Epilepsy Foundation

Parents Talking w/Parents


Parents Talking w/Parents

A place where parents can post information about their beautiful children who have Epilepsy.

Members: 1195
Latest Activity: on Monday

Discussion Forum


Started by Nicole Heideman. Last reply by Kari Lynne Brauer Jan 24. 8 Replies

Allergy Shots and Seizures?

Started by Mary. Last reply by Maria Davila Jan 15. 2 Replies

Phoebes neurologist appt

Started by Nicole Heideman Jan 15. 0 Replies

Comment Wall


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Comment by Kari Lynne Brauer on Monday

I applaud both of you ladies,

Raising up teenagers is hard work. One thing I learned as my husband and I raised up our 3 kids is no matter how much they fight and resist, they are testing you. They are looking for boundaries, trying to find structure. They will fight you every step of the way. There will be yelling and screaming. Talk to your friends and well respected people in your church. Seek wisdom from those who have raised their kids. Seek wisdom from your pastor. Sit down with  your family, ask them to listen, tell them you just want someone to hear. 

 Take time to hear out hear out your teen.Let them know you are going to think about.. Come back in a calm manner. If he, she does not like that answer, refuses to respect it, then have a discipline already in mind. A responsibility of some sort. Maybe they do not drive yet. But a friend might need a babysitter. They will have to watch the little kids for an hour or... Maybe they might like kids, so garbage duty or laundry for a week or two... It has to be a responsibility. If it gets worse, then bring in elders, pastor or wise people from the church to council you and your teen. Try your best NOT to get into a screaming match with them. Head to the bathroom to take five for yourself and get reconnected. Then go back out and try again. Remember this all takes time. PRAY,PRAY and PRAY some more. Keep in the WORD of GOD. You both will do well, remember growing up is hard work. 

Comment by meredith froese on January 26, 2015 at 10:05am
The way you describe this sounds like my sister was at this age . She tried different times to take her life . She would try to befriend her siblings then tell us she was going to hurt herself but we were not to tell mom or dad . Even though I was 15 at the time this was a lot of pressure on the family . My sister had partial-complex seizure just about every day .Like I said before my mother could identify quite well with what you are saying. I have been trying to get mom to sign up here for this reason to identify with people with struggles like you. Bethany I will pray for you and your daughter that God will have His way in your lives . You have as good of a day as you can. May God strengthen you through this time.
Comment by Bethany Grap on January 25, 2015 at 11:21pm
My 15 yr old has intractable tonic clonics and absences. She also has severe depression with psychotic behaviors. She wants them stopped but won't try the blue polarized lenses in glasses to see if they will work consistently for her especially at school and when on devices such has lab top, tv watching, etc. She's also extremely adverse in the art of manipulation. She's always angry and uses others as her escape goat. I'm overly frustrated bc she wants them to stop as I do but she won't try things...it's to the point in school where I have to let her fail and hit rock bottom in order for her to gain her senses...I do know that I didn't raise her this way when she was younger...I am lost and confused on how to even help her. We go to church but she's not even into that any more. Its all attitude and mental games...just wandering if anyone else is going through this too...
Comment by meredith froese on January 24, 2015 at 1:58pm

Hi Bethany Yes  I can give more detail. What I am trying to say is the one having the seizure is as or more frustrated then the parent . I am now a mother myself with six children and my relationship is now good with my mother. God has healed my epilepsy my story is on my page feel free to read it. This may answer your questions. The one with the  seizure comes back confused , afraid, feeling guilty yet they suppose to act like nothing happened .So what I am saying the one with seizure don't want to make the parent frustrated they love them dearly but they have so many frustration of there own that they make the parent frustrated. Remember you at 15 without seizures then think what it would be like to be 15 with seizure.     

Comment by Kari Lynne Brauer on January 24, 2015 at 8:38am


Can you give a little more detail? This can be hard for both you and her.

Comment by Kari Lynne Brauer on January 24, 2015 at 8:35am


What kind of struggles are you talking about? There are many struggles that we go through, that others do not understand.

Comment by meredith froese on January 22, 2015 at 1:34pm

Hi this is Meredith and others go through this my mother had me and my sister with seizures and we were only 15 months apart in age. We had our major struggles that are parents didn't seem to understand .  

Comment by Bethany Grap on December 11, 2014 at 8:57pm

"ugh...I'm really frustrated with my 15 yr old. she has epilepsy and psych issues. wandering if anyone else is going through this too????"

Comment by Mom22 on November 24, 2014 at 3:19pm

For anyone taking gabapentin, note that the FDA has released this recall on 11/24/14:

ISSUE: Aurobindo Pharma USA is voluntarily recalling lot GESB14011-A of Gabapentin Capsules, USP 300 mg 100-count bottles to the consumer level. The product lot has been found to contain some empty capsules.

Here's the link: http://www.fda.gov/Safety/MedWatch/SafetyInformation/SafetyAlertsforHumanMedicalProducts/ucm424519.htm?source=govdelivery&utm_medium=email&utm_source=govdelivery

Comment by Cathy G on November 6, 2014 at 10:24pm

Hi everyone, I wondered if there are any of you that put your child on the ketogenic diet and what kind of results you have seen? My son was diagnosed with epilepsy almost 2 years ago and has been on several different medications, with the doses increased and they continue to not be effective. He has had about 4 grand mal seizures, the last one just about a month ago. His medication was increased and things were quiet for a while, now we're back to more seizures. Does anyone else experience this? (Sorry for so many questions!) Thank you so much, Cathy


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