"My daughter is now 5 and got diagnosed at 16 months. We still don't have an actual diagnosis of the type of seizure. Weve had so many EEGs, VEEGS, and AEEGS and still no answers. Our neuro said it seems that her seizures must be too deep in the…"
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emily shepard
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- North Attleboro, MA
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Our Life Dealing With Ep…
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emily shepard's Discussions
Nervous!!
Started this discussion. Last reply by Lrjg Jan 24, 2012. 13 Replies 0 Likes
So my 4 year old daughter has epilepsy, she has since 16 months and have become as much at peace with it as possible. My son has been having behavior problems at school so I went and met with his…Continue
Seizure?
Started this discussion. Last reply by emily shepard Oct 18, 2011. 4 Replies 0 Likes
So my 4 year old DD has been having something wierd gong on with her stomach...Its like contractions, her stomach gets bloated and hard for a few minutes and then goes back to normal. She can't ffel…Continue
Question...
Started this discussion. Last reply by emily shepard Sep 23, 2011. 1 Reply 0 Likes
My daughter has been getting the hiccups alot lately. When she gets the hiccups she is off the wall hitting, biting, running around, and doesnt listen or even acknowledge that were talking to her. …Continue
Potty Training...
Started this discussion. Last reply by Irishmum Sep 16, 2011. 15 Replies 0 Likes
Hey my daughterr Jayla has just turned four, she can not feel the need to go to the bathroom but really wants to be potty trained like all her friends at school. Has anyone had to deal with this…Continue
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emily shepard replied to cricket's discussion How long until official diagnosis of type of seizure? in the group Parents Talking w/Parentsemily shepard commented on Renea Mitchell's group Parents Talking w/Parents"I'm not sure I know in MA we have no child left behind so children cant be kept back unless the school and parent agree and we have mcas but don't get results till the following school year. It does not seem right that she would get kept…"
emily shepard commented on Renea Mitchell's group Parents Talking w/Parents"If she has an Iep or 504 she can get special testing such as extra time someone read her the questions or do it on a computer what ever you think would help her most"
emily shepard commented on Renea Mitchell's group Parents Talking w/Parents"Jane- every seizure has the potential to cause brain damage. Also seizures that aren't controlled can always change and become longer, worse or more frequent. My beat suggestion for you is to find a neurologist that you trust and you feel…"
emily shepard commented on Renea Mitchell's group Parents Talking w/Parents"No problem in public school either"
emily shepard commented on Renea Mitchell's group Parents Talking w/Parents"We all get shirts made on cafepress.com, we have purple bake sale at my church and then we all go out to eat with our epilepsy shirts on so everyone asks what's up with it. My husband an his coworkers also where epilepsy shirts that day at work…"
Lrjg replied to emily shepard's discussion Nervous!!"Yes Jill, you have described it some more! My grandson can still show affection to people. You can tell that he is quite "monitone" when doing it though. It sounds like now there are two different things that could be the…"
JMO replied to emily shepard's discussion Nervous!!"Typically children with even mild aspergers have no ability to interpret emotions. They don't understand that crying means sad- they cannot connect that. They also can't interpret tone of voice so they cannot "find" anger or…"
Lrjg replied to emily shepard's discussion Nervous!!"Another condition, which is sometimes never diagnosed, that you are describing is Asperger Autism. My daughter works with children with this condition at a medical center. My grandson is quite a bit how you have described your…"
Jeremy Tischer replied to emily shepard's discussion Nervous!!"Usually with petite mals he wouldn't drop anything... Ask the teacher if she notices staring mouth movements like tongue clicking, automatisms etc. "
JMO replied to emily shepard's discussion Nervous!!"ADD can have that lack of focus as well. My older daughter hyper focuses to the exclusion of everything around her.
Good luck. "
emily shepard replied to emily shepard's discussion Nervous!!"Not that we know of... But my mom was adopted so we don't know too much about her biological family"
Christopher jarrett replied to emily shepard's discussion Nervous!!"Do you or anyone else in the family have epilepsy? Could have been passed down to them"
emily shepard replied to emily shepard's discussion Nervous!!"I hope that's all it is but he has never been like that and the attention towards my daughter has settled since her diagnosis so I don't know why he would be trying to get attention but it would be wonderful of that's all it is"
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Comment Wall (3 comments)
- At 6:40pm on November 7, 2011,
Patty Guilmette said…
Hi Emily,
Talking to Scott Brown sounds cool. Boston area is a stretch for me, but I'm trying to generate some buzz in Western MA. I'd be willing to do a poetry reading.
Depakote made me have rage and violent behavior, It also made facial hair grow. l am currently on Keppra and doing good.
- At 2:49pm on September 24, 2011,
Jan K. said… - Emily, from what I understand, very many things that we think are absolutely normal, can very well be seizures. From what you describe, the way your daughter acts during and after these "hiccup" attacks, it sounds like it could very well be one. I would definitely being it to the attention of her neuro. Try getting it on video if you can, and of course writing the events down when they occur. It's always better to be over cautious, especially where our kids are concerned. Annie and I send you and yours our very best.
- At 3:40pm on September 28, 2010,
Todd Matthew Kozuszek said… - Welcome to the Epilepsy Foundation's creation of conversation's! I hope
you find the Communities as constructive and positive as I have. If you
want to discuss things with someone who has a seizure disorder, I'm just
letting you know that I'm here.
Have a wonderful day,
Todd Matthew Kozuszek
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