Epilepsy Foundation

If you could keep one new year's resolution

Having epilepsy has helped me prioritize my life. Even though I pretend otherwise, I have realized that I can't do everything. Being a parent, a husband and a photographer has also helped me prioritize. For 2012, I will narrow my focus further.

Rather than creating a list of "things I would like to do," for the epilepsy community during 2012, I have decided to choose one New Year's Resolution and put my energy into the resolution. My resolution will guide me. I will still have a list of things I would like to do and I will probably do many of them, but not at the expense of my primary resolution.

I am encouraging you to do the same. Make one resolution. For our community. Keep your commitment to yourself. If we all keep our main commitment, we will become more powerful.

Throughout the year, we can monitor our success. We can seek and extend help. At the year, we can reflect on our growth.

I resolve to help our epilepsy community learn how to use online tools to become more connected to each other. Our community is at an exciting time in history. We are meeting each other. We are learning about others. We are growing and becoming more powerful. But our virtual voices are barely audible as we end 2011. At the end of 2012, where will we be?

What would you like to do? What interests you the most? Will you share?

Views: 1154

Tags: Epilepsy, Resolutions

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Comment by Tony Murray on December 29, 2011 at 10:14pm

Hi Bryan,kudos for your new years resolution and encoraging others to keep a comitment. I myself am still coming around from all my family, friends and myself have suffered due to my experience withe meds I've been prescribed. I still suffer from side effects. However, we now have an answer and believe we are headed in the rite direction to getting better control of my issues such as anger,depression and other side effects of meds. I will continue to share my stories in hope to help others as they have me. When I find new answers I will share them with others in hope to help others as they have me. As the new year starts I will continue to recomend this sight as well as others where other people with Epilepsy will find more sights to join including one with a chat room. As I have told others including yourself, I now have a membership with the sight my.epilepsy. At that sight, not only does it have a chat room. It also has a daily diary where patients can keep track of thier meds, seizures,moods missed meds and so on. If they get their dr. to join then during their next appointment he/she can have all that information that was placed sinse their last appointment. Hopefully everyone will join. There is so much more to this sight. And that will be my new years resolution. 

Comment by Viv on December 29, 2011 at 9:09pm

Bryan ( with a y ) : )

I will hold on to that goal but if too much times passes how can we nudge the Foundation to get a chat room up and running?

Comment by bryan farley on December 29, 2011 at 8:49pm

Viv,

Excellent. I know there is another person who has expressed interest in a chat room (his name also happens to be Brian, although I spell my name with a y). People at the Epilepsy Foundation read my blog and the comments and someone will likely respond directly to this post or to you directly.

Let's see what happens. Perhaps there can be weekly chats and you can host one. Don't let go of the goal.

Comment by Viv on December 29, 2011 at 7:24pm

Absolutely Brian I would be a point person ( to me that means in charge of a chat room)? Am I right? If not please explain but my resolution is to help others when and where I can. to make them understand we may have our limitations but we have no limits. I was once a facilitator for a womens organization for battered and abused women. I really enjoyed that volunteer work. I beleive I can faciliatte a chat room very well and if not well I hope you will be my back up  : ).

Comment by bryan farley on December 29, 2011 at 7:19pm

Thank you Viv for replying.

Is it your resolution to have the chat? Are you willing to be the point person? To do what it takes? I am willing to support you if it is what you want to do.

bf

Comment by Viv on December 29, 2011 at 7:13pm

Brian, Thank you for taking the time to share your resolutions with us.  I just finished reading a fantastic book called Rusty's story wrongly diagnosed. It is heart wrenching a true story.  I couldn't put this book down it tells of Rusty and her battle with epilepsy.  It almost left me speach less it was written so well and I beleive anyone with Epilepsy can see themselves in some part of this book.

Yes, I would love to have an interactive chat area that people with epilepsy and or care takers can go to for a chat to compare notes etc. At this point in my life I would share any and all my lifes stories with people if it would help them understand.

Have a Happy New Year !

Comment by Samantha Mae Estocl on December 29, 2011 at 6:39pm

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