I keep trying overdosing but it won't kill me. I talked to my neurologist's secretary today on the phone and my neurologist is having me drop another medication. My support still hasn't replied back to me and I just can't go a day without having constant seizures and wanting to leave. Every time I try suicide it doesn't kill me. If my support would talk to me and help me I wouldn't have to keep trying to kill myself. I just wish something would work so I could leave. I've lived with this…

I have been having difficulties with the neurologists and epileptologists I have been trying to see. Does anyone know of a good, caring neurologist in the Kansas City area? Thank you for your help,

                                                                      Breanna

A popular Mahatma Gandhi quote illustrates the slow progress of social movements.

“First they ignore you, then they laugh at you, then they fight you, then you win.”

I joined the epilepsy social progress train while we were being ignored. Because my life changed suddenly, I did not consider myself fortunate at the time of my first seizure, but life could have been worse. Before we were ignored, we were…

I haven't been on for a while so I just wanted to touch base with you guys and let you know what has been going on. Unfortunately, May 2012 has been the hardest month of my life. Friday night at 12:39 in the morning, 3 police officers came to my house and asked me constant questions and had me give out emergency contacts because I threatened and attempted suicide. I told my friend ahead of time goodbye telling her that I couldn't keep living anymore and she asked me where I was but I never…

This last week was Epilepsy Awareness week.  You wouldn't have know from the mainstream media, with almost zero mention.  One exception was the Guardian newspaper (UK), 21st, which had a special supplement on the subject.  If you can bring this up, please do.  One objection, though: why direct almost all attention on children?  A problem, certainly - I should know that.  But adult careers and marriages are regularly destroyed for this most senseless reason.  That's an experience of mine…

I have always felt like I am walking in a world where I don't belong but I have some ways that created me to be happier...

Have a role model --- Taylor Swift is mine 

Have a song you can escape to-- mine is a place in this world--- taylor swift

Talk to someone

Stand up for it

Ignore what others think

Be yourself 

Never forget you are beautiful 

16. That's how old I am being a teenager is hard enough but on a daily basis I have to deal with shit people judging me on something I can't control; I once read a quote by Megan Fox that said something along the line stand strong but keep the middle finger higher; I am the type of person who will tell people off if they try walking over me so the next time people try screwing with you about your seizures tell them off having seizures makes you stronger than you realize and always remember…

Well it has been a while since I have been on here but here is the latest update.  We were at 2 meds and introducing an additonal 3rd this weekend until he decided Wed to join the convulsive seizure ranks and had his first grand mal seizure. He now has Absence, Petit Mal, Head Drop and now Grand Mal seizures. We also now have been diagnosed in the Austism spectrum. I'm fighting for SSI round 2, I am constantly fighting with insurance about paying for new or increased meds. Wonder when it…

In the consultant’s room in CUH on Friday Freddie wanted to go to the waiting room next door to get paper cups. He’d spotted the cups on one of our previous visits and wanted them to make false noses as seen on Art Attack. So the two of us went off to get a few, leaving Lisa to wait for his neurologist. We’d already gone through all recent developments, medicine changes, seizure activity and hospital visits with her registrar and he’d gone off to report what was new. On our way back down the…

From the Challenge.Gov website: http://disability.challenge.gov/

Nearly twenty-two years after the passage of the Americans with Disabilities Act and thirty-nine years after the passage of the Rehabilitation Act of 1973 - two of the most significant disability employment-related pieces legislation in American history - people with disabilities continue to be employed at much lower levels than people without disabilities/the general…

 Seeing and reading how EFA, CURE, ETP and others say they are the leaders in epilepsy research and awareness just confuses me when everyone I talk with may let you say what is on your mind, but it gets quickly forgotten about as if your concerns seems to be nothing to them. In some cases I care more for them than what they seem to care for themselves and the others they believe and claim they are helping. I do not want to talk or type for people who are insensitive and pre judging towards…

Update:Anthony has raised his grades from D's and F's at Parkview to A's, b's and one c at ACA.The staff at ACA has really pulled through and completly implented and followed the IEP.They are terrific. Anthony is about to attend the Camp for the Epilepsy foundation next month and is very excited.I hope everyone is doing well...

I am 50 years old and was diagnosed with Left Temporal Lobe Epilepsy back in 2003. I'm pretty sure that I had it as a kid, but went undiagnosed all that time. Thank God, nothing happened! I had my first two Grand Mal's while in the hospital, much to the surprise of the staff because I had been complaining about pain in my stomach. Needless to say they were rapidly flipping through medical books trying to figure out what was wrong with me. I spent the next six months…

I am about to take a major step in my life. One that I hope will change my life for the better. I am about to have the Intracranial EEG surgery. I have finally given up on the meds helping me I have been on 2-7 meds at the same time for the past 15 yrs and the seizures have just gotten more frequent. I cannot work and I cannot drive and it is killing me not being able to do those things. I have found the love of my life and we have just recently got engaged and would love to take the next…

So, I am currently a junior in high school and am having a hard time adjusting still(a year later).  When i had my first seizure, I was on vacation, and was just about to get my driving permit.  The minute I had my seizure and I was diagnosed with Epilepsy, it all went away. Now all my friends are able to drive and have cars and I am the one left out... So, I was wondering if anyone else has had this problem and how they handled it. Also, what do you do at an amusment park as an epileptic…

I joined this site to get help for a friend, who has a son with epilepsy.  I am a firefighter  paramedic with 18 years of EMS experience.  I usually spend 10-30 min with a patient then transfer care to local ambulance company or ER.  A few weeks ago I went I call for a 14 year old having a seizure.  When I arrived on scene, I realized the patient was the son of my children's teacher.   Her son has been…

For the 1st time in a long time I'm down, depressed and just feeling like a burden. Monday I had a seizure in the bathtub, my fiancee luckily found me in time and I was rushed to the hospital. Woke up yesterday with no idea what was going on, where I was at and only few memories of the days prior (Including my bridal shower on Sunday). I was so sore I can hardly walk and covered in bruises, some from the IV's and others from the seizures themselves. Normally I just get a little depressed,…

Well, this is it.  My MCT oil came in today and I am going to start eating a higher fat, low carb diet.  My own version of a ketogenic diet.  My only goal is to try and eliminate the many annoying "space outs" that plague me everyday.  I am on Lamictal and that controls my partial and grand mal seizures so I will remain on it.  I do not want to add any new meds to control the "space outs" so I am going to start with MCT oil and I also have coconut oil.

What I already know:  carbs such…

I’m not particularly superstitious, but I always hesitate to say how long it’s been since Michael’s last extended tonic seizure because I’m afraid I’ll put the jinx on things and somehow by just saying it out loud this current peaceful spell will be broken. So…shhhhhhh. It’s been over three months!! Wow. I think this is the longest stretch in several years.

Mind you, epilepsy still hasn’t taken a back seat in this household. Michael still experiences frequent, milder tonic…

I am looking for a group to spend together after brain surgery, It has been 1 yr this week and mentally connected with others seems to be getting worse:( looking foor a group to talk to going through thr same issues.. anywhere s. of the river? burnsville?? thanks! have a wonderful day!!