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Signs of a seizure?

Replied Nov 2

possible first seizure in 13 yr old daughter?

Replied Apr 6

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SandraG replied to aymee robinson's discussion 'Signs of a seizure?'

aymee, Being new to all this, you sure found the right website and forum to get help! the parents on here are so helpful and such a comforting source of support. Good luck to you and your daughter, hopefully you will get some answers soon. Attached…

November 1

SandraG commented on EF Admin's group '2009 Walkers'

I live in Syracuse, NY and am mom to a 17 year old daughter with Juvenile Myoclonic Epilepsy. She was diagnosed in Feb 2007. Her first grand mal seizure was in Jan 07 and the pediatric ER doc said it was sleep deprivation since she only got 3 hours…

April 19

SandraG replied to EF Admin's discussion 'Feedback on the "E3" Tent' in the group 2009 Walkers

This was our first year participating in the Walk. We enjoyed ourselves and the comraderie with other people affected by epilepsy and will be back next year! The Canvas of Hope was really nice and well organized with many rows to access it. I really…

April 7

SandraG joined EF Admin's group

2009 Walkers

Join this group! Tell us your walk story and share this years' walk experience. **Do NOT add photos to this group page - Instead take time to create a Photo Album in the "Photos" section for everyone to see!**

April 7

SandraG replied to Wendy Garrison's discussion 'possible first seizure in 13 yr old daughter?'

Research Juvenile Myoclonic Epilepsy. My daughter had her first seizure at 15 with no family history of epilepsy so it was a total shock to all of us. She did, however, have small symptoms prior to her first grand mal seizure. She would have twitche…

April 6

SandraG added 4 photos

April 6

SandraG is now a member of Epilepsy Foundation

Welcome Them!

April 4

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At 2:45pm on June 18, 2009, Liliana said…: Hey, I saw your discussions in a forum earlier. Your daughters story is so similar to mine. My family has no previous history of having epilepsy. I was also diagnosed with JME in my teens. I had jerks/ twitches if I did not have too much sleep. Then, while having a sleep deprived night of studying, I had a seizure in school. MY doctor tried Lamichtal on me and I had a severe allergic reaction to it. I am now on Topomax, which has kept me seizure free since August of 07. I can honestly I have no side effects from the medication. JME is probably a blessing in disguise for the teens that get diagnosed with it. Being 22, I can say that you cannot drink or stay up late(not good to test your sleeping schedule). It makes you become an overall healthier human being.

At 11:05pm on April 26, 2009, Frank Piercy said…: We cant wait for next years walk. We have made it into a annual family mini vacation. The musuems arent as crowded during the week as they are on that saturday.