"Thanks Ericsmom, I needed to hear this (again) today!
I'm right there with you Laura!
We have seen a neurologist and a epileptic specialist and get different diagnosis each time we see them it seems...."
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Laura Strausburg-Smith
- Female
- Portland, IN
- United States
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Laura Strausburg-Smith's Groups
Laura Strausburg-Smith's Discussions
Myoclonic Seizures and Versed
Started this discussion. Last reply by Andrew Strasser Mar 16. 2 Replies 0 Likes
Last week my son had a slight case of pneumonia and had a seizure (partial) daily for 4 days. Until that time we had sat a record of being FREE for 4 weeks! He started having Myoclonic seizures,…Continue
Rash and Trileptal
Started Mar 9 0 Replies 0 Likes
My 9 month old son began taking Tripletail 6 weeks ago and has developed a rash on his torso. Nero and Pediatrician looked at and told us to keep an eye on it. Finally yesterday Pediatrician sent us…Continue
New to Trileptal... after Keprra and Phenobarb not working
Started this discussion. Last reply by JMO Feb 22. 11 Replies 0 Likes
Need information from anyone who has been on Trileptal. My son is 8 months old and just begining this drug. His nero is eventually going to titrate down Pheno and Keppra. Expierence with side…Continue
Laura Strausburg-Smith's Page
Latest Activity
MeganN replied to Laura Strausburg-Smith's discussion Diagnosis is Left Complex Partial- But he has had Myoclonic, Grand Mal, Status, Absence, Right CP’s—What Does All This Mean? in the group Parents Talking w/Parents
Ericsmom replied to Laura Strausburg-Smith's discussion Diagnosis is Left Complex Partial- But he has had Myoclonic, Grand Mal, Status, Absence, Right CP’s—What Does All This Mean? in the group Parents Talking w/Parents"yes, we have a variety of seizures that have developed since the original diagnosis. You find the right drug(s) with an excellent epileptologist/neurologist and by trial and error...take deep breaths through your nose and exhale through your mouth…"
Kari Lynne Brauer replied to Laura Strausburg-Smith's discussion Asymmetrical Anterior Right Temporal Lobe- Anyone has experience with SZ from this area. in the group Parents Talking w/Parents"Laura,
You'll be fine, take a deep breath, then let it out. It's hard not to be in the driver's seat when it comes to your kids. You feel lost and out of control, it is okay though, make sure you stay right with your doctor all the…"
Kari Lynne Brauer left a comment for Laura Strausburg-Smith"Hi Laura,
I'm glad to be friends with you! You have a beautiful little baby boy! The baby stage was my absolute favorite stage of my kids' life. I enjoyed each stage, but the baby stage was so unique than the rest of their lives....maybe…"
Donna Sebastian left a comment for Laura Strausburg-Smith"Hello Luara my son Alexander has epilepsy and I would love to get to you and you son."
Laura Strausburg-Smith replied to Laura Strausburg-Smith's discussion right temporal lobe seizuires and 4 medication now! and still hyper in the group Parents Talking w/Parents"thank you everyone! still in icu but he is resting now. waiting for nero to explain results of 3t MRI."
Laszlo Katona replied to Laura Strausburg-Smith's discussion right temporal lobe seizuires and 4 medication now! and still hyper in the group Parents Talking w/Parents"Aron has a problem coming from his right frontal lobe. I remember, that when we were on the emergency, it was almost impossible to sedate him, even though he was on the highest level of sedatives and had seizures in about every two-three minutes…"
Tammieka replied to Laura Strausburg-Smith's discussion right temporal lobe seizuires and 4 medication now! and still hyper in the group Parents Talking w/Parents"Hi Laura,
We are sending prayers out for you and Logan!"
Kari Lynne Brauer replied to Laura Strausburg-Smith's discussion right temporal lobe seizuires and 4 medication now! and still hyper in the group Parents Talking w/Parents"Ask your doctor if they would mind if you brought in some soft classical music and played for your son. he needs something to relax his mind, something soft and gentle. When his mind relaxes his body will relax. When you can, try singing him a la la…"
Lisa Barry replied to Laura Strausburg-Smith's discussion right temporal lobe seizuires and 4 medication now! and still hyper in the group Parents Talking w/Parents"Laura, I'm so sorry that you are going through this. My son is 7 and was diagnosed last summer. He also turns blue with seizures and I carry oxygen with us everywhere. He . has been on many meds and is currently on 4 different meds and still…"
Ericsmom replied to Laura Strausburg-Smith's discussion stopping breathing during seizuires in the group Parents Talking w/Parents"Laura, what a scary spot to be in for you and your husband...y'all are in my prayers. I do know when Eric begins getting sick his seizure activity increases and becomes more intense. Keep us informed on how things are going."
"When I just read this it brought me to tears.I have been were you are right now with my son.It has been 4 years since my sons first seizure.He always stops breathing and turns blue.I carry a o2 tank with him every were he goes.My son is 8 and is on…"
Emily- Aggie's mom replied to Laura Strausburg-Smith's discussion right temporal lobe seizuires and 4 medication now! and still hyper in the group Parents Talking w/Parents"Oh Laura...
I wish I had something to say that could help you through this. My little one had stop breathing seizures too (due to a tumor in her rt parietal lobe- but most of the sz showed up in left temporal)... It is the most helpless and…"
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Laura Strausburg-Smith's Photos
Comment Wall (7 comments)
- At 9:53pm on May 10, 2012, Ericsmom said…
how beautiful he is!!1
- At 5:47pm on May 10, 2012, Kari Lynne Brauer said…
Hi Laura,
I'm glad to be friends with you! You have a beautiful little baby boy! The baby stage was my absolute favorite stage of my kids' life. I enjoyed each stage, but the baby stage was so unique than the rest of their lives....maybe it was because it was a peaceful time,haha! Smiles!
Well, anyway it is good to have you as a friend! I hope you have a great rest of the day!
Blessings, Kari
- At 2:29pm on May 10, 2012, Donna Sebastian said…
Hello Luara my son Alexander has epilepsy and I would love to get to you and you son.
- At 3:45pm on November 15, 2011, Penny M Waggoner said…
Hi Luara
I am Penny and I have a 10 year old son who has epilepsy. I am new to this sight as well and I am looking to find some friends that live in the same area as me that are having similar strugles. Hope you find the support you are looking for here as well.
- At 12:07pm on November 9, 2011,
Jessica Wallace said… Hi Laura!
Welcome to the site. It's a great place to be. We're happy to have you here, and if there's anything I can do for you, please don't hesitate to ask.
I also wanted to let you know about two groups I created.
Living Well with Epilepsy
http://epilepsyfoundation.ning.com/group/livingwellwithepilepsy
Step Up and Speak Out, for those of us who are tired of the stigma and lack of knowledge attached to Epilepsy.
http://epilepsyfoundation.ning.com/group/standupandspeakout-Jessica
"Whatever you do in life, no matter how insignificant, do it, because nobody else will."HAPPY EPILEPSY AWARENESS MONTH! WHAT WILL YOU DO?
- At 10:16am on November 9, 2011,
I&R Group said…
Welcome!
Hello, this is Mary Ann an Information Specialist with the Epilepsy Resource Center. The Resource Center provides information about epilepsy, community referral information for support and assistance, and literature resources to increase understanding of the condition and improve management of the condition. Our toll free number is 800-332-1000.Best wishes,
Mary Ann
Epilepsy Foundation
Epilepsy Resource CenterNovember is National Epilepsy Awareness Month! www.getseizuresmart.org
Please check out these Foundation programs:
Take Charge: http://www.takechargeteens.org/
Go EYC: http://www.goeyc.org/
School Nurse Online Training: http://www.nasn.org/Default.aspx?tabid=120
Epilepsy and Seizure Response Training for Law Enforcement: http://www.epilepsyfoundation.org/firstresponders/index.cfm
- At 9:54am on November 9, 2011,
Alexander Lodi said… Greetings Laura!
Welcome to the site. I am sure you will find our site warm and friendly. Feel free to browse my blog if you wish and ask me any questions you may have. I'm more than happy to help.
Alexander
http://epilepsymentor.weebly.com
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