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Support for CPs

For all people who have CPs (complex-partiials)

Members: 72
Latest Activity: Aug 8

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Multiple Types of Seizures

Started by FFT. Last reply by Don Miller Sep 18, 2013. 6 Replies

I haven't been on lately, and this may have already been addressed, and if so I apologize. It's been confirmed with five EEG's I have petit mal, simple partial, complex partial, photosensitive, and…Continue

WHAT ARE YOUR TRIGGERS?

Started by Cassidy Waggoner. Last reply by Jessica Robinson Jul 9, 2013. 7 Replies

Do you know? Aside from lack of sleep, stress or illness. Im not photosensitive but do get thrown into a seizure while watching T.V. Mostly the fake smiles and faces that bad actors have lol. So i…Continue

EMU

Started by Nancy Young. Last reply by Don Miller May 26, 2013. 1 Reply

HI all,Back in 04 I was put in an EMU for the first time in my life.  I was scared half to death.They did not treat me very well.  I had 2  szs in there that they wrote down as questiaonable. One of…Continue

IF YOU HAD EVERYTHING CONTROLLED, WHERE WOULD YOU LIVE?

Started by Don Miller. Last reply by Nancy Young Apr 8, 2013. 24 Replies

I'm drawn to the beauty and raw savagery of Lake Superior and want to live on it's shoreline. Colder, yes, roads down for weeks at a time, yes, but once you've kayaked on the surface of the Icy Lady…Continue

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Comment by Brian Cassady on August 8, 2015 at 8:38pm

My name is Brian and I'm 23 years old,  I have complex partial epilepsy.  I would like to talk to people around my age who have epilepsy

Comment by Don Miller on June 23, 2015 at 10:55pm

DEATH IS NOT THE END: UNHOLY RESURRECTIONS VOL. 1

by Don S Miller

Accolades only so far from a woman who says it is a definite page-turner and compelling read. 'I'm digesting it in bite-sized chunks so I don't miss anything, the multiple plot lines were confusing at first but it definitely keeps you interested.' M.L.J.

Lucas Jordan was your atypical, average, 18-year-old virgin, and was one of the straight members of the Gay Straight Alliance at Atherton-Edgerton-Combined-High-School, and unwilling President of the group.

In the Hiram Hickerson Hillside Cemetery in which two columns of natural electric flame originating in the Aurora Borealis struck his upraised clenched fists; his body tumbled ass over eyeballs and slammed into the frozen earth over Hiram Hickerson's grave; he convulsed for hours, a life threatening condition known as status epilepticus. During the millisecond-long lightning strike Lucas suffered brain damage and acquired epilepsy.

He pulled himself up using the Hiram Hickerson family monument to aid his balance, staggered forward toward the Jordan Family Crypt, dropped to one knee and thought that a cemetery is a good place to die; his heart stopped, he died, and his body began falling forward.

Black vapors had pooled at the base of the crypt, then a black woman shape had formed - antimatter woman; she slammed into Lucas three inches below his belly button in the tanzen - doorway to the hara - repository for chi, warehouse for man's ka or soul.

His eyelids snapped open, his light topaz eyes had changed to dark green, dark as the Atlantic Ocean before it plummets to crushing depths and inky blackness no light could penetrate. He'd died that night and resurrected, but death never had much hold over him and never lasted long after he experienced an unholy physical resurrection many times but there was payment to be made each time, not 30 pieces of silver that led to another resurrection, but he paid with the corruption of his flesh—micro-cellular mutation, cancer. Lucas Jordan, was cursed with sixth sensory abilities beyond the spectrum of the five accepted senses.

The symbolic representation of chi or liquid energy is the yin-yang, composed of two antagonistic elements: yin-negative-feminine-cold is antimatter; yang-positive-masculine-hot is matter. Chi's elements: yin and yang live in harmonious accord with each other, they were antagonistic but could not exist without each other. Antimatter produces high energy Gamma radiation; radiation causes cancer. Antimatter destroys or kills matter, what would happen if antimatter had come in contact with a dead body? Curious? Read Death is Not the End.

Comment by Don Miller on June 2, 2015 at 5:36pm

I finished my novel and uploaded it third week in May. I also uploaded a revised memoir, both in large-print, regular print, and Kindle format, on Amazon, I hope I'm excused an ad for the novel

DEATH IS NOT THE END: UNHOLY RESURRECTIONS 1

Want a compelling page-turner, a book you won't want to put down. In the style reminiscent of a young Stephen E. King, Don Miller concocts a modern day Doctor Jekyll and Mister Hyde, psychic saga, encompassing two generations from 1960 to 2029 that keeps giving entertainment value. Robert Louis Stevenson's notorious masterwork best describes the peculiar relationship between Lucas Jordan, who becomes author Lucas Chandler and the malevolent entity of his dead Uncle Lucas Chandler-Jordan, born a bastard inbred child of a Gypsy Princess: Marie Starr and her twin brother, Gypsy Prince: Orlando Starr, damned by his Grandfather, Ernesto Starr, Gypsy King, with psychic power. Over time his negative overtakes his positive karma and he becomes a mutant monster composed of antimatter and resident within Lucas Jordan's hara or psychic battery. There is an 80% survival rate from lightning strike, Lucas is struck by lightning originating in the Aurora Borealis and is one of the 20% that die, after contact with his antimatter Uncle he experiences hellish resurrection.

From that night on Death never had much hold on him, he acquired psychic power at the cost of hellish pain. Each time he pas the price,, not 30 shekels of silver that led to a holy resurrection but hellish pain, lifelong epilepsy, and micro-cellular mutation--cancer. Death is Not the End is tightly written with interwoven multiple plot-lines with a bittersweet ending that makes you want to cheer and cry.

Comment by Don Miller on April 7, 2015 at 9:50pm

Novel will be available in regular and large print in May. Memoir: Detour: A 40-Year Epilepsy Memoir will be available in large and regular print in May. Novel title is Death is Not the End. Forgot to say she's tapering me off of Keppra

Comment by Don Miller on April 7, 2015 at 9:45pm

Hey there everyone, neuro appointment was today, Doc P was not happy with the number of seizures I'd recorded and the fact that I went to the ER beginning of Feb. She's putting me on a fairly new one called Fycompa and put me on a list for an RNS. She wants my seizures under control. It's cool the way an RNS works but I can't explain it here. www.neuropace.com Told her of my weight loss plans and she said okay, so I guess I'm on for losing it. Weighed 238 # so it will be a 58 # loss to be 180 # in October or November. Next neurologist appointment will be July 28, being that I am going on a new med

Comment by Don Miller on March 29, 2015 at 11:12am

neurologist appointment in October or November, 2015, and you can hold me to it

Comment by Don Miller on March 29, 2015 at 11:11am

Epilepsy is a 4-Letter Word will also be the title of my talks to groups about E, audio Course (collection of podasts about, it will be a lot of education about E and will require multiple CDs), there is my YT channel, written course, I plan on being down to 180 # by my neurologist appointment: so I can do a fitness course for people 50 and above and those below 50 (video, audio, physical)

Comment by Don Miller on March 29, 2015 at 11:04am

I plan on trying for an agent and big publisher with my next epilepsy book, titled (working) Epilepsy is a 4-Letter Word, big publishers want you to have a platform, a large following, so Don thought how can I do that, on my family and friends FB page I have 100 friends, they can spread the word, that's a start; on my FB author page I have over 80 author friends, authors like networking so there is an opportunity for a lot of followers there (advertising it), another good start; I have 1100 Twitter followers, another good start; I was thinking, what else could Don do? I'm going to start doing a podcast titled: Epilepsy is a 4-Letter Word, interviews with epilepsy professionals: neurologists, epileptologists, neurosurgeons, neuro-psychiatrists, nurses; law enforcement, EMTs, pharmacists about side effects and medicinal marijuana (already set that one up), survivors of neurosurgery, VNS people (I'm one of them), observations on living with E for 40, Neal Howard of Health Professional Radio. One neurologist I had was Ilo Leppik, MD, former and possibly current president of the Epilepsy Federation of Minnesota, lawyers from the EF about disability based job harassment, every chapter in my memoir (currently I'm doing a revision of it) can be a separate podcast, that way I can advertise the memoir without blatantly mentioning its name, "Oh, by the way that information and more can be found in Detour: A 40-Year Epilepsy Memoir. There is a potential for a lot of followers or subscribers that way. It would be cool to say I have 57,000 followers of my podcast, same title as the book to the agent. It is a collection of true epilepsy tales and poetry by an E-person, or E-people if I can get people on this site to sign a release form and donate 1 poem. And I know the odds of landing an agent and major publishing house are astronomically against it but I'm going to try anyway, any of you write poetry you might like donating with no monetary reward for you. Virtual book tours, I am setting up an author website on Apr. 1 in the morning, going to check into how much it costs to buy a FB ad. I'm sure I'll be able to advertise at the library, BP station, grocery store, church, bank, will see how much an ad in the Burnett County Sentinel and Tri-County Leader, interviews on local radio shows, Internet Radio Shows, have book in the EF bookstore, Epilepsy Foundation has changed its website to: new epilepsy foundation site

Comment by Don Miller on March 29, 2015 at 10:30am

I see we lost a couple members; my novel will be complete today, then do a cover on Photoshop, release on Amazon 4-05-15 (Easter), title is Death is Not the End: Unholy Resurrections 1, I'm doing the final read through and correction now, cover will be posted here when I've completed it

Comment by Don Miller on December 16, 2014 at 7:10pm

Banzel: 3200 mg. / day

Lamictal: 500 mg. / day

Keppra: 3000 mg. / day

The last two are generic and according to the numbers game, Banzel will go generic (yay) in 2015. Still on a whopping dose of meds but seizures are still uncontrolled. Anybody out there listen to the Dresser interview? Here's the link again: http://michaeldressershow.com/wp-content/uploads/2014/12/Don-Miller...

 

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