Epilepsy Foundation


Speak Up Montana!

This is the home page for epilepsy advocates in Montana! Join us in our effort to find a cure, stop discrimination and improve access to care and treatment.

Members: 10
Latest Activity: Sep 25

Discussion Forum


Started by Erica Barker. Last reply by Emilie BOyles Jun 1, 2014. 2 Replies

Comment Wall


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Comment by Jenny Hayward on September 25, 2015 at 5:48pm

You are very right Tammi! People are afraid of people with epilepsy because they misunderstand it and are not educated. I was always told by family and friends to NOT tell people I have Epilepsy and to not tell employers I have it. Their reasons.. 1) they thought it was no ones business to know what was 'wrong' with me. 2) they felt ashamed of me. Well you know what? I want people to know I have JME. I want people to know that I have it so when something happens they know what to do and also to be educated. People are always afraid of things they know nothing about or dont understand. People thought they could catch it from me like it was a cold or something. I want people to know it is something not to be fear.

Comment by Tammi Zavardino on September 25, 2015 at 12:27pm

Epilepsy is so misunderstood and we are not freaks or something to be afraid of and that is what I go around doing in my state letting others know this and help train others to understand what to do if you see someone having a seizure. But we all have to stand together to get the word out and be brave enough to speak up to others and for a long time I didn't even want others to know I had this but one day I knew that was wrong and started doing things to help others better understand and it has worked but it takes a lot of work. You don't have to be ashamed of having this problem and let others know it!

Comment by Erica Barker on September 20, 2015 at 10:30pm

Try and get people from other states too. The more the merrier. Are you going to towns of 60,000+? I'd live in a bigger town if I could. I think it'd be cool to be interviewed/in something like that.

Comment by Jenny Hayward on September 1, 2015 at 5:26pm

Good luck Sam! You will meet a lot of us around here! =) 

Comment by Sam Inglese on September 1, 2015 at 11:30am

Hello. I am searching for people with epilepsy for my next documentary film; Greeting Epilepsy. Erica, your story of seizures at work could benefit this piece. I will introduce the country to an assortment of us and conditions and lifestyles around those without epilepsy. I do not want a tragedy. I want to reveal those of us outside the home. I have had seizures since I was 19. What is your most memorable seizure in public?  Sam ambimind65@yahoo.com

Comment by Erica Barker on July 21, 2015 at 10:53pm

We ask questions, give advice, comment. We talk about our hardships.

Comment by Jenny Hayward on July 21, 2015 at 10:41pm

Oh okay.. =) So just curious, what do you talk about in here. Just wanting to get a feeling! 

Comment by Erica Barker on July 21, 2015 at 8:39pm

I am I just don't have anything to comment on because there's been no posts

Comment by Jenny Hayward on July 20, 2015 at 1:35pm

I noticed the last comments were in 2014.. Anyone still active in this group?? =) haha

Comment by Erica Barker on August 20, 2014 at 6:57pm

Right in the grocery store I have a GM. But it's been 6-9 weeks. That's great!!!!  My mom said that the store employee(s) had to help carry me out to the car. It seemed bad because when I was talking to my dad I couldn't talk and when I was I sounded like a drunk.


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