Epilepsy Foundation

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VNS Therapy

VNS (Vagus Nerve Stimulation) Therapy is a non-drug treatment for epilepsy and depression. A pace-maker device is transplanted in the left chest cavity

Info: Cyberonics.com

Members: 140
Latest Activity: yesterday

Discussion Forum

VNS Questions

Started by Sheri Romero. Last reply by Craig yesterday. 42 Replies

Hi I am new to this group and looking for any information on VNS (good or bad experiences). Our doctor has recommended this for my 7 year old son who has intractable epilepsy with partial complex…Continue

Effectiveness of VNS for someone who has infrequent seizures

Started by Melissa. Last reply by Tom Jun 8. 14 Replies

Please help -- my 29 year old son is scheduled to have the VNS implanted this week. We have so many concerns. Our question is our son has a seizure every three to four weeks. It seems as if most…Continue

Battery Replacement

Started by Cynthia. Last reply by Nancy Young Mar 16. 20 Replies

July 2013 is my 5-year anniversary of the implantation, and I'm starting to wonder about battery replacement.  If anyone has had the battery replaced, could you answer the following quesitons for…Continue

DOES ANYONE REGRET HAVING THE VNS DONE?????!!!!

Started by Darcy Andahl. Last reply by Don Simmons Jan 21. 8 Replies

Hi everyone,I wrote this title because I need your feedback/advice please!!!I had the vns done in December 2006.They told me that I could cut my medications in half.So I thought that would be…Continue

Comment Wall

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Comment by Dorothy Martin on October 15, 2011 at 9:45am
My 17yr old daughter is having vns surgery on Wednesday. Dr told her she can go back to school when she feels up to it. She wants to go back on Thursday. Is that realistic? She is a mainstream student. Also one of the reps said we can gem up the magnets to make it more fashionable is that correct?
Comment by jessica on October 15, 2011 at 8:12am
i see don ok i was just wondering thank you
Comment by Kim Judd on October 11, 2011 at 9:39pm
ryan had vns surgery 2 wks ago and we is healing well.  he gets it turned on thursday. 
Comment by Don Simmons on October 11, 2011 at 8:52pm

Yes, I also have lost weight due to my meds, and vns.  I pretty sure it's the meds and the vns has nothing or little to do with it.  With the meds I have been on for the last 3 yrs.  I have lost 26 lbs. in weight.  That's no so good because I wasn't overweight to begin with.

 

Comment by jessica on October 7, 2011 at 11:47am
just wondering i have a vns and iam still on meds for another 2 years my nero says  but i have losy 80 lbs from my meds has this happed  to any one else
Comment by Nicole J on September 27, 2011 at 9:56pm
Hello every1! I have had the VNS Therapy for almost 3 years, it took me 2 years b4 I decided to give it a try. I am happy with the outcome... Have a great wk...
Comment by Kim Judd on September 26, 2011 at 9:57am

thanks for the feedback! we are looking fwd to it. ryan was having avg of one TC per month, but alot of absence szs and myoclonic jerks, to the point of not being able to keep a job. employers always think he's on drugs or spaced out. hopefully this will help!! he is currently on 3 meds, not counting the as needed, atavan or xanex, so getting off anything at this point would be huge!

 

Comment by michaela adair on September 25, 2011 at 9:59pm

I have had a VNS for about 3 years now and I want to say to Kim Judd that i think it was a good idea to get the VNS and mine has been a big help to me

good luck

michaela

 

Comment by Thomas W. Cook on September 25, 2011 at 4:02pm
I have had an VNS for about  ten years and it has made some improvements for me on having fewer seizures. I used to have as many as 12 to 18 of them per month and was taking three or four meds at a time. After I had one put in me my number of seizures dropped down to about eight at most that I could recall having. And now I have about four or five per month at the most. Some months I have two or three with taking  two meds twice a day. It made a big change for me and my life. and I just seen my dr a few days ago and had a adjustment with it again to see if it would make things any better. Their reset it at 2.25 for every three minutes. I'm looking forward to having fewer seizures soon.
Comment by Kim Judd on September 25, 2011 at 1:15pm

My son, Ryan, 20, is getting VNS this Thursday.  We are really excited. Hoping this will eventually lead to less meds!!  

 
 
 

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