Speak Up Missouri!

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This is the home page for epilepsy advocates in Missouri! Join us in our effort to find a cure, stop discrimination and improve access to care and treatment.

Members: 48
Latest Activity: Feb 15

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Discussion Forum

Lets start a support group, anyone in?

Started by jennifer key. Last reply by James Feb 15. 8 Replies 0 Likes

support

Started by stacy prentice. Last reply by jennifer key Dec 18, 2012. 13 Replies 0 Likes

Untitled

Started by stacy prentice. Last reply by Kerri Thogerson Sep 2, 2009. 2 Replies 0 Likes

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Comment by James on October 15, 2012 at 2:09pm: Hi everyone! My name is James and I work with the Epilepsy Foundation of Missouri and Kansas. We have offices in St. Louis and Kansas City. Please visit our website to view our current contact information: www.efmk.org Give us a call if there is anything we may be able to assist you with.

Comment by ejl1558 on October 13, 2012 at 9:00am: I don't but the people at the foundation may have it.

Comment by Nermin Sumic on October 12, 2012 at 3:11pm: Hello ! Do You Have Any Information And Address Or Email About Good Lawyer In St. Louis For People With Epilepsy !!? Thank You !!!

Comment by ejl1558 on October 12, 2012 at 2:11pm: There's an EF in St. Louis. I don't know for sure where they are now. They've moved twice in the last couple years.

Comment by Juanita Stephens on October 12, 2012 at 12:17pm: Thank you I will do that when my grandkids are finished with using my car. I have been so busy with helping the kids and I am so tired in the evening I don't think I could go to a meeting if I had to.

Comment by Heather on October 11, 2012 at 8:02pm: I am not sure where you are from but I am in he KC area and I had to send for info from the foundation on how to get one started. I just received the paperwork last week. They are very helpful if you call in and request some info they will send it and answer any questions you may have.

Comment by Juanita Stephens on October 11, 2012 at 4:58pm: Hi Diane, Where in Mo do you live? I don't know of any support groups at all in Mo.

Nita

Comment by Diane Butler on October 11, 2012 at 4:36pm: Hi! I live in a very rural area and there is not any kind of support or awareness groups or activities here. I would really like to start a support group but have no idea how. Any suggestions? Thanks!

Comment by Donna M Painter on July 8, 2012 at 12:45am: Laurel, I am looking at the Chasa group and it seems to be for children not adults. I did find out that due to this stroke is the reason for my seizures but it would take some work if at all to get those records. they are in LA. I will continue to look at this site and ty for the help

Comment by Donna M Painter on July 8, 2012 at 12:38am: Nita ty, i will look into this. I was being seen by Osario but I got a letter he he no longer practicing. So i will need to get another dr. until I get my stipend from school I don't have money. I applied a long time ago but they wanted my records from childhood and that is in the military storage and i have gotten nowhere getting them.

Even though I will have a master's I will net be able to hold a job if I can't get them under control.
then my driving (not) is a factor for my husband works grave and is off at 8am, school starts before that time. I have never been able to drive. So I thought of tutoring. I feel as if its all a catch 22.