Epilepsy Foundation

Information

VNS Therapy

VNS (Vagus Nerve Stimulation) Therapy is a non-drug treatment for epilepsy and depression. A pace-maker device is transplanted in the left chest cavity

Info: Cyberonics.com

Members: 123
Latest Activity: Jun 8

Discussion Forum

VNS for seizures controlled with harsh meds and lifestyle

Started by Sumer R Rusk. Last reply by mike brownlee Jun 8. 4 Replies

So, I'm making an appointment with my doctor this next week to discuss VNS, and I wanted some opinions.  I hope no one gets offended at my post, I'm not saying x is worse than y, just asking if VNS…Continue

Tags: Bipolar, Medication, VNS

Questions.

Started by Amanda. Last reply by Amanda May 21. 4 Replies

How effective is the VNS? Could I still get test done i.e mammogram? Was just wondering about this before I go ahead and get it. Continue

Effectiveness of VNS for someone who has infrequent seizures

Started by Melissa. Last reply by danny midwest May 21. 12 Replies

Please help -- my 29 year old son is scheduled to have the VNS implanted this week. We have so many concerns. Our question is our son has a seizure every three to four weeks. It seems as if most…Continue

What to expect?

Started by Olivia Grace. Last reply by Don Simmons May 10. 4 Replies

Hey yall :) so I just got the VNS implanted about a week ago. The stiches have been removed and we are planning on turning the device on the 20th. I have Absence seizures and I have had them for 11…Continue

Comment Wall

Comment

You need to be a member of VNS Therapy to add comments!

Comment by Tammi Zavardino on April 4, 2013 at 8:29am

Jessica we are trying to change some of those bills here in our state and the first one is change the driving bill from 6 months to 3 months if seizure free. Also we are working on changing them from starting you on a medicine and than changing it to a generic which a lot of times doesn't do the job that the original medicine does. Still working on that one since medicaid doesn't want to cover the original medicine. I had the new medicine changed to taking it just at night before bedtime and thats been working much better. If you have not been having seizures why did the doctor say you can't drive? I know it is frustrating but hang in there!

Comment by jessica on March 31, 2013 at 11:58pm

tammi yeah lyrica is 150 twice a day and when i first started it i felt like i was tried and dizzy and i still feel a little trired they have to do the way they give it to me diffrent for it to be covered by the insurense went to go get my renewel stuff for my linces done which is do in june and found out the dr said i cant drive agian for 6 months but didnt tell me so here i am baxk where i statred

Comment by Tammi Zavardino on March 28, 2013 at 11:20pm

I was just put on a new one called Potiga and about a half hour after taking it I was so tired I slept half the day. I am very active so this bothered me and the doctor wanted me to take it three times a day and I told her I couldn't do that so she said to just take it at night and see if the feeling tired would go away. All meds have side effects but if the feeling so tired doesn't go away I won't stay on it. Plus it hasn't been approved by my medicaid so I wouldn't be able to afford it. so will have to see. Happy Easter all

Comment by jessica on March 25, 2013 at 9:28pm

lyrica is my new one now the first few days were not so well but doing ok so far

Comment by Tammi Zavardino on March 4, 2013 at 3:32pm

Greetings all and hope you are doing ok Nicole hope all goes well.

Comment by jessica on February 28, 2013 at 7:53pm

good luck nicole . well they put me on tridol and im allergic to it so tommrow im soppose to stop it completelty but im not sure about it i read if you go of it you can have a grand mal but if your allegic you can get sjs

Comment by Nicole J on February 8, 2013 at 10:31pm

Greetings everyone, hope all is well. I have choosen to have my V.N.S removed ASAP. Process has already begin, few more test then procedure. I personally have not benefited from it, my chest extremely hurts on a daily bases. I wish you all nothing but the best, enjoy your wkn.

 

Comment by jessica on February 7, 2013 at 11:10pm

ericsmom yeah they still deinied it so the dr is going ot have to go over the 8 diffrent ones left i havent tryed and see wht they will pay for

Comment by Ericsmom on January 30, 2013 at 8:31am

@Jessica - did you file an appeal with your insurance? A letter from the prescribing doctor explaining medical necessity, anticipated results, ect.

Comment by jessica on January 29, 2013 at 10:49pm

well insurence wouldnt pay for my vimpat so got to see whats next

 
 
 

Terms of Service Update 6/4/2012

We have updated our Terms of Service for eCommunities Groups.

© 2013   Created by EF Admin.

Badges  |  Report an Issue  |  Privacy Policy  |  Terms of Service