"Exactly, Cathy! Which doctor made the mistake? Hopefully the first one was wrong, but they need to confer and compare notes ASAP. Even if you are going to find a new doctor, so that these tests don't have to be administered again, the records…"
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Stephanie Scheeren
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- Greensburg, PA
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Stephanie Scheeren replied to Tammieka's discussion Venting!!!! in the group Parents Talking w/ParentsStephanie Scheeren replied to Tammieka's discussion Venting!!!! in the group Parents Talking w/Parents"I would ask the current doctor to contact the previous doctor to discuss and compare findings. Corrction - not ask - TELL the current doctor to discuss it with the previous doctor. And don't let it rest until they do!"
Stephanie Scheeren replied to Stephanie Scheeren's discussion Education question in the group Parents of Teens"I have given the school statements from doctors saying my son's condition is being investigated, etc., the school counselor just bows to whatever the principal and home/school visitor (truancy) say and we don't have an advocate…"
It's big but not bigger than me replied to Stephanie Scheeren's discussion Education question in the group Parents of Teens"Yes we were very fortunate with the school system here. I really and truely think that it was partially because they wouldn't want to face the liability issues if I made her come to school and she left and was injured. Of course my…"
Stephanie Scheeren replied to Stephanie Scheeren's discussion Education question in the group Parents of Teens"You were able to get a 504 without a diagnosis? I have been trying to get one for my son and the school either ignores me or flat out says no without even having a meeting! We were able to get one in place for my daughter who has epilepsy, but not…"
It's big but not bigger than me replied to Stephanie Scheeren's discussion Education question in the group Parents of Teens"We put in for the 504 plan way before we even found out the seizure diagnosis. I have always been VERY vocal with teachers, counselors, school nurses, office personel etc. I told her counselor one day that I know she cringes when she…"
It's big but not bigger than me left a comment for Stephanie Scheeren"I am so thankful for this site!!!! I feel less alone with all of the wonderful people on here. Thank you for reaching out. "
Stephanie Scheeren replied to Stephanie Scheeren's discussion Education question in the group Parents of Teens"Thank you! :) and it IS sad.
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Tiffany Castillo replied to Stephanie Scheeren's discussion Education question in the group Parents of Teens"Good Luck!!! You have to be very demanding and scary!!!! It is sad that we have to be that way, but we will do whatever it takes for our children!!"
Stephanie Scheeren replied to Stephanie Scheeren's discussion Education question in the group Parents of Teens"I've noticed that. My son has a swvere sleep disorder and the school did not offer anything and comoletely ignored my requests for a 504. He has since been removed from enrollment due to excessive absences as a result of his sleep disorder! So…"
Tiffany Castillo replied to Stephanie Scheeren's discussion Education question in the group Parents of Teens"Schools will not tell you that is what needs to happen. You have to start demanding things for a school district to do anything. I am a teacher and a parent of a child with epilepsy. This is all new to me because he was just diagnosed, but I do know…"
Stephanie Scheeren replied to Stephanie Scheeren's discussion Education question in the group Parents of Teens"Hi Michelle. My daughter is also newly diagnosed, having had only 3 tonic clonic seizures over the past year and a half, but always abnormal EEGs. She is on Keppra. 1500mg/day. For her, it's not so bad. She did have some behavioral/emotional…"
Melinda Powers replied to Stephanie Scheeren's discussion Education question in the group Parents of Teens"Hi Michelle! My son has been dealing with seizures for 14 yrs now and he has grand mal. What I can tell you is that if he reads or studies for a test before he has a seizure, he doesnt remember anything after it. My son does struggle in school, but…"
Michelle Boyle Wadzinski replied to Stephanie Scheeren's discussion Education question in the group Parents of Teens"I'm new to this.....my daughter, Eva is 13. She's a great student - straight A's , she's even skipped a grade. She's vibrant, fun-loving, a ballet dancer, plays volleyball, just all around cheerful, has a wide…"
Stephanie Scheeren replied to Stephanie Scheeren's discussion Education question in the group Parents of Teens"I hate that anyone has to deal with these things, but it's great to know there is support and experience to draw from. Thanks so much!"
Melinda Powers replied to Stephanie Scheeren's discussion Education question in the group Parents of Teens"You are welcome. I always have my guard up with my son... it drives him crazy, but it has helped in a lot of ways he doesnt even know about. Just remember that your not alone. If you need anything, please dont hesitate to contact…"
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Comment Wall (5 comments)
- At 1:55pm on May 11, 2012, It's big but not bigger than me said…
I am so thankful for this site!!!! I feel less alone with all of the wonderful people on here. Thank you for reaching out.
- At 11:28am on April 12, 2012, Karen Benda said…
Thanks Stephaine. I'm a special ed teacher and know she would not qualify for those services, so the next best thing is a 504 and our school district dislikes them so much. However after what took place on Tuesday and how the principal yelled at my daughte for not feeling well, I think I have to take some action.
Karen
- At 5:29pm on February 11, 2012,
Jessica Wallace said… Welcome to the site. It's a great place to be. We're happy to have you here, and if there's anything I can do for you, please don't hesitate to ask.
I also wanted to let you know about two groups I created.
Living Well with Epilepsy
http://epilepsyfoundation.ning.com/group/livingwellwithepilepsy
Step Up and Speak Out, for those of us who are tired of the stigma and lack of knowledge attached to Epilepsy.
http://epilepsyfoundation.ning.com/group/standupandspeakout-Jessica
"Whatever you do in life, no matter how insignificant, do it, because nobody else will."Check out my Epilepsy website!
- At 10:36am on February 9, 2012,
Alexander Lodi said… Greetings Stephanie!
Welcome to the site. I am sure you will find our site warm and friendly. Feel free to browse my blog if you wish and ask me any questions you may have. I'm more than happy to help.
Alexander
"To the world you may be one person, but to one person you may be the world." - Unknown Author
- At 10:34am on February 9, 2012,
I&R Group said…
Welcome!
Hello, this is Mary Ann an Information Specialist with the Epilepsy Resource Center. The Resource Center provides information about epilepsy, community referral information for support and assistance, and literature resources to increase understanding of the condition and improve management of the condition. Our toll free number is (800) 332-1000.Best wishes,
Mary Ann
Epilepsy Foundation
Epilepsy Resource CenterPlease check out these Foundation programs:
Take Charge: http://www.takechargeteens.org/
Go EYC: http://www.goeyc.org/
School Nurse Online Training: http://www.nasn.org/Default.aspx?tabid=120
Epilepsy and Seizure Response Training for Law Enforcement: http://www.epilepsyfoundation.org/firstresponders/index.cfm
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