We recieved a phone call from the school about 8:00am on March 12, 2009 informing us that they believed Autumn, our 11 year old, had a seizure on her way to class and was in the process of being transported via ambulance to the local emergency room. We beat the ambulance to the ER. We got led right back to her as she came in and it was hard to believe anything had happened, she was ht esame kid I sent to school that morning, bright, alert and responsive. THey did blood work, an EKG and an CT scan and all came back normal. We were told she had a 50/50 chance of ever having another seizure. They had us come in a week later for an EEG. They found absence seizures on her EEG. They called and rescheduled our appointment with the neurologist for the next business day shortly after we got home. We hadn't even had the MRI yet that was scheduled for Tuesday. It was a Friday so it made for a loooong weekend. Her neurologist chose to medicate her. He starts her on Keppra.
The next morning before the MRI she had another TC in the front seat of the car. We went to the ER, they still did the MRI, and it was also normal.
Six days later we get another call from the school, Autumn had another TC in math class. The next morning she has a TC at our breakfast table. The neurologist doubles her nighttime dose, adds zarontin.
Two weeks goes by she has a mild TC on the couch watching TV at 3:00pm. Stay the course and do bloodwork. 3 hours later she has another mild TC on the couch. HE ups her night time Keppra dose.
We go 56 days seizure free...but then she has a breakthrough absence seizure followed 20 minutes later by an unwitnessed seizure even though an adult is not more than 15 feet away from her, and everyone was home (Mom, Dad, adult big brother, two younger brothers). She fell off the couch, did not convulse, and was very postictal. It was her postictal behavior (crying, confused) and her youngest brother then tellign me he found her face down on the hardwood floor that brought it to our attention. Her neuro ups her nighttime dose and later her even ing dose of zarontin.
We are currently a little over 2 months seizure free : D She also survived going through rabies treatment for a bat in her bedroom with no seizures:D