"Maria, yes she had an MRI when she was 6 months old. She has partial agenesis of the corpus callosum and some missing white matter. She has been having absence seizures, but we apparently have gotten that under control. Now with…"
"Hi Maria,My name is Karyn. How old is your daughter? My son Liam who will be 3 has the same thing 90%abnormal brain activity,we just had a 3 day Video EEG done 2 weeks ago at NYU and it showed some seizures but alot of waves and spikes. When…"
"Did she have an MRI? Lots of times when the activity is from one area it is due to some physical structure impeding normal activity. My daughter has an extremely large amount of abnormal (epileptiform) activity as well and has had…"
So we just got the read of the final EEG report and Grace is seizure free although they noted continuous electrical activity from one lobe of her brain during the EEG. So we will be doing some med adjustments to try to curb that as well. What does this actually mean? Does anyone have any ideas? Why would she have no seizures but still have the activity? We have a neuro visit on Monday but that is a long time from now with questions in my head! Any advice is appreciated!See More
I'm new to the group as well. I have a 20 year old so I can't really relate to having a baby with seizures. I do know that it really doesn't matter because we love our kids no matter what age. I'm here with support and…"
"Welcome aboard Monica ! Our 9 yr old son has complex partial seizures since June 2011. We've been struggling since past 9 months, since past 2 months he was seizng daily but since 3 days he's seizure free all glory to God. We went for a…"
You are in the right place,you will get support,understanding and more as you read and
share your experiences.The site has helped me keep my sanity and focus on my son.To be
his voice even though he is 17 yrs.old.He has been seizure…"
"Hi Monica and Grace. Welcome to group. I am Jenni and my daughter is Kristina and she has epilepsy since last year Aug but has been seizure free for almost 2 month and 2 months will be 25th. Talk again soon"
"Today is the best day in awhile! I finally have some good news to share! Everything is pending a full review of the report but Grace's last EEG preliminary results have come back with no seizure activity!! We are supposed to…"
My daughter is 19mths and is currently on both zonisamide and trileptal. We are primarily treating absence seizures. The zonisamide alone didn't work for her...we did however, see a huge improvement since her last upping of…"
"Hello Monica, Welcome to the group, I just joined myself about a week ago and i am in love with this site and all the people that i have spoken to are amazing. My son has had seizures since July and it is very scary, he has been on Keppra, and…"
"Thanks to all of you for sharing your stories and welcoming me to the group. Sorry it has taken so long for me to response life seems to get in the way! :) Since I last wrote, we have been keeping a close eye on Grace and she just doesn't seem…"
"Welcome to the group Monica. This place has been a God send for me over the years. Both my daughter (6) and husband have tonic clonic sz's. Kaylee's began when she was 5 months old. Even though friends and family…"
Welcome to the site. It's a great place to be. We're happy to have you here, and if there's anything I can do for you, please don't hesitate to ask. I also wanted to let you know about two groups I created.
Hello, this is Gigi an Information Specialist with the Epilepsy Resource Center. Welcome to ecommunities. The Epilepsy Resource Center provides information about epilepsy, community referral information for support and assistance, and literature resources to increase understanding of the condition and improve management of the condition. Please feel free to contact the Epilepsy Resource Center Monday through Friday 9am-5pm (Eastern Standard Time) for specific information or referral services @ 1/800/332-1000.
Also, check out the latest Epilepsy Foundation community outreach programs: