Support for CPs

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Comment by Don Miller yesterday

Go in the hospital tomorrow morning people, just approved our latest member and we seem to have lost two more people. Anyway, I'll be offline for about a week. Country Cafe for lunch, and no I don't cook much for myself. DSM

Comment by Todd Matthew Kozuszek on June 7, 2013 at 2:05pm

Heh Don,

I'm hoping my doctors jack the VNS charge up on me soon because

I can almost not feel the charge at all now. I like feeling the high

charge indeed and so does my brain and maybe that's why the 

seizures back off. Let's enjoy the rest week and the weekend to

be. Take it easy!

Comment by Don Miller on June 4, 2013 at 11:45pm

I will admit that big pill box is a good idea as I feel dizzier than Daffy Duck, and that is weird because I'm a Donald, but that won't last long. In wall AC is on again, 76 in apartment. Going to close my eyes until the dizziness passes, later

Comment by Don Miller on June 4, 2013 at 4:32pm

Hi people, feel a lot better today, the 19th, I go in the hospital, had my VNS changed from .75 to 1 but was coughing up a storm during the appt. so they changed it back. The magnet stim really bites when I use it, but it works. Only had used the magnet 46 times since 7-11-12, 3 times were accidental, 3 times in a row like a machine gun, had a headache that time, once to test it when I got back home from the hospital, 7-11, once during Michelle Bailey's YT video, she's on the site Todd, sent her a friend request, maybe she said OK, she has GTCs about every 3 to 4 weeks. Sounds like that women's menses estrogen hormone thing. That can cause seizures for you ladies. It will be good to be on less meds, bought a week size pill box, $19.95, I have a freaking confusing schedule with my AEDs, counting out just 4 days was a pain, oh well. If you get a sore throat with the VNS, Fisherman's Friend, throat lozenges take care of it right away, I buy the generic or store brand, "Soothe" Another big glass of milk, maybe SubWay tonight, if my chauffeur, Aunt Betty, comes into town for Book Club, they're on a sea-faring kick, and I'm sea-sick about it. Lets have an Agatha Christie mystery for a break, I'd even settle for a Miss Marple not a Poirot. I'll lead the discussion, I got them to read 3 Stephen King books that almost no one liked, I say read, but scan the pages of one chapter would be more appropo

Comment by Todd Matthew Kozuszek on June 4, 2013 at 3:46pm

When I visit my doctors down at the University Cincinnati I'm

going to have my VNS charge increased so I can feel the charge!

I miss feeling the charge as much as I did when it was increased

last year and I'll be happy when I can feel it again! A females 

view of the VNS feelings is always interesting and that's something

I want to read about! I promise. let's all enjoy June and the 

warmth as well!

Comment by Don Miller on June 3, 2013 at 6:59pm

I'll be back on soon, will change my page decor again

Comment by Don Miller on June 3, 2013 at 6:57pm

I can't be that old, 'it's like that dude could be my grandpa, yikes!!!' HS classmates, who belonged to a big Church organization got married when they were 15 and 16, could have been grandparents when they were 34. I think a big glass of milk sounds good, later, people

Comment by Don Miller on June 3, 2013 at 6:52pm

Magnet/stimulation (shocks) on my new VNS, only 46, I thought it was 80, excluding accidental shocks, Todd probably knows about them, testing the zap initially, testing it last week when I went to Michelle Bailey's YT page, she's doing a video/journal of her new VNS, interesting looking at it from a female's perspective. So, people, 1 atonic (Doc was interested to hear that one), about 39 CPs, 68 deg F now but it was really cooking earlier, am on a fitness regimen, eating and walking now, Think I'll start a discussion about what it is like getting your AEDs adjusted in a neuro unit when I'm released, right should hurts bad, bone bruise maybe? Think that's enough of my s'ol s'ol. Going to play The Stand Uncut on my mp3 player, about 80 hours so far Cassidy, electronic Sudoku that has sound effects

Comment by Don Miller on June 3, 2013 at 6:17pm

I have an AARP card mostly to say, hey, I have an AARP card, you qualify at age 50

Comment by Don Miller on June 3, 2013 at 6:14pm

Had my neuro appt. today and it wasn't a good one, the overall gist is they are going to hospitalize me for a few days, maybe five, take me off of phenytoin (that I've been on for 39 + years and Doc Penovich says according to levels, isn't doing anything for me anyway), they've tried taking me off it before it when I wasn't hospitalized, bad news. Saw this coming about 10 years ago, anyway 2 szr/day is too much and so I'll be in this week or next, or the week after (don't know why docs think they can get their patients in right away). So freaking dizzy with the Vimpat... we won't go into that, she looked good, Pilates lean as usual. Have to give the apartment a twice over tomorrow

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