Epilepsy Foundation

Research Junkies

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Research Junkies

People interested in articles, studies, and medical information about epilepsy related topics.

Members: 372
Latest Activity: May 21

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Last Updated September 6, 2009, 6:33pm Pacific Time

Discussion Forum

Bioinformatics on epilepsy research!

Started by Kshitij Shrestha May 5. 0 Replies

Synaptic plasticity?

Started by Kshitij Shrestha. Last reply by Gina St. Aubin Apr 29. 1 Reply

Self-Management of Epilepsy Medication

Started by David Heilman. Last reply by David Heilman Mar 27. 2 Replies

Patients take notes

Started by Tony Murray. Last reply by Tony Murray Apr 26. 4 Replies

For better,for worse for same.

Started by Tony Murray. Last reply by Allen Rossner Mar 14. 1 Reply

Penry on Absence Seizures

Started by Bunny's Mommy. Last reply by Jeremy Tischer Mar 2. 2 Replies

The endless list of Q's

Started by Shalinee Murishwar. Last reply by Shalinee Murishwar May 7. 5 Replies

Single jerks after clusters- complex part E

Started by Shalinee Murishwar. Last reply by Kari Lynne Brauer Feb 21. 4 Replies

Comment Wall

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Comment by flamegirl1495 on May 4, 2012 at 9:25pm

Hey, anyone willing to help me on what it would be like to get off my seizure meds (low does keppra) with my neros help? I've been seizure free for almost two years now and she thinks it would be possible to get off. 

Comment by Pat R. Bruce on April 9, 2012 at 11:03pm

Hi ! Looking for some info. about Topamax withdrawal symptoms. Has this ever happened to anyone in this group ? How long before the symptoms appeared and what are they ? How long do they last ? Felt like the internet wasn't much help.

Comment by Curly on March 30, 2012 at 9:47am

I take Lamictal Xr also.  This is another adress to check into.

 

 

www.needymeds.org

www.internetdrugcoupons.com

 

These are addresses that my family physician gave to me.

 

Hope they are able to help out along with what Raymond sent.

Comment by Penny Niebauer on March 29, 2012 at 10:58pm

Interesting article:  

When a Chomp or a Slurp Is a Trigger for Outrage

http://www.nytimes.com/2011/09/06/health/06annoy.html?_r=1&src=... 

Comment by Raymond DiNitto on March 23, 2012 at 7:50pm
Diane,
I also take Lamictal XR and it works very good for me but I also dont have any insurance and it was costing me $$. I found a program called Bridges to Access and they help me pay for my meds.you can google it,. Hope it works for you.
Comment by Shirley Kiger Connolly on February 25, 2012 at 5:07pm

You all are so kind and helpful. I am still seeing the small rash in about the same place where I tend to get milder ones anyway (it's from prior radiation that I have this trouble). But I'm praying it doesnt go anywhere else this weekend. If it does, I will call the neurologist again on Monday. Keeping my fingers crossed. I would really like to get seizure free for a while.

Comment by Diane LaMorticella on February 25, 2012 at 4:40pm

my son takes Keppra for 3 years now, and he has been taking Lamictal for 2 years.  He is taking the generic, because the brand name Lamictal was going to be $700 for a 90 day supply.  He is doing well with this combination, my son has myoclonic epilepsy due to a PVL in the left side of his brain.  His seizures do not affect his ability to breath, but, there is something called a Kindling affect with seizures, that once they get going, seizures can provoke more seizures, I dont know if this is more relevant to any specific type of seizure.  My son, Joe, will be 6 soon.  He was diagnosed with epilepsy when he was 10 months old, he was misdiagnosed when he was younger, we think he was seizing from the time he was about 2 months old.  He is doing pretty well, he has some developmental delays, but his is a smart and tenacious little guy!

 

Comment by Tony Murray on February 25, 2012 at 1:11am

Lamictal. I now take generic which doesn't cause rashes. With my memory though my wife may say it was something different. If she does I'll post it.

Comment by Curly on February 25, 2012 at 12:38am

Tony,  are you taking Lamictal or Lamictal XR?  Those are the ones that can cause rashes.  Am not sure if any other meds have those side affects.

Comment by Tony Murray on February 24, 2012 at 10:04pm

I had rashes but am not sure wich medacine caused them.

 

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