Epilepsy Foundation

May 2010 Blog Posts (56)

HELP!!!!

I need help/support! My daughter Rochelle is 14 yrs old. She has type 1 diabetes, IGA nephropathy, high blood pressure, and was just diagnosed with Epilepsy a few weeks ago. She is devastated!!!! I am devastated. I feel so overwhelmed. I don't know what to do, where to turn. I don't know what to do next, and most importantly....I don't know how to help her cope. Please help me.... Anyone????

Added by Heather Cox on May 13, 2010 at 12:39pm — 2 Comments

Ecstatic seizures and complex partial seizures

Hi All - It's great to have found a site that understands and discusses the various in's and out's of epilepsy (causes, symptoms etc) from an epileptics perspective. My epileptic experiences have been many and varied over the years, but I have only recently discovered that they are in fact different forms of epilepsy. I've read some of the postings and have been amazed that some people can clearly relate to the two forms of epilepsy that I seem to have developed post-brain surgery: complex…

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Added by Megan on May 13, 2010 at 8:09am — 2 Comments

Help

This is my first time doing this, so let me know if its wrong or not...First time I have ever gone on this website

Added by BETH on May 13, 2010 at 12:20am — 2 Comments

I'm BACK! LOL...update on neck surgery and thyroid issues!

Good morning all!

I missed yall! You have all been in my thoughts and prayers...yes, even my crazy distorted thoughts!

I also want to thank you for all the responses to my earlier post of seizures not Epileptic.

Sooo...I have had several hospitalizations for the thyroid storms, then we had some crazy flooding in our area! My poor Dad got all the wood floor down in the basement (its a walkout) and then we took on water for like 4 hours, we had 3…

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Added by Tammy Johnson on May 12, 2010 at 2:17pm — No Comments

I'm BACK! LOL...update on neck surgery and thyroid issues!

Good morning all!

I missed yall! You have all been in my thoughts and prayers...yes, even my crazy distorted thoughts!

I also want to thank you for all the responses to my earlier post of seizures not Epileptic.

Sooo...I have had several hospitalizations for the thyroid storms, then we had some crazy flooding in our area! My poor Dad got all the wood floor down in the basement (its a walkout) and then we took on water for like 4 hours, we had 3…

Continue

Added by Tammy Johnson on May 12, 2010 at 2:14pm — No Comments

Switched from Lamictal to Tegetrol

Hello all. My daughter moved back to the states from France and her doctor has perscribed Tegetrol. She was on Lamictal before (400 mg/day). I am not familiar with Tegetrol. Has anyone had/have experience, comments, about this drug?

Added by Jeanette Dolphin on May 12, 2010 at 1:18pm — 4 Comments

Flourescent Lights

Good Morning

My son who is 24 just got hired in a clothing store to do freight finally as getting a job was very difficult to do with a lot of discrimination but now that he has one I would like him to keep it but he is having difficulty with the flourescent lights in the storeroom does any one have a suggestion as to how he can cope working in this room as he keeps getting horrific head aches--I thought of sunglasses but he said that would be too dark or maybe a hat or visor but was…

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Added by Brenda Gremillion on May 11, 2010 at 1:32pm — 2 Comments

What to do?

I am awaiting a decision on my SSI. If I don't get to keep it I don't know what I am going to do. I have tried to hold jobs, but each time I cant stay there cause I have missed at least three of the five days . Obvious I can't hold a job so what will happen to me? Got any suggestions?

Added by Jessica Scott on May 11, 2010 at 12:00pm — 2 Comments

To many ?'s not nearly enough answers!

Its been a rough week to say the least. Been sick with this stomach bug I couldnt seem to shake off, so what do ya know... end up in the hospital. The neurologist in my hometown gave me huge doses of Anti-seizure meds through IV while I was there and wanted to increase my dose of Zonegran at home. She never even consulted my Neuro doc in Denver which made me angry! I called her when I got out and she didnt think we needed to, obviously the only reason I ended up there was cuz I wasnt keeping…

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Added by Ashley Krug on May 10, 2010 at 6:38pm — 2 Comments

My Epilepsy

The people i was talking to told me they were anxiety attacks.....which is wrong because my dad just talked to my neurologist and said they are definitely seizures. so in a week she will tell me what exactally to do because she's on vacation. I've had 8 seizures this year both my hands were shaking and moving left to right, my face was also twitching, and my head was jerking up and down......after the last seizure i had a gigantic headache with hot flashes.

Added by Josh Gilbert on May 7, 2010 at 1:23pm — No Comments

Roof Repairs

So, I don't plan on much sleep this week. That's bad, but I don't have much of a choice. :(

I'm gonna call and see if I can get the evening off work, so that will help some.



Earlier this week, we had a huge wind and dust storm. It wasn't quite as bad as parts of Eastern Washington, but it was still bad.

I'm missing a bit over 30 shingles off my roof now. :( And, the shingles will cost less than my insurance deductible, so .. I'm being crazy and repairing it myself.

Rain… Continue

Added by Isky on May 6, 2010 at 8:20am — 3 Comments

Loveing Youself

You know what bugs me about TV, Radio, magazines ect? How they say what size you should be, How to do your hair What to wear ect. so now a day people that are normal waight are droping 10-20 pounds and hurting them self by doing that to make them selfs look better when all they are doing is looking scary skinny.

I'm not say that i don't have problums because i do. Because of these people i now worry about my waight look in the mirror and think i'm fat. the truth is i am 15…

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Added by coolcat on May 4, 2010 at 9:30pm — No Comments

May 2010 Blog Posting

Guess I should get back to blogging but that is not my forte.

We are still recovering from the latest crisis here with Ryan. Last week we think he ate something that caused him to vomit throughout the night. Took him to the E.R at 6:00 a.m. and then he went into status. I guess we were in the right place for a bad status event.

Ryan's neurologist thinks the vomiting could be seizure related. I really hope he is wrong about that because that was even more horrible then…

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Added by Debbie Gibbons (Ryan's mom) on May 4, 2010 at 1:28pm — No Comments

Quiting Smoking - For Good!

I just had my last cigarette, hopefully for life.
Of course, I know all the reasons I shouldn't smoke. I know it's stupid to keep doing it, but somehow, that's never been enough. I'll get clear of them for 2 months, for 4, but somehow, I always come back to it. :(
My husband is taking Chantix now, and tomorrow marks the first day of the second week, when he's not supposed to smoke anymore. I've often used the excuse that him smoking prevents me from staying quit, so that excuse…
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Added by Isky on May 2, 2010 at 9:32pm — 6 Comments

Need Support and Direction......

Hello all,

I wanted to share with all of you that my sister, Penny Stollmeyer is a wonderful "Life Coach".

I know that many of you struggle on a daily basis so I wanted to offer all of you her assistance. As you know, it is extremely important to receive ongoing support and love through the challenges you…

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Added by Annie Stollmeyer on May 2, 2010 at 12:00pm — No Comments

Poison Ivy

Well just got back from the Dr. today with a diagnoses of Poison Ivy. I didn't think it was that and thought it could be a drug reaction. Well it wasn't and I am itching like mad. One good thing happened today, I met Juanita, she is a very sweet and nice person, Here's a shout out to you. Well its 100am and I have to get up at six so I quess I need to get to bed.

Added by Dennis Wessel on May 1, 2010 at 1:52am — No Comments

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