Epilepsy Foundation

prayeroffaith4u
  • Female
  • Erath, LA
  • United States
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  • meredith froese
  • Penny M Waggoner
  • Alexander Lodi
 

prayeroffaith4u's Page

Latest Activity

prayeroffaith4u posted a status
"@Meredith Thank you! It's a true blessing to be able to home school them! :)"
Jan 29
meredith froese left a comment for prayeroffaith4u
"It is nice for him that you home school .I am homeschooling this year God has healed my seizure disorder and my mind that I can now teach my children now at home. God loves each one of you .He is there to help you."
Jan 29
prayeroffaith4u posted a video

Epilepsy Warrior Boys Seizure Service Dog in Training BLUE!

Can you help us? We are in need of donations for Brynn and Brett's Amazing Seizure Alert K9 BLUE. Blue will be ready in February and we still need $1,100. We...
Jan 29
prayeroffaith4u posted a blog post

My Caregivers Corner on Safety

I have been volunteering for NSDF as a Board Member, Treasurer and also write Caregivers Corner. http://nationalseizuredisordersfoundation.org/nsdf-caregivers-corner-by-denise-marsh-2/See More
Jan 29
prayeroffaith4u replied to Betsy R's discussion EMF's and epilepsy in the group Parents Talking w/Parents
"Not for Brynn, his seizures long serious seizures usually occur while sleeping generally between 1-4 AM. We have a smart meter here, he uses an iPad daily and there has been no increase in seizures from our non-smart meter home 4 months ago. If you…"
Mar 1, 2013
prayeroffaith4u replied to prayeroffaith4u's discussion Black Eyes in the group Parents Talking w/Parents
Mar 1, 2013
prayeroffaith4u liked Nicole E's discussion Free Online Health Chat with Pediatric Epilepsy Experts - March 4
Mar 1, 2013
prayeroffaith4u added a discussion to the group Parents Talking w/Parents
Thumbnail

Black Eyes

Does anyone know the cause (Medical Reason/Term) of black eyes correlating with Seizures? My Son 13, has Congenital Refractory Multi Focal Epilepsy.  He suffers Mainly from Complex Partials & Tonic seizures. Occasionally Tonic Clonic and rarely Drops. I am talking about the eye lid, inner eyes and under involvement with no head injury comes and goes with seizure activity. Thanks!…See More
Mar 1, 2013
prayeroffaith4u replied to Shanda L Vance's discussion At a loss....help? in the group Parents Talking w/Parents
"I hope the Lamictal works for him to gain better control. I have learned that Epilepsy does change, what worked once will not necessarily work again after such a change in seizure frequency or type. ((((hugs and prayers))))"
Nov 17, 2012
prayeroffaith4u replied to sydney verne's discussion VNS implant?? in the group Parents Talking w/Parents
"Brynn had his VNS placed on October 25th, 5 days after his 13th birthday. His neurosurgeon left the VNS on a low setting when they closed his incisions. He had a seizure waking up after surgery and was throwing up everything he would drink for the…"
Nov 6, 2012
prayeroffaith4u replied to Melanie Streight's discussion New to the group in the group Parents Talking w/Parents
"Increased body temperature does lower the seizure threshold. The first sign that my Brynn is sick is increase in seizures, before any other signs. I use 8X4 blank calendar sheets, filling in each month and every day I write all Tonic, Tonic Clonic,…"
Oct 6, 2012
prayeroffaith4u liked Sarah Wright's discussion Finally Getting Somewhere!
Oct 5, 2012
prayeroffaith4u replied to Kristy Horton's discussion What is the difference? in the group Parents Talking w/Parents
"First off, I would be calling the Neuro and let them know you have seen an increase. Secondly, yes seizure disorder and Epilepsy is the same thing. What kinds of seizures does she have? Have you spoken to the school about implementing a plan for her…"
Oct 5, 2012
prayeroffaith4u liked sarah c's discussion sharing some good news!
Oct 5, 2012
prayeroffaith4u replied to randy's discussion Best Dr or hospital for epilepsy in the group Parents Talking w/Parents
""The Adult and Pediatric Comprehensive Epilepsy Centers have been named a Level 4 specialized epilepsy center by the National Association of Epilepsy Centers (NAEC). The Level 4 designation is the highest given by the NAEC and identifies those…"
Aug 30, 2012
prayeroffaith4u replied to Debbi M.'s discussion warning--sad news in the group Parents Talking w/Parents
"May our Father give you comfort, may His everlasting peace surround you. May Brittany's memory always be a blessing.... I am so sorry to hear of your loss... ~Denise "
Aug 30, 2012

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Prayeroffaith4u's Blog

My Caregivers Corner on Safety

Posted on January 29, 2015 at 3:11am 0 Comments

I have been volunteering for NSDF as a Board Member, Treasurer and also write Caregivers Corner. 

http://nationalseizuredisordersfoundation.org/nsdf-caregivers-corner-by-denise-marsh-2/

Comment Wall (3 comments)

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At 6:18pm on January 29, 2015, meredith froese said…

It is nice for him that you home school .I am homeschooling this year God has healed my seizure disorder and my mind that I can now teach my children now at home. God loves each one of you .He is there to help you.

At 12:36pm on May 18, 2011, Jessica W said…

Welcome to the group! It really is a great place to be. In the short time I've been here I've found it to be a wonderful support. Feel free to message me anytime!

I also wanted to invited you to join my group, Living Well With Epilepsy, a place to laugh, smile and share the joys in life.  Come join in the conversation!
 http://epilepsyfoundation.ning.com/group/livingwellwithepilepsy
At 12:03pm on May 18, 2011, Alexander Lodi said…

Greetings !

Welcome to the site. I am sure you will find our site warm and friendly. Feel free to browse my blog if you wish and ask me any questions you may have. I'm more than happy to help.

Alexander

http://epilepsymentor.weebly.com


"To the world you may be one person, but to one person you may be the world." - Unknown Author

 
 
 

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