"I think that this is very good to tell People to and how to be Aware of Epilepsy. I aggree that everyone with Epilepsy should wear a Medic-Alert Bracelet. When someone has a seizure it is right you don't have too call 911. Keep a log of all…"
"I go out to different stores and sell Raffle tickets for my Support Group. When a person buys a ticket, I give them all of the stats on Epilepsy. My Support Group also goes into Grade Schools and we have Puppets to show them what happens when a…"
I hear all of you, and the same reason goes for me too: HeatLoss of sleepMissing meds I have not seen anyone say that Grapefruit Juice is bad for you pills and many others too. It will dilute them.LorneSee More
TOGETHER WE CAN MAKE A DIFFERENCE!Epilepsy Friends is a group focused on sharing information about epilepsy. Support the cause by spreading your message about epilepsy.Facebook Group: http://www.facebook.com/group.php?gid=51759117066See More
www.SeizureTracker.com was created as one family's solution for logging seizures and medications in a way that makes it easy to share information with doctors. We ended up with was a powerful, comprehensive tool that needed to be shared.See More
"Hello Tina, I would like to help you out with your problems if I can. Did you know that Grapefruit Juice will dilute your pills and many other kinds of pills too. If I go out into the hot sun I will have a seizure. I think that I might be able to…"
I have spoken several times with 2nd Chances and know she would be away for testing and also away from her computer. This seems like it was 6-8 weeks now. Have you heard from her? Her message page appears inactive. Thanks, Art
after a feww years on this earth ,pushing 60, and 46 of them on drugs of some sort or another for epilepsy I have come to the point I will tell anyone, anywhere, anytime that I am epileptic some ask silly questions like "Can I watch you have your next fit" others will ask if it hurts. most with the exception of the silly ones I try to answer.
I have never seen a support groupof any kind for epilepsy so a few friends are my support if I have a seizure
I really wonder how this will affect my senior years I have this horrid feeling that I could die from the effects of a seizure as I get older unless something is done and
soon meds are increasing and working for awhile then bang a seizure occurs,I ask about an operation and am told my brain function is normal,like WTF,gimme a break if my brain is normal why do I seize I asked a doctor and he didnt know.asked a neurologist and all I got out of him was that the test says your brain is normal.
Hi Lorne, Thank you for being my friend. I agree with you. I am more comfortable referring to myself as a "person with epilepsy." A person always comes first. Epilepsy is something we have. It is a part of us, but it is not who we are. Each one of us is a unique and unrepeatable person. Some of us have epilepsy. I try to only use the term "epileptic" is when defining a seizure that is a neurological event caused from hyper-electrical activity in the brain.