need a strong alliance between the regional sites and the national site.

You mentioned that the teen group is especially strong. In the California Bay Area, there is a younger group that has inspired me. I am 45 now, and when I was young, we were encouraged to be quiet. (It was probably good advice.) Do the young people inspire you?

Do the young people out there realize that you inspire the older folks? Do the young people realize why the old people are quiet?

Comment by bryan farley on February 1, 2014 at 10:30pm

I am going to Hafsa Abdul Careem first and respond to Robert Neely separately.

Thank you for your interest in the subject. I also understand your desire for wanting to create a better site that connects more people. This site was more interesting a couple years ago. Many of us wanted to connect more people so we left and created different sites. Unfortunately, so many of us left that ... well, many of us left to different places.

I spend more time on my own site (www.bryanfarleyphotography.com). There are other sites too. (Just search epilepsy) I encourage more people to energize the site run by the Epilepsy Foundation. I also encourage the Epilepsy Foundation to promote this site better.

I hope that helps.

Comment by Robert Gideon Neely on January 30, 2014 at 4:33pm

Bryan,

    Robert Neely here, from Charlotte, NC. I liked your video. We have an active support group here for adults and teens, and I feel it really helps many cope, especially the teens. My seizures are coming from a lesion deep in the brain, just above the brain stem, its a Hypothalamic Hamartoma or HH. This past year the FDA approved Thermal Ablation brain surgery for lesions in the brain. It's a new advancement in technology that few physicians are aware of. I've had seizures for over 60 years, now Visualase has come up with a process that may work wonders for me. EpilepsyCharlotte.com

 

Comment by HAFSA ABDUL CAREEM on January 30, 2014 at 3:01pm

Hi all, 

I am currently a student doing an extended project on epilepsy. My idea is to create my own website on epilepsy. My main aim is to raise the awareness of what epilepsy is to people so that more and more people come to know about it. I really want my website to look entertaining so I thought that this could be achieved if I include a section where people can read case studies of people who actually went through epilepsy. In order to do this, I thought that it would be a good idea for me to be able to get feedback from people who suffers from epilepsy so that I can include their comments on my website. 

Is it possible for you to answer the following questions:  

1. When is the first time you had epilepsy?
2. Are you able to carry out day to day activities?
3. What is your future career plan you wish to achieve or what are you currently doing for a living?
4. Do you follow any treatments?
5. How do you feel during your seizures?
 
Thank you very much for your support in advance. I very much appreciate it.
Comment by bryan farley on October 23, 2013 at 11:05pm

Elizabeth,

Thank you for commenting. I am teaching again this year and I love my students so I understand how it feels to lose that connection.

I can tell you that writing is a great way to connect. Your message really lifted my spirits. Thank you and keep writing. You can also find me at www.bryanfarleyphotography.com and at my older site www.morethankids.com.

Thank you again.

Comment by Liz Coll on October 23, 2013 at 7:01pm

Thanks for the words of acceptance and encouragement, Bryan. I had to quit teaching this Fall after my seizures grew more numerous and severe. I am now in that guinea pig stage, attempting to find the right medication, or medications, that will do the trick. I miss my students dreadfully and am glad for you that you are still able to teach with epilepsy. It gives me hope that perhaps someday I can return to teaching. But, I also am a writer, and writing is something I CAN continue to do, with or without employment. Thanks again. Best wishes, Liz

Comment by bryan farley on August 13, 2013 at 10:11pm

Jill and Rebecca,

You are welcome AND thank you. As for our families, they can be supportive and problematic. I also found that silence became a habit, not just about epilepsy but other parts of my life. I learned how to hide, even when I did not need to do so.

Our discussions here have helped me unlearn some habits.

BF

Comment by Rebecca Elizabeth Anglin on August 12, 2013 at 2:24pm

REA

Comment by Rebecca Elizabeth Anglin on August 12, 2013 at 2:23pm

Your welcome Brian anytime BF

Comment by Jill on August 11, 2013 at 2:25pm

Dear Brian

Thank you for your video and speaking out I suffered from epilepsy for years before I had brain surgery but my family was horrible about my epilepsy. Every time I had a seizure my mother would panic, and she never did learn how to handle a seizure and therefore I was left pretty much on my own to handle everything. My family was  just as discriminating as the general pubic is.  Thank you for encouraging others to speak out.  

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