"I was on Topamax and had terrible side effects. Don't think that doesn't work for one person won't work for you. Hopefully I was one of a very small percent."
-
Theresa Olivier
- Female
- Andover, NJ
- United States
- Blog Posts
- Discussions (12)
- Events
- Groups
- Photos
- Photo Albums
- Videos
Theresa Olivier's Discussions
how can you trust doc again
Started this discussion. Last reply by I&R Group Apr 29, 2011. 16 Replies 0 Likes
After 3 years of being treated and dia/for seizure disorder epilepsy. last time in hospital a doctor tells my nero that it could be pycocymatic seizures... he then recommendes me for a second opinion…Continue
medication
Started this discussion. Last reply by LaurensStory Feb 17, 2011. 6 Replies 0 Likes
How many different kinds of AED medication are you on at once,Doctor in ER told me that anything after two med are not worth taking
topamax
Started this discussion. Last reply by Tony Murray Feb 14. 23 Replies 0 Likes
Has anyone been on topamax?
Thinking about stopping all meds....
Started this discussion. Last reply by Emily Sho Feb 2, 2011. 8 Replies 0 Likes
Has anyone ever just stopped taking all your medication.If they are not stopping seizures and tired of having to try new ones. Just tired of the whole way they make you feel....
Theresa Olivier's Page
Latest Activity
"The Epilepsy Resource Center thanks everyone for sharing their stories on topamax and we look forward to hearing from you again.
Best wishes,Mary AnnEpilepsy FoundationEpilepsy Resource Center
Please check out these Foundation programs:Take Charge:…"
Lrjg replied to Theresa Olivier's discussion topamax"I have one choice and that is to try it and see what it does to me. Just from this forum, I have learned that side affects can be totally different from person to person. There are meds. that some on here take now that I tried and ended…"
bryan farley replied to Theresa Olivier's discussion topamax"word recall! That's what I was trying to remember. It had been really bad.
I am not sure how bad my memory problems have been. I think sometimes those of us with epilepsy overstate this, in part because we are always asked about our memory.…"
Lrjg replied to Theresa Olivier's discussion topamax"Lisa, That sounds like good advice if I go ahead and take the Topamax."
Lisa Buchanan replied to Theresa Olivier's discussion topamax"Hi
I've been on topamax for several years. I take it at night before I go to bed. My other seizure medications
is taken during the day. I tried to take the topamax during the day but it brought on seizures. This is because
the…"
Lrjg replied to Theresa Olivier's discussion topamax"Thanks for the info. Betty Anne! It is hearing over and over again about the trouble finding words while taking that drug that makes me nervous. I have enough trouble after my TL surgery with finding words now! I still have a…"
Lrjg replied to Theresa Olivier's discussion topamax"bryan, I am still back and forth with taking it or not. Your headaches returning may mean it was good for the migraines. I don't think the Phychiatrist is going to prescribe it to me. I have a feeling she is going to make me…"
bryan farley replied to Theresa Olivier's discussion topamax"I take generic topamax as a secondary med, mostly for headaches and it works fine. When I took it as my primary, I didn't love it.
I recall having more stomach issues, but that could have been the food I was eating. My memory might have been…"
Lrjg replied to Theresa Olivier's discussion topamax"Julie, I was never put on it for my seizures. It was when I was at my Psychologists office a couple days ago that she mentioned the drug "Topamax". It was mentioned for mood stablization. I had told her that I knew of the…"
Julie Herbers replied to Theresa Olivier's discussion topamax"You said you had never tried it for seizures? What else for? I was also very much a zombie, and I lost quite a bit of weight on it. But if one more person said "Oh, I need to be on that!" when I mentioned my weight loss I…"
Lrjg replied to Theresa Olivier's discussion topamax"Thank you for the info.! I go back and forth with trying it. I took Keppra for a short time. It did not make me shaky, but I didn't want to eat anything. I would fear taking it again for weight loss because it made me…"
TravisEd replied to Theresa Olivier's discussion topamax"You have to be careful using Topa for stability and weight loss. It caused me to GAIN weight. I was eating little over 1 meal a day and my Doc told me I should have another meal. Well, within 2 weeks I needed to buy larger…"
CrazyDiamond - Dave - Apparition replied to Theresa Olivier's discussion topamax"
Hi Laura -
Im one of those who had a bad experience with Topamax.
At first I thought it was the greatest drug becasue it seemed to put my mind together. I had both energy and drive to do things and the knowledge of what to…"
Lrjg replied to Theresa Olivier's discussion topamax"I know this is an old post but was looking for information again on this drug. I have a feeling I would not be able to take it because I was allergic to so many other drugs. I am wanting to try it not for seizures, but for emotional…"
Profile Information
Comment Wall (6 comments)
- At 4:33pm on December 19, 2011,
foufou said…
- At 12:54pm on February 25, 2011,
Giuseppe D. said… Stopping your meds cold turkey is a recipe for disaster. Your body has been on the meds for a while, with the sudden stoppage in the intake of meds you can go in a withdrawal of the meds. Since your body has become medically dependent on the meds. You may have a massive seizure if you go cold turkey without the meds. As I did without Phenobarbital – and that was with my doctor’s supervision. He later scaled back my dosage and weaned me off Phenobarbital in a matter of 5 months.
- At 12:41pm on February 25, 2011, Giuseppe D. said…
- Lamictal has been studied thoroughly in clinical trials. In these studies, the side effects that occur in a group of people taking the drug are documented and are then compared to side effects that occur in another group of people not taking the medicine. In these studies, the most common Lamictal side effects included:
- Dizziness -- in up to 54 %
- Double vision -- up to 49 %
- Headaches -- up to 29 %
- Coordination problems -- up to 28 %
- Blurred vision -- up to 25 %
- Nausea -- up to 25 %
- Vomiting -- up to 20 %.
Other common side effects, occurring in 5 to 20 percent of people, included:Drowsines,- Cough
- Shakiness
- Weakness
- Back pain
- At 4:39pm on February 22, 2011, Giuseppe D. said…
Do you have any balance issues? The reason why I ask is because when I was on Lamictical I had balance issues.
-Giuseppe
Good Luck with your health.
- At 8:01pm on February 20, 2011, Giuseppe D. said…
Yes, I have been on Topamax for over nine years. Common problems involved with Topamax for me is Word filtering or having an easy use of words. For instance, ill fumble with the simplest words – getting them out of my mouth. Not a stutter but a search for the words.
To-day, I am on the VNS or Vagus nerve stimulator along with Topamax, Depakote ER, Klonopin, and Primidone.
What meds are you on?
Good luck.
Giuseppe
- At 11:30am on November 28, 2010, foufou said…
© 2012 Created by EF Admin.
