Epilepsy Foundation

LaurenS
  • Female
  • Cleveland, OH
  • United States
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Sleep Apnea and motor seizures

Started this discussion. Last reply by P Smith Feb 13, 2012. 7 Replies

I am new to the community and looking for other parent's experience / thoughts.  I have a 19mo son who I am fairly certain has simple partial, frontal lobe motor seizures.  There is a history of…Continue

 

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P Smith replied to LaurenS's discussion Sleep Apnea and motor seizures
"My son's been through surgery twice, and I would recommend waiting until absolutely necessary before considering surgery.  My son is 11 yrs old, diagnosed with complex partials, and is severely disabled. He had his tonsils/adenoids out at…"
Feb 13, 2012
JMO replied to LaurenS's discussion Sleep Apnea and motor seizures
"I guess I don't understand their assertion that age matters. After all children are the primary sufferers of epilepsy followed closely by the elderly.  Age shouldn't be a factor in meeting the necessary criteria for a…"
Feb 7, 2012
LaurenS replied to LaurenS's discussion Sleep Apnea and motor seizures
"The home videoing was what was suggested to help with diagnosis.  We did do a sleep study in the hospital already, but so far neither the Cleveland Clinic nor Cincinnati children's hospital are willing to do hospitalization for diagnosis…"
Feb 7, 2012
JMO replied to LaurenS's discussion Sleep Apnea and motor seizures
"I guess I wasn't clear in my initial response. I was pointing out that a family history isn't necessary because a neurologist should not dismiss seizures as a possibility based on a presence (or lack thereof) in the family…"
Feb 7, 2012
LaurenS replied to LaurenS's discussion Sleep Apnea and motor seizures
"I am well aware that a family history isn't needed to have seizures, but in our case it is present.  We have had an EEG w/o anything showing up - but that is normal for this type of seizures.  Typical diagnosis requires…"
Feb 7, 2012
JMO replied to LaurenS's discussion Sleep Apnea and motor seizures
"You don't need a family history of seizures to have them. Has your son had an EEG? You don't need to have a seizure during the EEG to have abnormal brain wave patterns that indicate seizures.  My daughter had her tonsils and adenoids…"
Feb 6, 2012
LaurenS replied to connie cogan's discussion genetics? in the group Research Junkies
"I have been told by epileptologist that studies genetics that parents w/o epilepsy have a 3% chance of having a child w/ epilepsy but have also seen it can go as high as 25%.  Those w/ epilepsy may have a higher chance.  I don't think…"
Feb 5, 2012
LaurenS joined Isky's group
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Research Junkies

People interested in articles, studies, and medical information about epilepsy related topics.
Feb 5, 2012
LaurenS posted a discussion

Sleep Apnea and motor seizures

I am new to the community and looking for other parent's experience / thoughts.  I have a 19mo son who I am fairly certain has simple partial, frontal lobe motor seizures.  There is a history of epilepsy in the family.  By 2mo I noticed his sleep apnea and we were able to do a sleep study after he turned 1 which did verify the sleep apnea but unfortunately no seizures that night.  We believe he has also had periods of night terrors but again those were not able to be verified in the sleep…See More
Feb 5, 2012
Maseena Manley left a comment for LaurenS
"Please support our cause.. Let's support each other... Please feel free to come join us in the "Epilepsy/Seizure Awareness Mentoring and Networking Community" group I have put together here on Facebook. This group is meant to help…"
Nov 28, 2011
Jessica W left a comment for LaurenS
"Hi Lauren! Welcome to the site. It's a great place to be. We're happy to have you here, and if there's anything I can do for you, please don't hesitate to ask.I also wanted to let you know about two groups I created.Living Well…"
Nov 17, 2011
I&R Group left a comment for LaurenS
"Welcome!Hello, this is Mary Ann an Information Specialist with the Epilepsy Resource Center. The Resource Center provides information about epilepsy, community referral information for support and assistance, and literature resources to increase…"
Nov 17, 2011
Alexander Lodi left a comment for LaurenS
"Greetings Lauren! Welcome to the site. I am sure you will find our site warm and friendly. Feel free to browse my blog if you wish and ask me any questions you may have. I'm more than happy to help. Alexander www.epilepsymentor.com "To the…"
Nov 17, 2011
LaurenS is now a member of Epilepsy Foundation
Nov 17, 2011

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At 9:16pm on November 28, 2011, Maseena Manley said…

Please support our cause.. Let's support each other... Please feel free to come join us in the "Epilepsy/Seizure Awareness Mentoring and Networking Community" group I have put together here on Facebook. This group is meant to help mentor, support, and network within OUR Community. So that all of our events get the support it needs, and we can all lend a hand to each other. We want this to be a one stop shop. If people can not find the different events and things going on across the country and the world... They can find it in our Community. Please check out my Youtube Channel as well called... BraveMinds. There are also 5 petitions currently going to help move our cause along. This is very large. The petitions are to get Yahoo, Google, Facebook, the NFL, and The White House to all show their support for Epilepsy Awareness. This is or chance to not only get help for ourselves, but help those who will have to deal with this after us. We can all be the difference. The links are as posted. 
Here is the link for the White House to show support for Epilepsy Awareness...[url]https://www.facebook.com/note.php?note_id=257569517617842[/url]
These are the links for Yahoo, Google, NFL, and Facebook to all start showing their support for Epilepsy Awareness.
 
 
 
 
Please show up in support and sign in favor of these petitions... Pass along the word so we can reach and surpass our goals. THIS IS OUR TIME..... So many of us can be saved.. So much funding can be brought in for new medications and treatments. We can save lives. Let's no longer sit in silence, feel ashamed or embarrassed, but let's stand behind out cause. Let us educate other's about what it is we go through in a daily basis.. BUT also educate them on what it is that they all could possibly be facing if we do nothing.

At 7:01pm on November 17, 2011, Jessica W said…

Hi Lauren!

Welcome to the site. It's a great place to be. We're happy to have you here, and if there's anything I can do for you, please don't hesitate to ask.
I also wanted to let you know about two groups I created.

Living Well with Epilepsy
http://epilepsyfoundation.ning.com/group/livingwellwithepilepsy

Step Up and Speak Out, for those of us who are tired of the stigma and lack of knowledge attached to Epilepsy.
http://epilepsyfoundation.ning.com/group/standupandspeakout

 
-Jessica
"Whatever you do in life, no matter how insignificant, do it, because nobody else will."
 
HAPPY EPILEPSY AWARENESS MONTH!  WHAT WILL YOU DO?

 

At 9:57am on November 17, 2011, I&R Group said…

Welcome!
Hello, this is Mary Ann an Information Specialist with the Epilepsy Resource Center. The Resource Center provides information about epilepsy, community referral information for support and assistance, and literature resources to increase understanding of the condition and improve management of the condition. Our toll free number is 800-332-1000.

Best wishes,
Mary Ann
Epilepsy Foundation
Epilepsy Resource Center

November is National Epilepsy Awareness Month! www.getseizuresmart.org

Please check out these Foundation programs:
Take Charge: http://www.takechargeteens.org/
Go EYC: http://www.goeyc.org/
School Nurse Online Training: http://www.nasn.org/Default.aspx?tabid=120
Epilepsy and Seizure Response Training for Law Enforcement: http://www.epilepsyfoundation.org/firstresponders/index.cfm

At 9:32am on November 17, 2011, Alexander Lodi said…

Greetings Lauren!

Welcome to the site. I am sure you will find our site warm and friendly. Feel free to browse my blog if you wish and ask me any questions you may have. I'm more than happy to help.

Alexander

www.epilepsymentor.com


"To the world you may be one person, but to one person you may be the world." - Unknown Author

 

 
 
 

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