Epilepsy Foundation

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Speak Up Missouri!

This is the home page for epilepsy advocates in Missouri! Join us in our effort to find a cure, stop discrimination and improve access to care and treatment.

Members: 53
Latest Activity: Jun 25

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Lets start a support group, anyone in?

Started by jennifer key. Last reply by Theresa Davidson Jun 19, 2013. 9 Replies

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Started by stacy prentice. Last reply by jennifer key Dec 18, 2012. 13 Replies

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Started by stacy prentice. Last reply by Kerri Thogerson Sep 2, 2009. 2 Replies

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Comment by Connie Baker on February 27, 2014 at 7:44am

Good Morning Carlton,

My son is 28 yrs old.  Has had seizures (grand mal) for 5 yrs now, takes Topimate (sp?), generic for Topamax.  He has seizures anywhere from 1 or 2 a month, a few times 2 in 1 day to 4 mths apart.  He has never made it past 6 mths.  So therefore, he can't drive, loss his job when this first started happening, has mood swings, and I would say depression.

Tried disability several times, even had a lawyer once and went to court and still denied.  For his depression I got him to go to see a counselor a couple of times and he went to see a psychologist, who gave him Prozac to take, but it gave him bad headaches and quit taking and don't want to go back to either one.

His fiance and their 7 yr old daughter moved out last December, because she was tired of his mood swings and his hatefulness towards her.  He lives in the country, there a few neighbors close by, but they stay to them selves.  His brother is staying with him now. I live 30 miles away from him.

My question when I first got on here, was how did others who have epilepsy go on with their lives, is there help out there that I don't know about, etc. What services are available?   I am tired, he won't try to do things on his own.  He doesn't have internet access and now doesn't have a cell phone because he got mad when it didn't get service on time and broke it.

He has finally gotten medicaid and is going to see a neuro 3/26.  The votec is Vocational Rehab.  Told they help train you in a job and help you find one.  Meet with them 3/6.  Just found out about another organization about a week ago and called on it, Coalition for Independent Living, they help with living arrangements, jobs, have an appt with them 3/5. As far as the EF, when I called them to find help all they did was give me other places to call to try to get help.

Hope I got everything.  Got to get ready for work. Thank You.

Comment by Juanita Stephens on February 25, 2014 at 12:49pm

Carlton, I believe Votec is Vocational Rehab, I could be wrong not sure. Seems like her son is unable to help himself and needs assistance , Connie is not sure how to help or if she even should. 

Comment by Juanita Stephens on February 24, 2014 at 1:00pm

Connie, sounds like you have done just what you need to do. Sometimes those closest to us are not the ones to accept help from. I do hope they can help him. 

Comment by Connie Baker on February 24, 2014 at 11:54am

Sorry guys...I thought Carltons question was for you Juanita?  He has an appt with the Votec Rehab on 3/6.  Right now, I am having to do most of the calling, as he got mad at his phone and broke it.  My son lives about 30 miles away from me.  

I also called an organization Fri., called the Coalation for Independent Living or something like that.  Anyways, really got my hopes up with them.  A case worker is to get ahold of me this week to set up a time. From my understanding they help with living arrangements, jobs, with filing for disability, etc.  I think that is what he needs, someone besides me to help him through this.  We butt heads alot, don't know if it because I'm mom....and us moms, I guess, think we know everything!

Did I answer your questions?  Hope so.  Is there something else I should/need to do?  

Comment by Juanita Stephens on February 19, 2014 at 9:04pm

Connie, as Carlton asked what is holding you back ? Did you get the number is he unable to call ?

Comment by Connie Baker on February 18, 2014 at 11:05pm

Carlton - Hello :)

Juanita - Hello to you too! Called the Votec today, but didn't get to far as I needed to have his S.S. # to get him in the system, hope to get this done tomorrow.  Thank you for everything! God Bless and Take Care

Comment by Carlton Zeigler on February 16, 2014 at 11:05pm

Juanita

Thank you for the welcome.

Comment by Juanita Stephens on February 16, 2014 at 10:19pm

Hello Carlton, I hope your doing well. I have been talking to Connie Baker in regards to her son. You have been a great support to many of us on the groups  and that is why I asked you to come on the Missouri site. 

I am doing good right now and everything seems to be under control right now. 

Thank you Carlton we will talk later.

Juanita

Comment by Carlton Zeigler on February 16, 2014 at 7:52pm

Hello

Comment by Juanita Stephens on February 14, 2014 at 7:40am

Good Morning Connie, I hope you find some help for him with Votec, and yes Living with Epilepsy does have some great people on that site. 

God Bless and Happy Valentines Day enjoy the weekend.

Juanita

 

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