Epilepsy Foundation

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Support for CPs

For all people who have CPs (complex-partiials)

Members: 74
Latest Activity: on Wednesday

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Multiple Types of Seizures

Started by FFT. Last reply by Don Miller Sep 18, 2013. 6 Replies

I haven't been on lately, and this may have already been addressed, and if so I apologize. It's been confirmed with five EEG's I have petit mal, simple partial, complex partial, photosensitive, and…Continue

WHAT ARE YOUR TRIGGERS?

Started by Cassidy Waggoner. Last reply by Jessica Robinson Jul 9, 2013. 7 Replies

Do you know? Aside from lack of sleep, stress or illness. Im not photosensitive but do get thrown into a seizure while watching T.V. Mostly the fake smiles and faces that bad actors have lol. So i…Continue

EMU

Started by Nancy Young. Last reply by Don Miller May 26, 2013. 1 Reply

HI all,Back in 04 I was put in an EMU for the first time in my life.  I was scared half to death.They did not treat me very well.  I had 2  szs in there that they wrote down as questiaonable. One of…Continue

IF YOU HAD EVERYTHING CONTROLLED, WHERE WOULD YOU LIVE?

Started by Don Miller. Last reply by Nancy Young Apr 8, 2013. 24 Replies

I'm drawn to the beauty and raw savagery of Lake Superior and want to live on it's shoreline. Colder, yes, roads down for weeks at a time, yes, but once you've kayaked on the surface of the Icy Lady…Continue

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Comment by Don Miller on Wednesday

Banzel: 3200 mg. / day

Lamictal: 500 mg. / day

Keppra: 3000 mg. / day

The last two are generic and according to the numbers game, Banzel will go generic (yay) in 2015. Still on a whopping dose of meds but seizures are still uncontrolled. Anybody out there listen to the Dresser interview? Here's the link again: http://michaeldressershow.com/wp-content/uploads/2014/12/Don-Miller...

Comment by Don Miller on Wednesday
Comment by Don Miller on Wednesday

Epilepsy Memoir: My 40-Year Detour FB page

www.facebook.com/epilepsymemoir

Comment by Don Miller on December 4, 2014 at 11:12am

I will also be doing an E interview on Health Professionals Radio sometime soon, will be putting together a video for the Michael Dresser interview (16:39 minutes) and putting it on my Youtube channel, that will be three free interviews I've gotten off an ad in the RTIR (Radio Television Interview Report) by Bradley Communications, Corporation, hopefully there will be more yet, everyone have a Merry holiday season, shower, shave next

Comment by Don Miller on December 4, 2014 at 11:06am

I did an interview about the latest incarnation of the memoir--Epilepsy Memoir: My 40-Year Detour on the Michael Dresser Show, here's the link: Don Miller Michael Dresser Interview I'm happy with it, although he kind of threw me off thinking there was a connection between E and Parkinson's Disease

Comment by Don Miller on July 24, 2014 at 4:32pm

Just for your info: Banzel 400 mg tablets are $9.95/ea.

Comment by Don Miller on July 24, 2014 at 4:31pm

Onfi didn't work out, am on Banzel 3200 mg/day, Keppra 3000 mg/day, Lamictal 400 mg/day, Risperdal for a nervous condition after being harassed at work, in part it is called stress, doxycycline for an eye infection, Nexium for acid reflux, and a multi-vitamin for men over 50. There is a very high possibility that Ellen DeGeneres bought a Kindle version of Detour: A 40-Year Epilepsy Memoir by @donmillerwrites (my Twitter handle), more on that later

Comment by Don Miller on April 29, 2014 at 8:26pm

Hi, everybody

I have a neurologist appointment on Cinco de Mayo, the 5th of May, with Doc P who will be getting an autographed copy of my memoir-- Detour: A 40-Year Epilepsy Memoir with its new cover design, I ordered 2 copies, just to see what they'd look like and they arrived in time for the neurologist appointment, been staying very active on Twitter, less so on FB, as I learned about an unsavory tactic they are using and it kind of turned me off

Comment by Don Miller on April 29, 2014 at 8:18pm

Take care Gina

Comment by Don Miller on April 10, 2014 at 7:29pm

Been doing pretty good, had a seizure as I wrote this. This is the second time I'm composing this. 'Electric harassment,' nope, honestly never heard of it, on the job harassment, that I've experienced, or been a victim of. Electric interrogation, that is torture using electricity

 

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