Started this discussion. Last reply by Vicky Nov 15, 2012. 14 Replies 0 Likes
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Posted on March 29, 2013 at 3:31pm 0 Comments 0 Likes
Our hearts and prayers are with Hip-Hop megastar, Lil Wayne, 30, and his family as he recently announced that he has epilepsy. In the weeks leading up to his announcement, it was reported that he experienced multiple seizures in a single day. While this incident was unfortunate, the Epilepsy Foundation is encouraged by his honesty and candidness in discussing his condition and hopes that his story inspires others, especially young adults, to openly discuss their conditions. Raising…
ContinuePosted on February 27, 2013 at 3:00pm 0 Comments 0 Likes
Whether you were one of the many people who submitted a video, one of the thousands who watched or commented on submitted videos or one of the more than 3,300 people who voted for your favorite, we’d like to thank you for participating in the Epilepsy Foundation’s Now I Know video campaign. It was fantastic to see the outpouring of creativity, support and courage you all demonstrated through your participation.
While our primary aim was to create a forum where people could share their…
ContinuePosted on April 28, 2009 at 12:00pm 1 Comment 0 Likes

marcia mendez joined EF Admin's groupI'm Vic, This site is so overwhelming...with wonderful stories! I can't figure where to start, so I'll start with my story. First, I became a member of this site several years ago but didn't read a lot of "your" stories. I meant no disrespect. As a result, I ended up joining twice. My deepest apology for not doing so. I didn't think I had a right. I'm on 600 mg. Lamictal and 1000 mg. Keppra, daily. It was only recently that I learned about "Keppra Rage" through this site, which explained a lot of my emotional problems I've had since starting the Keppra. Getting to the present med cocktail has been a hit or miss situation. I've tried Dilantin, which had no affect in '96. Then I went to Tegretol, suffered a bad rash immediately, within a day. Then tried Phenobarbitol added with Lamictal, no affect in '99. I've had 3 near severe fatal car accidents in 2000, 2002, and finally 2008. The second one landed me in the hospital with extensive injuries including a fractured pelvis, dislocated hip, and a compound fracture of the left elbow. I was in a body brace from my chest to my right ankle for several months. Christmas that year was conducted from a hospital bed that was moved into my house. The 3rd one I hit someone in the back of an F-150. Needless to say, I have no drivers license. The state says if you haven't had a sezure for 6 mos., I'm allowed a license. I don't know what a good night sleep is, so I take a combination of 10 mg. Ambien and .5 mg. Klonopin. During the night, my dreams are so vivid, it is like I close my eyes to sleep and then drift to a whole new world complete with dialog and movement connected to the story. The problem with that is I'm groggy the next day. I take Paxil for the depression and tremors connected with the med cocktail. The Inderal for the anger issues that comes with Keppra. I also take Inderal because of the tremors I have with the "cocktail". My son lives with me which adds to my guilt that he is loosing the most fun part of his life, his early 20's. I too have speech problems connected with everyday thought patterns which interfers with organization of thought and words. The BIGGEST concern is I have no aura before a seizure occures. There is no warning or aura that warns me. One minute I would be in a discussion or in the middle of a task, and the next, I'm in an ambulance curtousy of my son, a gran mal hits. And they are debilitating; total lost of conscience. Sometimes the anxiety is so overwhelming that it interferes with normal life..what ever that is. And like Bethany Hahlbeck, family members and friends who mean well, tell me the same thing, try eating a good whole food diet, and exercise. Break away from soda and caffiene and other bad things. In other words, punish your taste buds. The deja-vu occurances happen almost daily, periodically. I love my coffee; however, I have one cup. If I get up in the morning. I lost a perfect home for my 3 children and myself. I know many family members and friends mean well when they say get exercise, eat well, relax to twart the symtoms of epilepsy. That's it.
foufou said…
RANDY SHERMAN said… EF ADMIN... by ignoring this specific issue about having a ( Live) Chat-Room or inserting an Instant Messenger for All of the EF Members here... Thank You , Brian
EF Admin and members- We all need to Join together and show how we all would like a Chat Room- in order to communicate ore freely with each other and to be able to explain our different situations more easily and more Personal.. Have a Good One
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