Epilepsy Foundation

Dorothy Martin
  • Female
  • Fishers, IN
  • United States
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Dorothy Martin's Friends

  • Darby Schulz
  • DLynn Brandenberger
  • Karyn O'Brien
  • Laura Strausburg-Smith
  • Nicole
  • sydney verne
  • Cate
  • Angela Grip
  • cholesmom
  • Tammi Zavardino
 

Dorothy Martin's Page

Latest Activity

Dorothy Martin commented on Renea Mitchell's group Parents Talking w/Parents
"judy my daughter was on potiga and after 6 months we got her off it. it made her toxic and she was not herself. now after the new side affects coming out with fda i would not try it again. very scary side affects"
Aug 2, 2013
Dorothy Martin replied to Darby Schulz's discussion Advice for a Newbie..... in the group Parents of Teens
"Small world,.. my daughter also has a speech disorder. We had an iep for it since it was so severe.  Then got additional 504 for epilepsy.  Personally I would push for iep for his epilepsy so that you can push for assistant to help him.…"
Jul 9, 2013
Dorothy Martin replied to Darby Schulz's discussion Advice for a Newbie..... in the group Parents of Teens
"Darby I am so sorry you are going thru this.  I am in the same boat as you.  My daughter was 17 when she had her first Tonic Clonic.  She was first put on Keppra and she kept having breakthrough seizures so after she was at highest…"
Jul 7, 2013
Dorothy Martin replied to RANDY SHERMAN's discussion POTIGA in the group Living Well With Epilepsy
"My daughter started potiga around Christmas.  She hasn't told me about the dreams.  I'll ask her tonight when she gets out of classes.  She loves potiga.  We took her off zonzimide to. Add potiga.  She felt…"
Feb 19, 2013
Dorothy Martin commented on Renea Mitchell's group Parents Talking w/Parents
"My daughter is going to start a new drug over college Christmas break. We are going to remove zonzimide due to memory loss. We will keep vns,limital and vimpat and we are adding new drug Potiga. Anyone have any experience with this new med? From the…"
Nov 21, 2012
Dorothy Martin commented on Renea Mitchell's group Parents Talking w/Parents
"dagmar, my daughter had the vns implanted last year.it has been the best. she still has seizures but not the tonic clonics she feels so much more in control. she is almost 19 and she had it implanted about a year ago last month. she did have…"
Nov 2, 2012
Dorothy Martin commented on Debi Langsdale's group Parents of Teens
"jennifer, my daughter was driving a year before her seizures started. she hasnt driven since. dr told us that she will never be able to drive again. at first it was real depressing for her but now she understands it is safer for all if she doesnt…"
Nov 1, 2012
Dorothy Martin commented on Debi Langsdale's group Parents of Teens
"Angie, I can relate to you.  My daughter has intractable generalized epilepsy.  She is almost 19 and she was 17 and 1 month when she had her first grand mal.  I think the internal seizures started the prior month.  My daughter…"
Nov 1, 2012
Dorothy Martin replied to Sheri Romero's discussion VNS Questions in the group VNS Therapy
"sheri, go for it. my 18 yr old daughter has intractable generalized epilepsy. She is currently on 3 meds all at the highest doses. She still had break thru seizures. We went for 2nd opinion and they only gave us a 20% chance of it working with her.…"
Sep 13, 2012
Dorothy Martin replied to paula's discussion Child's Accomplishments in the group Parents Talking w/Parents
"Graduate and go to college. Her seizures have been hard to control. Between her meds and grand mals she had a lot of memory loss. We weren't sure she would even graduate. Grades went from a's to c,d,f's. After. 1 1/2 years of med…"
Aug 5, 2012
Dorothy Martin liked Colleen M. Mulgrew's discussion Low Glycemic Index Treatment
Aug 4, 2012
Dorothy Martin liked amy n's discussion Did she faint or have a seizure?
Jul 30, 2012
Dorothy Martin replied to sarah c's discussion new here, questions about zonisamide in the group Parents Talking w/Parents
"I agree with Michelle. My Dr told us that zonzimide is not a stand alone drug. Give zonzimide a chance with the keppra. Yes you have to be careful of the "keppra rage" to to help we added a high dose of vitamin B and the rage went away.…"
Jul 25, 2012
Dorothy Martin replied to sarah c's discussion new here, questions about zonisamide in the group Parents Talking w/Parents
"My daughter was on keppra first and when that didn't control the seizures they added Zonzimide it helped but didn't fully control the seizures so they added vimpat. That was our miracle 3 drug combo for awhile then we added limital. Then…"
Jul 23, 2012
Dorothy Martin replied to debra's discussion my grandbaby in the group Parents Talking w/Parents
"I am so sorry for your loss. As a mom with a daughter with uncontrolled epilepsy that is my daily fear. I will pray for your family."
Jul 23, 2012
Dorothy Martin liked Carly McPherson's discussion Essay in American Journal of Nursing
Jun 13, 2012

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Comment Wall (6 comments)

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At 2:31pm on February 17, 2012, Gina Lynn McKinley said…

On our appoint at UCSF, our doc said he would rather she use medical marijuana then the xanex, or valium as those are so highly addictive and lose their efficacy after some time.

At 6:30pm on October 26, 2011, Todd Matthew Kozuszek said…

Dorothy,

I hope everything goes good so your next appointment just

make things better! I have one this upcoming month and

my doctors will probably lower medication doses and increase

the VNS charge level. I've only had two seizure during the

past 58 days and both happened on the same day. I just 

hope Privitera can help me cut those seizures off totally!

You have a beautiful day!

Sincerely,

 

Todd

At 2:20pm on October 24, 2011, Todd Matthew Kozuszek said…

Dorothy,

When I had my first VNS implanted two years ago I had a side

effect just like the one your daughter is having. It only lasted

a couple of days. I had my new VNS unit implanted this January

and I had no problems at all with this one. Maybe my body was

used to the feeling!

Todd

At 9:49am on October 20, 2011, Tammi Zavardino said…

Dorothy

  Thank you for adding me as a friend I am honored and feel we can never have too many friends in our lifetime. Have a wonderful day!

                                                                Tammi

At 10:18pm on May 28, 2011, cholesmom said…

Dorothy, your post was like reading my own biography. My daughter was diagnosed w/ epilepsy 4 days before turning 18, after five years of misdiagnosis by multiple docs.Long story short some medications can have effects on memory. When my daughter was on a certain dose of depakote and lamictal- she started forgetting things alot, she would do her homework and then forget she had done it. She would eat dinner and 2 hours later as what we were having for dinner.

What I am trying to say is it could be how she is metabolizing her meds and not the epilepsy itself. Be firm with your neuro and demand a blood test. My daughter is in the college of her dreams and although her form of epilepsy is lifelong and I worry about 18 hours a day - for the first time in a year I can sleep now, and she is doing well. You can drop me a note via this site anytime you want. Hang in there and God bless

 

At 2:33pm on February 7, 2011, Alexander Lodi said…

Greetings Dorothy!

Welcome to the site. I am sure you will find our site warm and friendly. Feel free to browse my blog if you wish and ask me any questions you may have. I'm more than happy to help.

Alexander

http://epilepsymentor.weebly.com

 
 
 

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