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Comment by persephone on February 1, 2013 at 12:57pm

am I the only one the is also obtusest with finding out the connection with autism and Epilepsy? not to say I want to find a curer for who I am because I have bout I just want to understand it

Comment by Don Simmons on January 8, 2013 at 3:25pm

Amanda,

Onfi, is a new one on me.  Never heard of it, nor ever been on it.  It it causing any new type of side effects you haven't had prior.  I have periods of double vision also.  Not everyday, but once in a while, (2-3 weeks).  I have been on Depakote before, did nothing for me.  But I am still on Teg. and Lamitical .  The teg. stopped my grand-mals.  But if I take the combination to close together, I get extremely dizzy. This last for about 30 minutes, then diminishes.

I used to have longer aura's but not anymore.  I don't understand why the Onfi would produce a persistant and dry cough.  I would discuss this with my neuro. 

Comment by Amanda Hitchcock on January 5, 2013 at 10:36pm

I would like to know if anybody knows special info. on the medicines I take which are Depakote ER, Tegretol XR & New one by the name of Onfi.

  First in once was taking to much of the tegretol kept getting double vision. Has anyone got side effect of double vision? Once though of reducing the Tegretol double vision decreased. Still get it though once in awhile.

  For the Onfi, started taking Nov 29 worked great reducing good amount of seizures! Then been feeling more stange feeling like Auras that emotions(crying) wanna force out of me. Also fear like seizures going threw me.

 Right now in little of cold but going in coughing where it's more like a dry cough. On list of side effects for Onfi says persistant cough.

 Anybody going threw issues same or not I should know about the medications or combining of what? Thanks!

Comment by omar ortiz on October 19, 2012 at 10:59pm

CAT'S can tell a seizure coming up to 2hrs before dogs maby 3 to 5minuts if lucky.If u got a cat look for the signs they go crazy run back & forth cry.they are trying to tell you.       "ASK A DOCTOR"

Comment by flamegirl1495 on May 4, 2012 at 9:25pm

Hey, anyone willing to help me on what it would be like to get off my seizure meds (low does keppra) with my neros help? I've been seizure free for almost two years now and she thinks it would be possible to get off. 

Comment by Pat R. Bruce on April 9, 2012 at 11:03pm

Hi ! Looking for some info. about Topamax withdrawal symptoms. Has this ever happened to anyone in this group ? How long before the symptoms appeared and what are they ? How long do they last ? Felt like the internet wasn't much help.

Comment by Curly on March 30, 2012 at 9:47am

I take Lamictal Xr also.  This is another adress to check into.

 

 

www.needymeds.org

www.internetdrugcoupons.com

 

These are addresses that my family physician gave to me.

 

Hope they are able to help out along with what Raymond sent.

Comment by Penny Niebauer on March 29, 2012 at 10:58pm

Interesting article:  

When a Chomp or a Slurp Is a Trigger for Outrage

http://www.nytimes.com/2011/09/06/health/06annoy.html?_r=1&src=... 

Comment by Raymond DiNitto on March 23, 2012 at 7:50pm

Diane,
I also take Lamictal XR and it works very good for me but I also dont have any insurance and it was costing me $$. I found a program called Bridges to Access and they help me pay for my meds.you can google it,. Hope it works for you.

Comment by Shirley Kiger Connolly on February 25, 2012 at 5:07pm

You all are so kind and helpful. I am still seeing the small rash in about the same place where I tend to get milder ones anyway (it's from prior radiation that I have this trouble). But I'm praying it doesnt go anywhere else this weekend. If it does, I will call the neurologist again on Monday. Keeping my fingers crossed. I would really like to get seizure free for a while.

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