Epilepsy Foundation

Video for the Epilepsy Foundation of America to support the National Epilepsy Awareness Month campaign.

Views: 1764


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Comment by Dustin Hooton on February 8, 2016 at 8:43am

Thank you so much for all that you have done for those of us with epilepsy.  I use to view this site and your blog all the time and eventually could not find the web address do to memory problems.  That is no excuse either I am on 8 different medications, and have refractory seizures every week and am still having no results stoping these things.  When I saw that the community was being shut down it came as a shock.  I really believe one of the best ways to help people is to just be there to listen.  I'm trying to go back to school myself to become a speech pathologist, which is frustrating because everyone is pushing me away from it because of the high gpa requirements.  All the remedial course work put me down to a 2.5 but I have done well in the actual degree classes.  It's hard when you don't have support, maybe people are just being realistic, I don't know anymore, I'm 36, I just know I want to help people, I love the science behind the field and have not given up until I see a C on that report card for the degree classes.  Anyway sorry for the rambling, and thanks for all that you do. 

Comment by bryan farley on January 26, 2016 at 2:24am

Some of you may have heard that the eCommunity site is going to close at the end of next month. Thank you to everyone who viewed this video and commented. Currently, the number of views says 1767, but the number reset a while ago, so the number is higher.

Hopefully, this conversation will continue elsewhere and on the other online epilepsy sites.

Comment by Joy on January 25, 2016 at 1:24pm

Thank you for this video.  I am a wife and mother who has had epilepsy since the age of 9.  (am now 45) I have recently begun a blog entitled Growing and Living with Epilepsy at http://free22545.wordpress.com   In it I share my experiences with epilepsy, along with some extra links and brain games.  Stop by!

Comment by Gloria J. Carter on October 22, 2015 at 1:12am

Hello, I am finally getting to the "root" of my Epilepsy related seizures. In 2010, I was arrested for shoplifting and again 2011. As a result of these criminal acts (misdemeanors), I was removed from my career in Federal Service (27 years). I was not diagnosed until after the aforementioned acts were committed. I was during this time bombarded with all of the legal issues and courts, etc. My former employer was focusing on my position at the time which required a Secret Security Clearance. However; I have appealed the decision for my removal to no avail. My medications have stabilized my condition (seizures) and I am now able to recollect y thoughts and justify my actions during the commission of the unlawful acts. I have been denied all career goals due to the criminal background checks... I AM REACHING OUT... :-(

Comment by Rob Leverenz on July 9, 2015 at 8:12pm
I'm 55years old now, I started having seizures when I was 12, I was diagnosed with Tuberous Sclerosis in 1996 after my first son was born with complications. My parents told me my seizures were from falling off a tricycle when I was little. I have a VNS implanted which works a little. I had a Craniotomy surgery( tumor removed) in 2012. I still have some seizures. I'm scheduled to go into Rush Medical Center when a time is open in Neurology for a Video EEG and Medicine Evaluation. It seems like lately I've been a lot more Stumbly when I walk, and sleepy quite a it compared to 6 months ago. I have accouple bruises from falling and loosing my balance. I hope this time I'm more stable. I still have a couple seizures(Complex Partial Seizures).
Comment by Brian Powell on October 19, 2014 at 10:02am

  Hi Bryan, have you ever experienced a "silent" , seizure?  If you have, and had not experienced a full blown seizure.  If you have ,do you know what the severity it would be?  Should I be concerned.  I have recently  experienced them about two or three a month.  They have not been shaking with these and with deep breathing usually come to without any side effects.   

Comment by bryan farley on February 1, 2014 at 10:35pm


Thank you for your comment and information about EpilepsyCharlotte.com. After having just responded that people should support the national website, it might sound like a contradiction that I support the regional sites too. We need a strong alliance between the regional sites and the national site.

You mentioned that the teen group is especially strong. In the California Bay Area, there is a younger group that has inspired me. I am 45 now, and when I was young, we were encouraged to be quiet. (It was probably good advice.) Do the young people inspire you?

Do the young people out there realize that you inspire the older folks? Do the young people realize why the old people are quiet?

Comment by bryan farley on February 1, 2014 at 10:30pm

I am going to Hafsa Abdul Careem first and respond to Robert Neely separately.

Thank you for your interest in the subject. I also understand your desire for wanting to create a better site that connects more people. This site was more interesting a couple years ago. Many of us wanted to connect more people so we left and created different sites. Unfortunately, so many of us left that ... well, many of us left to different places.

I spend more time on my own site (www.bryanfarleyphotography.com). There are other sites too. (Just search epilepsy) I encourage more people to energize the site run by the Epilepsy Foundation. I also encourage the Epilepsy Foundation to promote this site better.

I hope that helps.

Comment by Robert Gideon Neely on January 30, 2014 at 4:33pm


    Robert Neely here, from Charlotte, NC. I liked your video. We have an active support group here for adults and teens, and I feel it really helps many cope, especially the teens. My seizures are coming from a lesion deep in the brain, just above the brain stem, its a Hypothalamic Hamartoma or HH. This past year the FDA approved Thermal Ablation brain surgery for lesions in the brain. It's a new advancement in technology that few physicians are aware of. I've had seizures for over 60 years, now Visualase has come up with a process that may work wonders for me. EpilepsyCharlotte.com


Comment by HAFSA ABDUL CAREEM on January 30, 2014 at 3:01pm

Hi all, 

I am currently a student doing an extended project on epilepsy. My idea is to create my own website on epilepsy. My main aim is to raise the awareness of what epilepsy is to people so that more and more people come to know about it. I really want my website to look entertaining so I thought that this could be achieved if I include a section where people can read case studies of people who actually went through epilepsy. In order to do this, I thought that it would be a good idea for me to be able to get feedback from people who suffers from epilepsy so that I can include their comments on my website. 

Is it possible for you to answer the following questions:  

1. When is the first time you had epilepsy?
2. Are you able to carry out day to day activities?
3. What is your future career plan you wish to achieve or what are you currently doing for a living?
4. Do you follow any treatments?
5. How do you feel during your seizures?
Thank you very much for your support in advance. I very much appreciate it.

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