Epilepsy Foundation

Working with Epilepsy


Working with Epilepsy

This group is for those of us who are able to work, or wanting to work. It is a place to share the joys and frustrations of the workplace, and how e causes challenges there. Maybe we can encourage and help each other.

Members: 372
Latest Activity: Feb 13

Discussion Forum

Find the Career That's Right For You

Started by Vicki Pickell. Last reply by Vicki Pickell Feb 13. 10 Replies

   Hello Everyone,  I am new to this forum.  Having dealt with many of the same obstacles you all have, as well as seven years experience working as a Career Counselor in MA, I appreciate…Continue

Due to the difficulties we encounter in getting employment, How many are self employed??

Started by Darren Wright. Last reply by veronique brito Oct 20, 2015. 21 Replies

We all have difficulties getting jobs as it is, BUT when you can't drive, and at one stage my seizures weren't under control, visa issues, diagnosed with Behcet's syndrome, and 18 months later, leads…Continue

seizure dog?

Started by Sam. Last reply by Liz Storey Nov 18, 2014. 23 Replies

 I'm trying to get as much info as i can relating to seizure responce dogs. Anyone?? thanxContinue

Are you comfortable with being referred to as an 'epileptic' or 'person with epilepsy'

Started by Darren Wright. Last reply by Timothy Davis Jun 30, 2014. 28 Replies

I have had epilepsy for over 25 years and never had a problem with, or actually thought about how I should be referred. Personally I didn't mind, but until it was pointed out to me the other…Continue

Comment Wall


You need to be a member of Working with Epilepsy to add comments!

Comment by Monica Bernstein on February 11, 2016 at 4:37pm


You're doing a wonderful thing.

Comment by Eileen Warren on February 11, 2016 at 2:22pm


Hi all, I'm running the Boston Marathon for Epilepsy.  Click here to make a donation to the Epilepsy Foundation of New England

Comment by veronique brito on September 22, 2015 at 10:40am

do you have any advice for getting insurance? I checked with 4 different companies yesterday and my goodness. I am trying to understand why I should get insurance. it is more to have it than not.

Comment by Tammi Zavardino on July 20, 2014 at 1:46am

Deborah I also talked to my worker here in Iowa and she is going to look into some groups in your area and we will see what we can come up with.

Comment by Erica Barker on July 15, 2014 at 7:20pm

My boss Kori is a really big prick. I do say my other boss Jimmy is a strict guy but he is nice and no one hates him. There is one guy who likes Kori more than our previous boss because she (our old boss) fired him for not working. Kori hired him back. One weird thing I can say is that when our old boss was around we would talk while working and get more than enough done. Now with Kori we now do talk less and believe it or not we get not as much done. I know I'm just complaining but she has put stress on all of us at work. (All my friends/co-workers agree.) I try not to get too stressed because that can give me a seizure. But I always try and look at the positive: I am glad I have this job (I do enjoy it), I have great friends/co-workers there, I have a really good reputation with my job coach (she says I'm really dependable).  

Comment by Deborah D. Howard on July 10, 2014 at 1:37pm


I typed in the address but it did not appear.  Hear it is again, howard.Debbie@yahoo.com

Comment by Deborah D. Howard on July 10, 2014 at 1:36pm


How did you start your letter to the legislator?  Did you send your letter to a state Leg. or your county leg.  I am going to send my personal address so you can please send me that info.  I greatly appreciate your ideas!


Comment by Tammi Zavardino on July 9, 2014 at 2:55am

Deborah try talking to your doctor about groups or write to a legislator in your state which Is what I did and pretty soon I was meeting with the governor and attending meetings with the Epilepsy foundation in my state and than there is always Easter Seals. Just a few Ideas you could also start a page of your own on-line which could get some results.

Comment by Deborah D. Howard on July 8, 2014 at 11:42am


I did look up Speak Up Georgia, but that did lead me back to Epilepsy Foundation in Ga, and I know that will not work.  Do you have any other ideas?

Comment by Sam Inglese on July 6, 2014 at 11:38am

Deborah. Myself and my Roommate have both been having seizures for over 25ys. I produce documentary's and have begun submitting my screenplay staring a man and woman with Epilepsy. Can we find the funding necessary for me to come down from Co. for 2 weeks to film you expressing yourself, your thoughts and ideals so you and I can produce a 2 minute, 10 and 28 minute documentary for everyone you wish to aid and educate? My latest screenplay is being reviewed by producers in LA for a feature film starring a man and woman with Epilepsy.


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