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2011 Walk Stories, 17
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EF Admin's Blog
**CELEB NEWS: Prince had epilepsy as a child**
Posted on April 28, 2009 at 12:00pm 1 Comment 0 Likes
As anyone with epilepsy knows, it isn’t easy to have epilepsy—and not just because of all the health issues, but also because of the… Continue
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Sam Inglese commented on EF Admin's group Helping Others Get Seizure Smart"Hello Everybody!
I am Sam and I - Am a Documentary Filmmaker who has Epilepsy. I am now living in Boulder Co. and working on raising funds for my next project which will be based on a great Support Group here. I have lived in NJ, NYC,…"
Sam Inglese joined EF Admin's group
Helping Others Get Seizure Smart
Tell Us how you plan to help others get seizure smart. We'd love to hear ideas!See More
Jamila Wilson joined EF Admin's group
National Walk for Epilepsy
This group is for those who have attended, or plan to attend, the National Walk for Epilepsy. Share memories, get important Walk updates & meet others.
Jamila Wilson joined EF Admin's groupHelping Others Get Seizure Smart
Tell Us how you plan to help others get seizure smart. We'd love to hear ideas!See More
"Watch and listen live to our Roundtable where we're presenting about the work we do to improve the lives of people with epilepsy. Hear about our programs, research, events, advocacy, outreach, etc. We'll be presenting all day until 5pm so…"
Living Well With Epilepsy
For those of us interested in living well- physically, mentally and emotionally. A place to talk about the joys in life, as well as physical and mental well-being. See More
Comment Wall (62 comments)
- At 3:18pm on February 17, 2012,
Eugina G Herrera said… I Will Always "Stand Up" In What I Believe In and "Speak Up"
Not Just For Myself But For Everyone! With Special Needs, Eps and Other Ailments!
Medic Alert Member Since 2002
U.S.A.
Gina Giovanna Herrera
- At 2:38pm on February 17, 2012, Eugina G Herrera said…
- At 1:45pm on February 17, 2012, Eugina G Herrera said…
Hi my name is Gina Giovanna Herrera, a Native New Yorker, who lives with epilepsy since the age of 6 months and today i have Grand-mal, Am a Transsexual too. But ever since i've been on this Web Site! I've been call all kind of names from few members whom i believe are non epileptic, whom are here just for Entertainment! Keep the Peace! Among all with Special Needs, EPs, and "Issues" Born 2 Speak Up! Born in the U.S.A !
Medic Alert Member Since 2002
U.S.A.
Gina Giovanna Herrera
- At 10:32pm on October 9, 2011,
Brian said… EF ADMIN... by ignoring this specific issue about having a ( Live) Chat-Room or inserting an Instant Messenger for All of the EF Members here... Thank You , Brian
- At 12:13am on October 4, 2011, Brian said…
- EFA, by ignoring this situation soesn`t change things... EF Members Deserve a way to communicate with one another.live Not just through blogs/posts-- If you disagree with the Live chat-room that is fine At least insert an Instant Messenger so others can chat about their Epilepsy issues/what they go through with. being able to have a EF member who can understand where they`re coming from Thank You - BRIAN
- At 12:31am on September 21, 2011, Brian said…
- No Offense EFA..... Seems This subject about a ( CHAT ROOM ) is literally being Ignored by all of EF Admin..... Not even considering Adding a ( Live-Chat-Room) back... I have only been on this site for a few months... I know that at one time there was a ( Chat-Room) here but was literally Pulled away from under others feet! Because of a few( bad -apples) who caused problems...By removing and Ruining an entire Chat-Room because of some rude/disrespectful individuals.... Just Wrong and Unfair to others..... So Please Consider adding it back for the Majority of the EF members... All you would have to add on it is couple of buttons( Ignore) (Block) Would much Appreciate you taking this into Thought.... Thank You Brian
- At 12:40am on September 14, 2011, Brian said…
- @ Jerry Werner- Had only been here for a couple of months but many say it was just up and Gone.... Which I see is Very Wrong To All Majority of EF members
- At 12:39am on September 14, 2011, Brian said…
EF Admin and members- We all need to Join together and show how we all would like a Chat Room- in order to communicate ore freely with each other and to be able to explain our different situations more easily and more Personal.. Have a Good One
- At 11:01pm on September 12, 2011, Brian said…
- Greetings all EF members and EF admin.. I AGREE 100% with Michelle Smith... I heard there was a ( Chat Room ) here once.. What happened to it? Why was it taken away?? Honestly I think that was Unfair to many other EF members here.. Who feel comfortable explaining their E condition with others who have gone through the same thing.. By having a ( CHAT ROOM ) It would make things much easier/quicker to converse with others who have the same disability...Please take this into Consideration EF Admin...at least for the other members of EF.... Thank You
- At 8:53pm on September 12, 2011,
Michelle (Mickey) Smith said… When I first joined there was what I think was a "chat room" in the lower corner. What happen to it? Why did you take it away? The site would be sooo much better with a chat room for the members to "talk " with each other any time they want to. What do we have to do to bring back the "chatroom"??
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