Epilepsy Foundation

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Speak Up Oregon!

This is the home page for epilepsy advocates in Oregon! Join us in our effort to find a cure, stop discrimination and improve access to care and treatment.

Members: 24
Latest Activity: Mar 19

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Comment by Don E. Rosenblam on February 24, 2014 at 1:40am

I am hoping to be able to start a support group in the Bend / Redmond are in Central Oregon. I went to a event that was suppose to be for that but nobody was at the event. Even the facilitator did not show up. I am trying not to get discouraged, but am not sure what my next step should be.

Comment by Karl W. Greulich on August 3, 2011 at 12:24pm

I certainly can't say anything bad about others as I don't often send messages, however I would like to see more communication. As you can see in my previous messages, I work for the government. Yes, I have been a federal employee almost 35 years but I will be retiring the end of this month. My job is going away and to keep working I have no idea where I would have to move or what the next job would be. Last time I had to move it was with only 2 weeks notice and  coming here, for a while I was the Oracle Data Base Administrator. Oracle is a computor language I had never used, and I had never even had a computer class. Since having my first grand mal seizure on the job I have been bounced between 11 different jobs on 3 National Forests. Just in the last 3 years I have had 5 supervisors, the work I was really to be doing was discontinued and I have just bounced around helping whoever wanted assistance on a project.

 

I plan on trying to find at least a part time job if not more.

Comment by Craig on March 9, 2011 at 8:32pm

Hi,

I'm new, but not to epilepsy.  What I am trying to do is help by asking people to sign a petition on Change.org that helps improve epilepsy treatment.  The link is below.  You will have to join, possibly search for "epilepsy" and sign.  No cost.

http://www.change.org/petitions/support-use-of-modern-technology-to...

 

Comment by Karl W. Greulich on March 4, 2011 at 1:21pm

I have lived about 20 years of my life in Oregon. I am a Forester with the US Forest Service and my time here has been working on the Willamette National Forest and the Winema National Forest. Yes, most of my career was out in the woods, but now it is mostly fighting with computers.

 

I have not been involved in politics, but have never hidden the siezures and tried to educate those around me about them and what to do if one starts. One example is a young employee moved to the United States when her husband, a military officer for the US returned from service in Europe. She was not fully understanding English when she had her first Grand mal siezure. She was told that it was epilepsy and came to me to ask questions. Well, my father came from Germany with his family as a teenager and I knew a good deal of German. I was able to explain to her what siezures were and how they started. I also gave her reading material from the National Epilepsy Foundation that gave her a better understanding than the doctor had.

 

In spite of even having siezures I have worked on fire assignments in overhead positions fom Alaska to Florida. They don't want me on the fire line any more, but last time I found a fire I informed the dispatch center, but before any other help got there I had a line around the fire and it was only burning up inside one tree.

Comment by Stephanie Hughes on June 15, 2009 at 10:52pm
had my first seizure last Monday, June 8th. I was at work (I have a desk job) and I was training someone. I had been at work about two hours when I began to feel dizzy...the next thing I knew I was "coming to" in an ambulance. I had a grand mal seizure and later learned it's called that because it's a seizure that lasted for more than forty seconds.

I am on medical leave and won't return to work until 6/23/09. I have have had mini-episodes where I get dizzy and lose my speech pattern. I'm 39 years old and have seen three doctors in the last few days, one of which is a neurologist. After having and MRI done...I was told I am perfectly normal and found out seizures affect one in ten people. I am on Dilantin for thirty days and was told I can't drive for three months. My MRI and all other tests have came back normal...I have an EEG this Thursday and some blood work as well.

Thanks for reading... Stephanie
Comment by Don E. Rosenblam on May 8, 2009 at 2:47pm
Thanks for the info Todd
Don
Comment by Don E. Rosenblam on May 7, 2009 at 7:23pm
I am new to the forum but look forward to meeting everybody
 

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