Epilepsy Foundation

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Speak Up Florida!

This is the home page for epilepsy advocates in Florida! Join us in our effort to find a cure, stop discrimination and improve access to care and treatment.

Members: 82
Latest Activity: Jun 1

Discussion Forum

Medication

Started by beth gittess. Last reply by Heather Apr 22, 2011. 10 Replies

Temporal lobe seizure at church

Started by Deborah Holt. Last reply by Deborah Holt Sep 1, 2009. 8 Replies

Epileptic Friendly Environment

Started by wendy. Last reply by wendy May 1, 2009. 12 Replies

Comment Wall

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Comment by Heather on January 14, 2013 at 11:08am
Vero Beach - Feb. 9th @ Riverside Park   Aventura - March 3rd @ Aventura Mall   Stuart - March 3rd @ Memorial Park   Miami - March 9th @ Tropical Park   Gainesville - March 9th @ Albert "Ray" Massey WSide Park   New Smyrna Bch. - March 9th @ Mar...y MacLeod Bethune Park   Hollywood - March 10th @ Hollywood Beach   West Palm Bch. - March 16th @ Palm Beach Zoo   Jacksonville - March 16th @ Memorial Park
All Walks are FREE! We ask each Walker to Raise $100. If you Raise at least $50 you will receive a free t-shirt!   All Walkers with Epilepsy/Seizures will get a Purple Walk tshirt!   Register online today! http://www.efof.org/index.php/events/705-2013-walkathons
Comment by Annette on December 18, 2012 at 1:00pm

I would love to meet other seizure patients like me. If you live in or near the Tampa area:

Tampa, Florida

                        Epilepsy Support Group

A time to meet others, ask questions of professionals, get answers, and more...

      WHEN: Wednesday, December 19th (tomorrow)

                              6pm - 7:30pm

    WHERE: Tampa General Hospital,

                      For More Information Go To: 
                   http://www.tgh.org/sg.htm#q18 

                                                     
  This event is organized and hosted by Tampa General Hospital.

             Valet parking is available upon request.
         There is standard paid parking in the central garage.

                               Please Join Us!

Comment by Jordan Bomse on September 23, 2012 at 12:17pm

What kind of things are there for people in South Florida?

Comment by Annette on July 17, 2012 at 12:12pm

WHERE ARE YOU LOCATED?

Tampa? St. Pete? Clearwater? Lakeland? Or….?


Epilepsy Support Group
This is a great opportunity to talk with other Epilepsy patients
and their families, as well as ask some questions of professionals
who work on a consistent basis with those who suffer from it.
Connect with others, review challenges, discuss varying
treatment options, and more...

WHEN: Wednesday, July 18th (Tomorrow) 6pm - 7:30pm
WHERE: Tampa General Hospital,
Room B-103 (inside the cafeteria/food court), West Pavilion
1 Tampa General Circle, Tampa, FL 33606
(813) 844-7000
For More Information Go To:
http://www.tgh.org/sg.htm#q18

This event is organized and hosted by Tampa General Hospital.
Valet parking is available upon request. There is standard paid parking in the central garage.
PLEASE JOIN US…

Comment by Annette on June 19, 2012 at 4:04pm

As a seizure patient, I would love to meet some other people who suffer from Epilepsy, like I do…

If you need Answers to Questions, and are in the Tampa, Florida area, join us:     

Epilepsy Support Group:

This meeting is a great opportunity to talk with other Epilepsy patients and their families as well as ask some questions of professionals who work on a consistent basis with those who suffer from it.

Wednesday June 20th   6-7:30pm (tomorrow)
Tampa General Hospital Room B-103

(Inside the cafeteria/food court),

(813) 844-7000
 For More Information go to:
 http://www.tgh.org/sg.htm#q18


This event is organized and hosted by Tampa General Hospital. On the Route 19 Bus Line;   Valet parking is available upon request.  There is standard paid parking in the central garage.

Comment by Annette on April 12, 2012 at 9:01am

If you need Answers to Questions, and are in the Tampa, FL area, join us:     

Epilepsy Support Group:

A representative from Tampa General Hospital's Nutritional Services
Department
will be on hand to answer your questions regarding nutrition and ways it can affect seizure disorders in people of all ages. This meeting is a great opportunity to talk with other Epilepsy patients and their families as well as ask some questions of professionals who work on a consistent basis with those who suffer from it.

Wednesday April 18th 6pm - 7:30pm
Tampa General Hospital Room B-103

(Inside the cafeteria/food court),

(813) 844-7000
 For More Information go to:
 http://www.tgh.org/sg.htm#q18


This event is organized and hosted by Tampa General Hospital. On the Route 19 Bus Line;   Valet parking is available upon request.  There is standard paid parking in the central garage.

As a seizure patient, I would love to meet some other people who suffer from Epilepsy, like I do…

 

Comment by Heather on January 20, 2012 at 9:46am

Florida Walks 4 Epilepsy:

Vero Beach: February 11 at RIVERSIDE PARK www.EpilepsyVero.com

Gainesville: March 24 at KANAPAHA PARK (7400 SW 41st Place, Gainesville) vww.EpilepsyFLA.org

Lakeland: March 24 at LAKE HOLLINGSWORTH 813-374-8907

Seminole: March 24 at LAKE SEMINOLE 813-374-8907

Jacksonville: March 31 at MEMORIAL PARK (1620 Riverside Ave., Jacksonville) vww.EpilepsyFLA.org

Miami: April 14 at CRANDON PARK (6747 Crandon Boulevard, Key Biscayne) vww.EpilepsyFLA.org

Broward: April 15 at HOLLYWOOD BEACH (3601 N. Ocean Drive, Hollywood) vww.EpilepsyFLA.org

West Palm Beach: April 21 at JOHN D. MACARTHUR BEACH STATE PARK(10900 A1A, North Palm Beach) vww.EpilepsyFLA.org

Orlando: April 21 at CYPRESS GROVE PARK (290 West Holden Ave., Orlando) 407-422-1416

Stuart: April 22 at FLAGLER PARK(201 SW Flagler, Stuart) vww.EpilepsyFLA.org

Daytona: April 28 at MARY MACLEOD BETHUNE PARK (6656 S. Atlantic Avenue, New Smyrna Beach) vww.EpilepsyFLA.org

Comment by Annette on January 3, 2012 at 11:21am

Hi Everyone, It’s time for the monthly Epilepsy Support Group meeting in the Tampa Bay Area for Epilepsy patients and their family members. This is always a great opportunity to talk with other Epilepsy patients as well as ask some questions of professionals who work on a consistent basis with those who suffer from it.  Here is the group info:

When: Wednesday January  18, 2012 6pm to 7:30pm (this is an informal setting, so drop by anytime between 6 and 7:30pm)  
Where: Tampa General Hospital, Room B-103 (on the 1st floor, next to the cafeteria) 1 Tampa General Circle Tampa, FL 33606   

For more info go to the website: http://www.tgh.org/sg.htm#q18


This event is organized by Ms. Valerie Kelley, who is the Epilepsy Program Coordinator.

 

I myself am a seizure patient, and I would love to meet others just like me and talk to you and your family members about what you go through and how you cope with Epilepsy on a daily basis. Let's get together...

--Annette

Comment by Annette on November 8, 2011 at 11:08am

Hi There...  here is an upcoming event that is a great opportunity to connect with professionals, family and friends who see, undergo and understand what Epilepsy entails. Join us if you can. I love to meet some others like me...

Tampa Florida
Epilepsy Support Group
Please join us. This is a great opportunity to talk with
other Epilepsy patients and their families as well as
ask some questions of a professional who works on
a consistent basis with those who suffer from it.
 
Here is the group info:
WHEN: Wednesday November 16th
     6pm-7:30pm

WHERE: Tampa General Hospital,
Room B-103 (inside the cafeteria/food court), West Pavilion
1Tampa General Circle, Tampa, FL 33606
(813) 844-7000

                For More Information Go To:       
                http://www.tgh.org/sg.htm#q18    

This event is organized and hosted by Tampa General Hospital.
Valet parking is available upon request. There is standard paid parking in the central garage.

Please Join Us...

Comment by Heather on October 17, 2011 at 3:55pm
FL Events for National Epilepsy Awareness Month -

OCTOBER

October 18:  HAPPY BIRTHDAY EFOF – 40 year anniversary
October 26 & 27: 2nd
Annual Historical Ghost Walk for Epilepsy through old St. Augustine
http://GhostWalk.kintera.org/Epilepsy2011

NOVEMBER
1st Friday Art Walk in St. Augustine: November 4th Bake Sale 4
Epilepsy@
King Street & Granada Street across from Flagler College in front of Bank of St Augustine

Penny a Pound, Power Clean Lift-a-thon:
November 5th at Athlete Development Center, Jacksonville

2nd Annual Naples Walk for Epilepsy: November 12th at North
Collier Regional Park, Naples
http://bit.ly/SWEpilepsyWalk

Gifts with Humanity VIP Shopping 4 A Cause night:  November 26th at Gifts with Humanity in Edgewater, FL

Epilepsy Awareness Month / “Let’s Talk About It” Events
Sponsored by Lundbeck

http://EpilepsyFla.org/

Daytona - Nov 1 – Dinner for Clients and consumers at Caribbean Jacks in Daytona Beach, FL with Dr. Ralph Zwolinski speaking

Naples – Nov 2 – Dinner for consumers at Hampton Inn & Suites in Estero, FL with Dr. Pedro Hernandea-Frau speaking

Miami -Nov 3 –  Client and Partner dinner at Renaissance in Miami, FL with R&R Health Care and Dr. Serrano speaking

Broward - Nov 4 - Client and Partner dinner at Sunrise Civic Center in Sunrise, FL  for Clients and consumers

Gainesville - Nov 8 - Dinner for Clients and consumers at Napolitano’s in Gainesville, FL with Drs. Carney and Eisenshenk speaking

Pensacola – Nov 8  - Client and Partner dinner at Landry’s Restaurant in Pensacola, FL with Dr. John Axley, Adult and
Child Neurologist speaking

Palm Beach - Nov 9 - Physicians and staff dinner at Season’s 52 in Palm Beach, FL

Stuart - Nov 10 - Client and Partner dinner at Eagle Marsh Country Club in Jensen Beach, FL

Jacksonville - Nov 17 – Client and Partner dinner at Shand’s Twin Towers in Jacksonville, FL with Dr. Tatum speaking

 

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