Epilepsy Foundation

Information

VNS Therapy

VNS (Vagus Nerve Stimulation) Therapy is a non-drug treatment for epilepsy and depression. A pace-maker device is transplanted in the left chest cavity

Info: Cyberonics.com

Members: 141
Latest Activity: Nov 17

Discussion Forum

Battery Replacement

Started by Cynthia. Last reply by Nancy Young Sep 18. 22 Replies

July 2013 is my 5-year anniversary of the implantation, and I'm starting to wonder about battery replacement.  If anyone has had the battery replaced, could you answer the following quesitons for…Continue

VNS Questions

Started by Sheri Romero. Last reply by Nancy Young Aug 12. 43 Replies

Hi I am new to this group and looking for any information on VNS (good or bad experiences). Our doctor has recommended this for my 7 year old son who has intractable epilepsy with partial complex…Continue

Effectiveness of VNS for someone who has infrequent seizures

Started by Melissa. Last reply by Tom Jun 8. 14 Replies

Please help -- my 29 year old son is scheduled to have the VNS implanted this week. We have so many concerns. Our question is our son has a seizure every three to four weeks. It seems as if most…Continue

DOES ANYONE REGRET HAVING THE VNS DONE?????!!!!

Started by Darcy Andahl. Last reply by Don Simmons Jan 21. 8 Replies

Hi everyone,I wrote this title because I need your feedback/advice please!!!I had the vns done in December 2006.They told me that I could cut my medications in half.So I thought that would be…Continue

Comment Wall

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Comment by Tammi Zavardino on October 15, 2011 at 11:37am

I was scared to have the vns surgery but finally decided to do it and for the most part it works but once again I face having the battery changed and wish there was a way you could have the battery charged without an operation. Dorthy your daughter will be a little sore after the surgery and she will have to wait a few days but she will know when she feels good enough to really get back into doing what she did before.I pray this is going to be the answer for her because I know how scary it can be. Take care

Comment by Don Simmons on October 15, 2011 at 11:37am

Dorothy,

Vns surgery is minor and done in day surgery.  The installation procedure is short, approx. 45min. to an hour. So to return to school the next day shouldn't be any problem.  Depending on how she feels the next morning will indicate if there is any complications developing.  After I had mine installed, I was back to normal the same day by evening time.    She will probably develop some hoarness while the stimulator is transferring elec. impulses through the vagas nerve, usually for about 30 sec. at a time. (this is normal),   She will need to keep a record of seizures after installation and take this info with you when you go to the doc.  He/she,  will use this info to make adjustments to the vns. 

You can (gem-up), the magnet if you wish, but be carefull about putting anything magnetic on it. 

Sometimes the more we try to hide it, the more conspicious it becomes.  I wear mine like a watch and hardly anyone ever notices it. 

 

Comment by Don Simmons on October 15, 2011 at 11:00am

Jessica,

Please do not take this weight loss lightly, especially if it continues.  Keep a weekly record of your weight, and if it continues to decline then see your doctor about it.  Also monitor any other side effects that may result from the vns therapy. 

Comment by Dorothy Martin on October 15, 2011 at 9:45am
My 17yr old daughter is having vns surgery on Wednesday. Dr told her she can go back to school when she feels up to it. She wants to go back on Thursday. Is that realistic? She is a mainstream student. Also one of the reps said we can gem up the magnets to make it more fashionable is that correct?
Comment by jessica on October 15, 2011 at 8:12am
i see don ok i was just wondering thank you
Comment by Kim Judd on October 11, 2011 at 9:39pm
ryan had vns surgery 2 wks ago and we is healing well.  he gets it turned on thursday. 
Comment by Don Simmons on October 11, 2011 at 8:52pm

Yes, I also have lost weight due to my meds, and vns.  I pretty sure it's the meds and the vns has nothing or little to do with it.  With the meds I have been on for the last 3 yrs.  I have lost 26 lbs. in weight.  That's no so good because I wasn't overweight to begin with.

 

Comment by jessica on October 7, 2011 at 11:47am
just wondering i have a vns and iam still on meds for another 2 years my nero says  but i have losy 80 lbs from my meds has this happed  to any one else
Comment by Nicole J on September 27, 2011 at 9:56pm
Hello every1! I have had the VNS Therapy for almost 3 years, it took me 2 years b4 I decided to give it a try. I am happy with the outcome... Have a great wk...
Comment by Kim Judd on September 26, 2011 at 9:57am

thanks for the feedback! we are looking fwd to it. ryan was having avg of one TC per month, but alot of absence szs and myoclonic jerks, to the point of not being able to keep a job. employers always think he's on drugs or spaced out. hopefully this will help!! he is currently on 3 meds, not counting the as needed, atavan or xanex, so getting off anything at this point would be huge!

 

 
 
 

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