Epilepsy Foundation

Devy Lee O'Connor
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  • United States
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Devy Lee O'Connor's Discussions

bathroom/ brushing teeth with seizures ?

Started this discussion. Last reply by Lrjg Jan 7, 2013. 7 Replies

  hey do any of you whenever you guys brush your teeth in the bath room, do any of you feel weird and have or feel like your going to have a seizures in there. its the same with taking a bath for me.…Continue

one more thing about baths and seizures

Started Nov 15, 2012 0 Replies

       all of you people who have taken bath when in the bathroom,  have any of you ever had to have some one in the bathroom with you when you take a bath ? whith me its been that way along time ?…Continue

onfi and feeling weird

Started this discussion. Last reply by Sharon Dec 19, 2013. 1 Reply

       i was just wondering has anyone tried onfi with limictal, for some reason i just feel weird like i dont feel like myself but which sucks,  is  i dont remember if i felt this way before  when i…Continue

has anyone have friends leave

Started this discussion. Last reply by Devy Lee O'Connor Dec 3, 2012. 23 Replies

          i was just wondering has anybody lost friends by,  when you came up with seizure like me you were best friends with people or really good friends with someone and when you had a seizure in…Continue

 

Welcome, Devy

Latest Activity

Devy Lee O'Connor shared a profile on Facebook
Jul 7
Devy Lee O'Connor posted a status
"have any of you taken the pill called NUVIgiL too wake me up early right now i wake @ 12. I'm already on Limictal Depocote $ Vimpat."
Jul 6
sezuires and a daughter replied to Devy Lee O'Connor's discussion has anyone everytime they take a bath or shower have stron seizures in there ?
" I have a shower chair so when I take a shower I sit down and I have a shower head. when I bath I have rails on my bathtub and it made so I won't slip and somebody's always home. so that's not a real worry. "
Jan 1
Tabitha Barnes replied to Devy Lee O'Connor's discussion has anyone everytime they take a bath or shower have stron seizures in there ?
"Thank you for the advice. I figured the heat may be a factor, but I wasn't sure.  "
Dec 31, 2013
Sharon left a comment for Devy Lee O'Connor
"Thanks for joining the group.  I hope it's helpful and happy holidays."
Dec 30, 2013
Devy Lee O'Connor joined Sharon's group
Thumbnail

Catamenial Epilepsy

Thought this would be a good place to express our feelings and experience with catamenial epilepsy.I have catamenial epilepsy and my seizures come from my left temporal lobe.See More
Dec 22, 2013
Sharon replied to Devy Lee O'Connor's discussion onfi and feeling weird
"Hey Devy, I just started Lamictal XR with Onfi.  I have been taking Onfi 20 mg morning and night several months ago.  Right now, I am just starting Lamictal XR. Some of my simple partial seizures, I will get a weird euphoric/light…"
Dec 19, 2013
Devy Lee O'Connor liked Sharon's group Catamenial Epilepsy
Nov 30, 2013
Devy Lee O'Connor posted a status
"is it wrong that i dont like people around me ? and dont wanna hangout with people, id rather be by myslef alone. is that a bad thing ?"
Jan 9, 2013
Devy Lee O'Connor shared a profile on Facebook
Jan 7, 2013
Lrjg replied to Devy Lee O'Connor's discussion bathroom/ brushing teeth with seizures ?
"I might understand the feeling you are feeling.  It wasn't until after my surgery that I started having terrible anxiety problems.  The time I always get the weird feeling is when I am about to enter a shower!  I don't know…"
Jan 7, 2013
Suzanne Porter replied to Devy Lee O'Connor's discussion bathroom/ brushing teeth with seizures ?
" Hi Devy,     Try using cooler water when taking a shower or bath this is what my Epileptologist told me to do.  Also try using cold water therapy which is putting a cold washcloth on your face and the back of your neck a…"
Jan 6, 2013
Devy Lee O'Connor replied to Devy Lee O'Connor's discussion bathroom/ brushing teeth with seizures ?
"but how would you talk a shower/ bath. ive tried sitting in the shower a long time ago. so i dont really remember how the shower was it might be different now. my seizures tend to change alot. but what happens is i feel fine…"
Jan 6, 2013
Suzanne Porter replied to Devy Lee O'Connor's discussion bathroom/ brushing teeth with seizures ?
"Hi Devy,    I'm sorry you aren't able to have the surgery.  If I may ask has your Dr. done a veeg on you where they put the electrodes directly on your brain?  This is what I had to have done to pinpoint the area…"
Dec 28, 2012
Lauren's Story replied to Devy Lee O'Connor's discussion bathroom/ brushing teeth with seizures ?
"I would say if you are feeling like you are having some sort of seizure activity or a possible aura, don't try to take a bath at that moment. Actually most doctors suggest showers over baths for safety, but standing in the shower probably…"
Dec 28, 2012
Devy Lee O'Connor replied to Devy Lee O'Connor's discussion bathroom/ brushing teeth with seizures ?
"i wish i was a candidate for surgery  but im not i cant get brain surgery cuz they cant find a certain spot the seizures are coming from. but i can get the vegas nerve stimulater. but im told they only have like a 16…"
Dec 27, 2012

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Comment Wall (11 comments)

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At 8:02pm on December 26, 2013, Sharon said…

Thanks for joining the group.  I hope it's helpful and happy holidays.

At 11:44am on December 21, 2012, Todd Matthew Kozuszek said…

Devy,

        I hope we can be friends now, I promise. Let me know what ya want

to talk about so we can enjoy our conversations for sure. Enjoy the

Holiday season and I promise I will as well.

MERRY CHRISTMAS,

Todd

At 11:40am on December 21, 2012, Todd Matthew Kozuszek said…

Devy,

         I would be happy to be your friend and that I promise. Today it's a

cold snowy day in Ohio and that's a Christmas we'll enjoy! Let me know

what ya want to talk about and I promise talk. (:

Merry Christmas,

Todd

At 11:25pm on December 19, 2012, Art said…

Devy,

         I would be glad to be your friend.  Hope it does not depend on ages because they're not close.  Have a thought.  As long as you are good friends with yourself and don't feel that you have to prove something to others does it really matter which way others move?

Don't mean that you can be completly alone.  But you yourself are more important than what others think of you.  I think that each of us are unique individuals with special talents others may not see or even we do not realize at the time.  I'm not on facebook but would like your opinion.   Smiles,  Art

At 10:27pm on December 18, 2012, Art said…

Devy,

        I once heard that people don't have disabilities, they have "different"  abilities

At 6:42pm on October 23, 2012, Elizabeth Vogel said…

Devy: this is Elizabeth Vogel, but I go by Lisa Vogel. I have a FB page, but I find FB (Face Book) so difficult because of my Epilepsy and memory issues. Your pictures are awesome. I haven't been on this site for a very long time, cuz I totally forgot about it. My Neurologist keeps asking me to join an Epilepsy support group because I sit home alone all day...many days just crying because of what it did to my life. As I type this message to you the tears begin to flow; it's been one of those days again for me. Not only do I have Epilepsy, but when I was 15 I broke my back and wore Harrington rods and a body brace for 18mos; I have a 12in scar down the center of my thorasic spin and live in chronic pain which also does a number to ones self esteem, motivation and need for even more meds.  I'll try to figure out how to use this site but if it gets to complicated, then I'll just have to in a sense...literally forget about it. You are beautiful. I have a 20 yr old daughter; she is beautiful, as well.

At 2:56am on September 26, 2012, Sharon said…

Hope everything is going well.  

At 11:02pm on December 18, 2010, Kelly Rummel said…

Hi Devy Lee!!

I looked @ ur pics and the one w/the bubbles is totally AWESOME!!! Great pic!

I have a 2yr old w/E., and if you ever need to talk, find friends, need support or find info on E. this is a great site!

WELCOME!!

~Kelly,mom2Wesley (:P)

At 9:05am on August 30, 2010, deb bouthiette said…
I WOULD LOV TO DO THAT WITH MY PHOTOS ONCE I FIGER IT OUT??? WELL BYE FOR NOW TALK LATER (DEBRA)
At 8:58pm on August 25, 2010, deb bouthiette said…
hi devy Lee welcome to the site your going to have alot of people to talk to. we can talk anytime you need to ok. well bye for now we will talk later i hope. oh ya your photos are so cool the bubbles how did you do that let me now. DEB
 
 
 

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