Speak Up Massachusetts!

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This is the home page for epilepsy advocates in Massachusetts! Join us in our effort to find a cure, stop discrimination and improve access to care and treatment.

Members: 50
Latest Activity: Apr 16

9 members like this

Discussion Forum

Awesome new non-profit in NE!!

Started by Jake Quigley. Last reply by Carlton Zeigler May 21, 2012. 1 Reply 0 Likes

research help requested

Started by mattychem. Last reply by Ernesto Alonso Molina Inigo Dec 16, 2009. 2 Replies 0 Likes

Educational childrens book on epilepsy

Started by Lisa Loiodice May 28, 2009. 0 Replies 0 Likes

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Comment by Carlton Zeigler on March 27, 2013 at 12:20pm: Christopher

Welcome to this group. t is a quiet group at the momment. There are some regulars.

Comment by Christopher Uminski on March 27, 2013 at 11:41am: I just joined! I live in north central mass. I found out I was epileptic two years ago when I had a seizure driving.

Comment by Carlton Zeigler on March 22, 2013 at 10:06am: I understood you completely. Are you aware that your local chapter (of the foundation) has joined with "The Epilepsy Foundation of New England". The "EFNE" is a part of the national foundation, who sponsors this site.

Comment by Rena99 on March 22, 2013 at 9:53am: I should clarify. lived in RI for all my life. Just got to this blog

Comment by Carlton Zeigler on March 21, 2013 at 11:09pm: RI is welcome

Comment by Rena99 on March 21, 2013 at 5:20pm: hi just got here live in ri

Comment by Carlton Zeigler on November 22, 2012 at 11:32am: I still monitor the postings here.

Comment by thomas wendell on November 21, 2012 at 11:58am: Is anyone active in this group? I been on the site and cannot find post better than 2 months old

Comment by Carlton Zeigler on August 21, 2012 at 10:24am: Thomas

Are you active with our state chapter of the foundation? Control has always alluded me. i have done a lot of work with children, even children with epilepsy. I am very active in the foundation.

Comment by Thomas Ardita on August 21, 2012 at 5:23am: Good Morning

Happy to have joined this group.My granddaughter has Epilepsy. She is under good control on meds, but as you all know always wathcing cuz she is growing so fast and the meds are weight based.

It has also affected her ability to learn so she attends a special needs school, doing so very well.

Hope to converse with someone in this group and others.

God Bless all