Epilepsy Foundation

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m51ngc5195 replied to Adamsmom's discussion Word Train - Responses begin with the last letter of the previous word!
"triumph = happiness = success"
May 8
m51ngc5195 replied to Adamsmom's discussion Word Train - Responses begin with the last letter of the previous word!
"eternity = youth = heaven"
Feb 11
m51ngc5195 replied to Adamsmom's discussion Word Train - Responses begin with the last letter of the previous word!
"night = twilight = time"
Dec 14, 2012
m51ngc5195 replied to Adamsmom's discussion Word Train - Responses begin with the last letter of the previous word!
"tennis = slam = match"
Nov 28, 2012
m51ngc5195 replied to Adamsmom's discussion Word Train - Responses begin with the last letter of the previous word!
"gone = elapsed = departed"
Nov 9, 2012
m51ngc5195 replied to Jim (Dravet Syndrome dad)'s discussion Why aren't these whitehouse.gov epilepsy petitions getting more attention?
"Why March 26?   Since November is National Epilepsy Awareness Month, shouldn't a "Purple Day" be in November? Why separate the two? Wouldn't having it in November increase awareness of other events that month?"
Oct 2, 2012
m51ngc5195 replied to Jim (Dravet Syndrome dad)'s discussion Why aren't these whitehouse.gov epilepsy petitions getting more attention?
"Why March 26?   Since November is National Epilepsy Awareness Month, shouldn't a "Purple Day" be in November? Why separate the two? Wouldn't having one in November increase awareness of other events that month?"
Oct 2, 2012
m51ngc5195 replied to Adamsmom's discussion Word Train - Responses begin with the last letter of the previous word!
"notice = explore = escape"
Sep 28, 2012

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Comment Wall (17 comments)

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At 2:06pm on February 11, 2010, Harriett R. McGuire said…
Thank you so much, Gary. We do have a Goodwill Industries here, and someone had made that recommendation. Upon hearing from you, I will contact them today. Thank you for your concern and input.
At 1:15pm on October 12, 2009, Mary Rose said…
Hi Gary,
Wondering how you are doing with your meds. I'm on week 3 of lamictal, due to go off phenobarb if all goes well.
At 3:55pm on September 2, 2009, medulla oh my godda said…
Hello,
I am so glad that you are able to make such excellent posts on the universal health care debate discussion. I look forward to the insight you give- even though I don't post much on there anymore.
Medulla
At 10:47am on August 21, 2009, Marie said…
Hi Gary Thanks for reply. Right now am on 300mg dilantin / 300 mg (to be decreaed) lamotrigine (increasing to 400/day). Questions about your transition are did your veins seem to "bulge" a bit more as the rate of lamotrigine increased/ Did you become more shaky/ I have had sort of an "ache" in my left side under my arm, and how long did the dr. keep you on the full dose of both meds? I will be on both for a month before the decrease and I don' think this is right. Thank you so much for your reply!
At 8:01pm on August 20, 2009, Marie said…
Hi Gary - I see you were or are going thru the switch to lamotrigine, paired with dilantin to get you to the right lamotrigine level, which is what I am going thru right now. I was wondering if you would mind if I asked you a few questions about the switch and how you handle researching all the side effects of these meds while taking them. It seems like there is a lot to be concerned about. Sharing experiences about this definitely helps. Thanks
At 10:41am on August 20, 2009, Adamsmom said…
Hi Gary! As a mom with a son with "E", I want to thank you for sharing your experiences, giving links for information and just being there for support! It truly means a lot! Thank you!

Donna
At 6:48pm on August 3, 2009, Marie said…
Thank you Gary. The neurologists switch patients on these drugs and don;t discuss side effects or what to expect. I know we all have to be advocates, but it would be nice if they talked you thru it a bit more. What scares me is someone is going to call their doctor up for help and sort of get brushed off when they really need someone to talk to. I would be happy to talk to anyone going thru a hard time. Thanks for all your info!
At 9:53am on August 3, 2009, Marie said…
Hey Gary. Thanks for comment back. I think the problem was I was going thru it and I didn't expect it. It took me by surprise and I am so glad there were people here to talk to. It is great to hear of things working out for you, Bye now
At 10:28am on July 17, 2009, Tarrochka said…
No problem! "whew!" Glad to hear that. Thank you for your advice :)
At 6:37pm on July 6, 2009, Philip J. Kurle MD said…
Thanks Gary,
Apparently I missed noticing when you originally replied to my membership. Looking at your postings, you seem very knowledgeable and well connected. All the best.
Phil
 
 
 

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