All Blog Posts (960)

antoniosmiracle

antonio was diagnosed with Lennox Gaustaut at the age of 3. he was up to then the most perfect little boy ever. smart, sweet, loving, you name it. out of the blue one day he started having seizures. after a month or so, he was having seizures every 4 minutes. tonic clonics, drop attacks, myoclonic you name them. If the seizures didn't stop he would continue to deteriorate. we only had one choice left....the medicines didn't help and we tried them all!!!! they made him worse it seemed. We decided… Continue

Added by maryjane on December 2, 2009 at 8:09pm — No Comments

looking for guidance on writing/publishing/ donating 10% of proceeds to Epilepsy Foundation

Hi All, My name is Dawn and I was diagnosed with Epilepsy at age 12. Since then, I have tried most all meds to control my seizures. I had the VNS implanted 2 years ago and although I don't know if it has helped, I am still having seizures and go through bouts of severe depression. What is unknown is if the depression causes seizures or if the seizures cause depression. I have looked for a book that allows people with Epilepsy know they are not alone. I have found none. I am hoping to write a b… Continue

Added by Dawn on December 2, 2009 at 1:23pm — 1 Comment

All is Now

I have had to learn a lot about living in the now because of epilepsy, especially when it comes to taking the medications. Epilespy medications tend to have a few specific effects which I know well because I have tried ten unsuccessfully, feeling varying degrees of nauseousness, irritibility, dizziness, suffering memory loss as well as a lack of balance. If it was not bad enough having a grand mal seizure and not recalling what day it is or where you are currently laying surrounded by strangers,… Continue

Added by cashmeremafia911 on December 2, 2009 at 1:08pm — No Comments

Mongoose Mountain Bike

I am a huge fan of downhill mountain biking and I decided to find more fans of this wonderful sport in this social network. Regards to creator of this site I would grow the fans of downhill mountain biking. If You have interests DH biking please visit Mongoose Mountain Bike. Continue

Added by Mongoose Mountain Bike on December 2, 2009 at 11:40am — No Comments

start an online business

mompreneur start an online business work at home business Continue

Added by Roertsons T Julia on December 2, 2009 at 11:31am — No Comments

Hello

Hi im Amanda but most call me Panda. I was just diagnosed with Epilepsy 4 months ago. But my doc says i have had it for a long time. I am married have been for 2 years now but i have been with my husband for 5 years. We have 5 kids 2 are mine and 3 are his. We have all of them full time. I am a new stay at home mom and i must sat its been different. At times i miss my job but i know its best 4 me right now. I was a care giver for the elderly for 10 years. I had my first seizure on the job 8 year… Continue

Added by Panda on December 2, 2009 at 10:11am — No Comments

Turned down again because of seizures.

I am so tired of being held back because I'm sick. Today I got turned down from a job that I have wanted for a long time just because I have seizures!Last week I was turned down from receiving insurance because the judge didn't think my case was severe enough and now I can't have this job because they think that it is too severe. Where does it stop? Continue

Added by Whitney Bullok on December 2, 2009 at 12:18am — No Comments

Nobody knows

I was diagnosed when I was about 11, so 8 years is quite a while. My parents say that's it's not a big thing, but they don't know. They take for granted that they can drive a car, I would love to drive. I'm on my 4th doctor, I hope he knows what he's doing. Some doctors just kind of have you go there and ask if you're ok. They suggest something knew or change your dosage if something is wrong and they get paid. It's hard to find a doctor that really cares about the patient, not their pay check. Continue

Added by Grace on December 1, 2009 at 4:29pm — No Comments

Dreamin' Again

We are approaching the end of National Epilepsy Awareness Month (NEAM) and I am discouraged and disappointed that I did not SEE, HEAR or READ much about epilepsy in the past 30 days except for what I write and read on this site where—PRESUMABLY—most of us are already pretty aware of epilepsy and the impact it has on those who live with it. So I guess I'm just preaching to the choir, as they say. In late October, I saw one tel… Continue

Added by Mary Lou Connolly on December 1, 2009 at 2:00pm — 4 Comments

What to consider while taking tramadol pain medication?

This blog aims to provide you information about tramadol pain medication. Tramadol is basically a pain reliever that is used to treat moderate to severe pain. You can buy tramadol from online companies. However before employing tramadol, it is really important to know certain information i.e. what precautions to be taken, what should not be taken with tramadol intake and man… Continue

Added by Cheapusameds on December 1, 2009 at 6:00am — No Comments

I am back!

I had stepped away for awhile to focus on personal issues in my life. Although I am still dealing with these issues, I have found that I need to move forward with my life. This is a major part of my life and everyone that I have met in this community has been of a positive, uplifting and at times humbling experience. Thank you to everyone. Continue

Added by Todd J. De Bow on December 1, 2009 at 12:37am — No Comments

Enduring Epilepsy

Enduring Epilepsy Written By: LaQuida Jackson Dated: November 30, 2009 People who are enduring epilepsy are the ones, who have hope and faith. No matter how long it takes. The strongest survive despite enduring epilepsy. Enduring epilepsy means fighting the good fight and not giving up. Enduring epilepsy has its good days and bad days. People who are enduring epilepsy are so special. Love and caring are always extended to those who are enduring epilepsy. Jesus is compassionate and heals thos… Continue

Added by LaQuida Monea' Jackson on November 30, 2009 at 11:42pm — 2 Comments

I'm worried

I started a new medication a month ago, zarontin, and I've been thinking about dying and suicide a lot lately. I would like to tell my doctor, but my mother insists on going to my appointment. Plus I can't even drive, 19 and I can't drive, that's sad. It's messed up because she already watches me like a hawk. I have to take my meds in front of her, and I take pretty big doses. People say that when you hit puberty your epilepsy just goes away, I'm not that lucky. My seizures started when I hit pu… Continue

Added by Grace on November 30, 2009 at 11:11pm — 2 Comments

I'm Not Quite Sure What's Happening...

I find myself in a bit of a pickle. I have been having a lot headaches, or rather, migraines, lately. Some so bad even my teeth hurt. I have been losing small snipets of time. I'll be working at my desk and then the next instance i find myself staring at the wall. No idea how long I've been staring or what i was doing. Other times I feel like i'm falling when I'm just sitting down. I'm running into things more than normal. And just tiredness, I cant get enough sleep. I was trying to ignore it bu… Continue

Added by Natasha Arrianne on November 30, 2009 at 8:24pm — 2 Comments

Please Join Group: Bewitched- A Life with Epilepsy!!!!!

Im posting this blog to try and gain support for my book, Bewitched- A Life With Epilepsy. PLEASE JOIN THE GROUP! We need to educate people about Epilepsy!!!! Thanks! Gina Continue

Added by Gina E. Di Fiore-Ridolph on November 30, 2009 at 4:13pm — 2 Comments

3rd VNS surgery! another moment lost

This morning I was reading a posting and read the words I've seen so many times "not another moment lost". Today it actually hit me! I'm losing so many moments! Now I have to pushmy self (and my brain) to live each moment to it's fullest. I never know how much time I have left and this has hit me big time after this third surgery. Just had my 3rd surgery. My 1st was to implant it about 2 years ago. 2nd was to repair the leads 4 months later. Last Monday I had the entire system removed and repla… Continue

Added by Sonya on November 30, 2009 at 1:35pm — 1 Comment

You are NOT alone

Depression can be caused by a lot of things, including your meds. But, yes, life can suck when we have epilepsy. I've had IT since the 1960's - a great time for stigma surrounding it. Suicidal ideation is something I've struggled with. Here were some of my thoughts: 1)Why did I feel that way? Because I was depressed about a multitude of health problems, among other things. 2)What about those problems made me that depressed? Two basic things: the inability to control them and (here's the biggie… Continue

Added by Abigail on November 30, 2009 at 10:30am — No Comments

Topamax and pregnancy

Hi has anyone had experience of healthy pregnancy whilst on Topamax. Thanks Continue

Added by roly cat on November 30, 2009 at 10:28am — No Comments

Everything is NOT all right

I am super depressed and have no other options. I don't want to fight to stay alive anymore, but i don't know what to do. I used to feel like there was something to live for, but what is there now? I keep having epileptic seizures, and they are getting worse. The doctors say i can't get pregnant or risk having kids til i'm off the drugs, and i don't see that being anytime soon. I feel like i'm going nuts. Most of all, I feel alone. I feel like no one really knows what I'm feeling. I tried to kil… Continue

Added by Espie on November 29, 2009 at 7:26pm — 2 Comments

MEG Testing

View/Print contentMEG (magnetoencephalography) provides a new noninvasive tool to study epilepsy and brain function. When it is combined with structural imaging, it is known as magnetic source imaging (MSI). MEG measures small electrical currents arising inside the neurons of the brain. These currents produce small magnetic fields. MEG generates a remarkably accurate representation of the magnetic fields produced by the neurons. To some degree, MEG is similar to EEG (electroencephalography). A… Continue

Added by tinkerbell on November 29, 2009 at 6:06pm — No Comments