Virtual Volunteers

Information

Virtual Volunteers are those who are able to lend a hand to help with the Foundation's national and local online presence.

Members: 99
Latest Activity: May 8

8 members like this

Volunteer Description

Do you like to post on message boards, blog, or communicate through social networking tools? Then volunteer from the convenience of you own home! Tell people about epilepsy and make a huge difference for those affected by the condition!

We need you to help us get information out about epilepsy. With your help, we will ensure that people with seizures are able to participate in all life experiences; and will prevent, control and cure epilepsy through research, education, advocacy and services.

* Students in highschool are enouraged to apply to fulfill their volunteer hours.

Skills

* Writing/Typing
* Reading
* Willingness to help others
* 2 hours a month committment
* Computer knowledge
* Connection to the internet

Here is how it works:
Look for posts from one of our affilate offices and reply back to that person with the amount of hours you can dedicate to their project. Someone from the affiliate office will contact you if you are a good match for their project.

Discussion Forum

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Comment by Gabby Severino on March 28, 2012 at 8:43pm: Hi,

I'm Gabby and I suffer from absence seizures. I am extremely interested in this role; it is perfect for me because I love writing to help people- especially for epilepsy. I have been searching for months for an oppourtunity like this. I was going to volunteer at epilepsy clubs but I haven't been able to get to the location; which is why this job is perfect.

I believe that there are many people who would be good for this role but honestly I think this role should be given to someone who suffers from the condition themselves. I know I would be perfect for this. I understand why people who know someone with epilepsy would be good for this also- however you can't quite understand unless you have the condition yourself. Their advice and help only goes so far- there will always be things and emotions that they can't quite understand.

I write a lot of blogs, for myself most of the time, getting my feelings out, my stories about living life with epilepsy and my advice- some reply, some message me for confidential advice and some simply just read; but I know that people are taking my wise words in.

I'm a strong believer about how dealing with epilepsy emotionally hurts far more than physically and thats something I would especially like to help others with. I know what it is like to have to deal with the life altering condition and the way it makes you feel. I can empathize with people's feelings about the things they cannot do, such as driving, drinking with your friends, going to see live music and clubs; I understand all of that.

I have my days where I feel in despair, lost and sad but I always see the positive side of things and thats what I love showing people, reaching out to them and making sure they see the good side of it all. We all need a little hope and sometimes all you need is to hear is the thoughts and ideas from other people. Sometimes all you need is to read an inspiring blog who can help give other people relief and answers and finally realising that they are not alone.

I also want to commit to all the different aspects of epilepsy such as other ways I can communication with others- such as raising awareness, giving advice to people who need answers for their children or family/friend members who suffer from it. And any other ways to reach out and help.

Someone wise and very close to my heart once said to me " Always believe in positive thoughts and I promise you the universe will give you what you wish for- if you think you are unlucky, you'll attract bad luck"

That was one of the most helpful quotes anyone has ever said to me and I it is a quote that stays close to my heart. It's the quote that makes me realise and gives me hope that never doesn't exsist. I believe my epilepsy will go away one day and if it doesn't- I still have that hope and faith that it will and that still makes it easier to deal with.

So as I said- you can't quite understand unless you have the condition yourself. Other people's advice and help only goes so far- there will always be things and emotions that they can't quite understand.

Please consider choosing me for this; I know I have the ability to change people's lives and outlook on this all- simply by blogs etc.

Stay sweet all.

Much love,

Gabby xo

Comment by keritiger on March 1, 2012 at 6:12pm: I would be happy to try to volunteer some time to helping the cause. I currently have seizures myself and they can't seem to quite figure out what's "causing the storm" in my head. So if I can help some other people out, great! I was volunteering at the hospital and going to college but had to stop because of the toll my seizures were taking on me. It's also hard being a mom too! Just let me know where I can help out.

Comment by Tonia Addison on January 28, 2012 at 11:34pm: My name is Tonia. I have an 18 year old son who was diagnosed with Epilepsy at the age of 6. We have been through nearly every medication possible. My son has a VNS and has been through many hours of vigourous tests and such due to the hard time we've had in controlling his seizures.

I LOVE doing research about various things. I enjoy being able to talk with others who deal with seizures. I would love to see or actually start an epilepsy "club" in my small town but have no idea where I would even start.

I am my son's advocate in his school meetings and his job. I know from personal experience the wear and tear this horrid illness can have on a parent and I know the heartfelt hurt it brings when a parent has to sit back and see their child have a seizure and know there's really nothing we can do to help.

My desire is to be an advocate for any person and to help as many people as I can. I adore my son for his strength and his stubbornness which helps him avoid Epilepsy getting the best of him.

I'm always here for an encouraging word or a listening ear.

Tonia - Kentucky

Comment by EF Admin on January 25, 2012 at 10:13am: Hey Virtual Volunteers! You can help by becoming a fan of us on Facebook (facebook.com/epilepsyfoundationofamerica) or following us on Twitter (twitter.com/epilepsyfdn) AND be sure to ask your friends to do the same!

Another great way to help is to participate in the National Walk for Epilepsy! The Walk will be in Washington, DC but you can participate virtually by registering as a virtual walker. You can have a Walk team and raise money just like people who are coming to the event, but you can get your tshirt mailed to you and walk where ever you are instead of making a long trip all the way out to DC! Help us raise funds for services, programs, research, education and awareness for epilepsy! We NEED your help! www.walkforepilepsy.org

Comment by thomasina on December 5, 2011 at 6:16pm: hope everyone here is doing well

Comment by Kari Lynne Brauer on May 17, 2011 at 10:50am: Good Morning Everyone,

I hope you all are doing well and having a great day!

Comment by Jessica Wallace on March 22, 2011 at 11:31pm: This Saturday, the 26th is Purple Day- everyone remember to wear purple and encourage your friends and family to do the same!

Comment by Richard Alvord on March 8, 2011 at 9:00pm: Hi,

What I am trying to do is help by asking people to sign a petition on Change.org that helps improve epilepsy treatment. The link is below. You will have to join, possibly search for "epilepsy" and sign. No cost.

http://www.change.org/petitions/support-use-of-modern-technology-to...

Comment by Shanna L Webster on February 26, 2011 at 8:40pm: Violet, you need to get out of that house. First, if you have epilepsy and your family kicked you out, yes, it hurts because they are your family and are expected to love you unconditionally but when others do not act as you expect, then you have no other option than to find people that will even though they are not your family. Just because people are your family does not give them the right to treat you without respect. So, yes, leave and go as far away as possible and no matter what happens in your life please remember that you deserve to be around people who are going to respect and love you for YOU! And, do not go back to this "family" just because you get lonely. Find people who love YOU because you obviously know how your family feels about you. Research on the Internet the state laws for driving when you have epilepsy. Most states are the same but you can find the answer. I would google "state laws for driving when you have epilepsy." Stay strong and love yourself!