Yep Aadi our son is now geting atonics - almost 12-15 a day and few of them are very strong, he's fallen few times and hits his head onto the floor at the same spot- he's now got a soft spot on his head. His seizures in June 2011, started with eyes rolling up face twitches and that's it, progressed to grand mals- head, legs , hands all shake tho under 1 minute and now since 3rd of Feb he gets atonics.....what is happening !
I agree a visit to the dr. is needed. They probably need to do an EEG or MRI.
There are seizure pads that hospitals have for the sides of beds to make sure no one injures themselves on the bedrails. At home that might not be as practical as they aren't made of breathable fabric incase of scootching nose & mouth up too close (in the hospital monitorswould go off for respitory changes).But Target or babies rus USA east coast is carrying a brand of breathable baby bumpers set that might be useful to you. I haven't used them, but just recently saw them.
The helmet is probably also a good idea. Can AAdi tell you anything about how he feels right before the drop seizures? Like does he get dizzy or hear thunder in his ears or get a metal taste in his mouth? My son's recent seizure had his dilating before the seizure, an adrenaline response is what neurology said.
May you both have a restful Valentine's day.
I can possibly help you with your son and teaching you a way to help him control those drop seizures. First I need to know if he has any warning signs at all, even the slightest one!
Ask him questions like; Before you go into a seizure does the inside of your body feel different than the outside? Or do you feel light headed or dizzy before the seizure comes on? Does his fingers, arms, toes legs twitch before a seizure? Does his face tingle before a seizure?
I can help you because I used to have these same symptoms and I learned a trick that doctors will not tell you about.
I don't know how well this will work since he does not have any warning signals of any sort. Well, I guess I'll start by giving you a little back ground so you will understand where I am coming from.
When I was a teenager is where I start to remember my seizures, even though I was born with epilepsy. My parents and doctors all thought differently than I did about my seizures. Basically they thought I should be put in a group home for my own safety. I refused to listen or reason with them, because they would never listen to me. So I decided I had to learn to do things for myself. I set some goals and went to work learning more about who I was, how my epilepsy was apart of me and how I was going to overcome it. The summers were the worst times for me because of the heat. I would all of the sudden start convulsing, drop immediately! My eyes would roll back into my head, shaking uncontrollably. It seemed like forever before it would end. Afterwards, my head would hurt, my eyes burned like crazy, my muscles were soar, I could barely move. My heart felt like I had just ran a marathon!
One of my goals was to not let my seizures control me. At that time the reason was the fear was so strong each time I had a seizure. I felt like death was overshadowing me. I needed to regain control somehow. After coming to a conclusion I realized I did have a very slim warning signal. I bought a watch, I realized that I had one small twitch on my right arm for 30 seconds before my seizure hit. All this time I thought that twitch was all together with the whole seizure. I had 30 seconds to focus my thoughts on where my surroundings are,30 seconds to sit down or lay down. I preferred to sit against a wall or something solid, it made me feel more secure. I started to remember after coming out of my seizures where I was, I was not as lost.However the fear during the seizure still grew stronger. I needed to find another way to see my elf through these seizures. A thought came to me one day. "Mind over Matter".
How could I possibly do mind over matter with a seizure? As I was in my room one day listening to my radio. I was singing along to a song I liked, it clicked, that is it a song! I need a song I know really well, something simple....My parents had sent me to church all of my childhood years and I was still attending Sunday school and church. A little bible school song came back to me " JESUS LOVES ME", perfect, I had learned that years ago as a little girl. Simple, yet effective.
So I practiced a routine on my good days so I would be ready. I had 30 seconds to focus where I am at, to sit down against a wall and start singing. The first attempt was extremely hard, but I kept after it, kept singing that little song in my mind "JESUS LOVES ME THIS I KNOW". After a while I started to notice the fear was disappearing, I was gaining control of my mind by singing that song in my mind. I started to notice changes in my seizures. My eyes stopped burning afterwards, my focus started to return more quickly as well as my strength.
This is one of many things I have learned from trial and error that works. I hope you can find something out of this that will help your son. I am a full fledged believer in GOD. I don't know where you stand, but Prayer is your most powerful tool!
Feel free to talk and visit with me anytime, I'm around! Keep SMILING!
Changes in med have been known to switch the type of seizures I have.