A place where parents can post information about their beautiful children who have Epilepsy.
Latest Activity: 5 hours ago
Started by Robin Smiddy. Last reply by donald burger 5 hours ago.
Started by Robert William. Last reply by marcia mendez 7 hours ago.
Started by Jennifer C Gandee. Last reply by Theresa Davidson 8 hours ago.
@ Donald, you have been so helpful :) how do I go about looking for a seizure alert dog? I did speak with her this morning and we discovered that before a big seizure, she feels like her body becomes jello, so i told her to look out for those feelings and go to a safe place right away or tell someone...
@Donald, My daughters eyes become lost...and she says each time she wonders how she got there, and extremely confused. my fear probably like everyone else, is when shes not with me and has a seizure and no will know what to do. However, she is 15 and I cant keep her locked in the house. We have a 20min check in via text right now. But because she has just had another huge episode three days ago, I am not comfortable and the panic is overwhelming to her and to me.
@Renee and @Kim, reading your posts brought tears to my eyes as I have been in your shoes with my daughter. I am now helping other parents by supporting them through my coaching practice. While I am not a doctor and can't make your child well, I am a parent who has lived this and is now using my professional skills and experience to good use in supporting others. Please when you have a moment, pop over to my website www.parentpower.ca and see if I may be offering something that you might find helpful:)
Light and love to each of you,
@Renee, That sounds similar to our situation with my 15 year old daughter who also takes Keppra. When she was little she would stare at you as though she hated you for speaking to her, but later found out these were seizures and she really didn't have such a bad attitude. She is such a love and is so scared of having one at school or in front of anyone who isn't family, but they seem to be more frequent as her life becomes more stressful...
I have had many questions, and have been trying to find some other people to discuss with. For instance, my daughter missed her entire graduation this past Friday, she doesn’t remember a thing. It breaks my heart and I cannot always spot when she is having a smaller seizure that is leading up to a grand mal. Every time she enters into a stressful situation, they occur, and I am certain that she has missed so much of her life. How am I to know for sure she is having a smaller seizure? Sometimes I can see it but I would have to watch her day and night to know for sure.
it was a very emotional weekend. my daughter who has epilepsy went camping for the first time. i was a little worried with her episodes and seizures but she did great. she had a blast. here i was gonna go home but i didnt. and im glad i camped out she had a blast.
I tried to vote Allison but I got this:
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