Epilepsy Foundation

Dorothy Martin
  • Female
  • Fishers, IN
  • United States
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Comment Wall (6 comments)

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At 2:31pm on February 17, 2012, Gina Lynn McKinley said…

On our appoint at UCSF, our doc said he would rather she use medical marijuana then the xanex, or valium as those are so highly addictive and lose their efficacy after some time.

At 6:30pm on October 26, 2011, Todd Matthew Kozuszek said…


I hope everything goes good so your next appointment just

make things better! I have one this upcoming month and

my doctors will probably lower medication doses and increase

the VNS charge level. I've only had two seizure during the

past 58 days and both happened on the same day. I just 

hope Privitera can help me cut those seizures off totally!

You have a beautiful day!




At 2:20pm on October 24, 2011, Todd Matthew Kozuszek said…


When I had my first VNS implanted two years ago I had a side

effect just like the one your daughter is having. It only lasted

a couple of days. I had my new VNS unit implanted this January

and I had no problems at all with this one. Maybe my body was

used to the feeling!


At 9:49am on October 20, 2011, Tammi Zavardino said…


  Thank you for adding me as a friend I am honored and feel we can never have too many friends in our lifetime. Have a wonderful day!


At 10:18pm on May 28, 2011, cholesmom said…

Dorothy, your post was like reading my own biography. My daughter was diagnosed w/ epilepsy 4 days before turning 18, after five years of misdiagnosis by multiple docs.Long story short some medications can have effects on memory. When my daughter was on a certain dose of depakote and lamictal- she started forgetting things alot, she would do her homework and then forget she had done it. She would eat dinner and 2 hours later as what we were having for dinner.

What I am trying to say is it could be how she is metabolizing her meds and not the epilepsy itself. Be firm with your neuro and demand a blood test. My daughter is in the college of her dreams and although her form of epilepsy is lifelong and I worry about 18 hours a day - for the first time in a year I can sleep now, and she is doing well. You can drop me a note via this site anytime you want. Hang in there and God bless


At 2:33pm on February 7, 2011, Alexander Lodi said…

Greetings Dorothy!

Welcome to the site. I am sure you will find our site warm and friendly. Feel free to browse my blog if you wish and ask me any questions you may have. I'm more than happy to help.




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