A place where parents can post information about their beautiful children who have Epilepsy.
Latest Activity: on Saturday
Started by Nicole Heideman on Saturday.
Started by marivel perez. Last reply by Jennifer Henry on Friday.
Started by ChristinaO. Last reply by Angie Sussdorff on Friday.
Rachel, my gs gets a sinus infection every time we try anything like Sudafed....it's not an allergy med but just dries mucus, allowing a buildup of dry yuck in the upper sinus cavities that doesn't drain, but that irritates worse than the dribbling nose draining the excess. We've had success with a low dose of Zyrtec (1/2 a child's pill once a day) and Nasonex ( 1 squirt each nostril once a day, easy sniff - not pulling it into the upper sinus cavities). He's cleared up so he only needs the regemine every few days instead of daily, with no infections.
Ask your doc about the strength of the allergy meds, and cut them back to just where they work without causing other issues....sometimes "less is more". Just IMHO from what I've been thru.
I picked up a script and asked the pharmacist about the next medication pill options (chew/dissolve/etc) and from that start the pharmacist was a font of useful information about all sorts of things (much of which I've heard here), but also there was affirmation that medication issues people talk about going through isn't strange. Hope you all know a good pharmacist!
If anyone in Nevada is looking for a Cannabidiol (CBD) specialist, I highly recommend this group. Below is a link to their website.
Rachel- My guy was on Zyrtec till we learned that being on many allergy medicines (Zyrtec included) really can increase seizures.... That could be what happened....no Benadryl no Claritin no Zyrtec :(
Right now he is on Zrytec we will try the allegra and sudafed to see if one might be better. We had seen the allergist in February she mentioned shots but did not want to look at them until after the tree season. She started him on the zrytec both seizures happened after he started it. We cant compare to last year because his seizures were not controlled then.
My daughter has increases as well with allergies. I suspect it is because the body is trying to fight the allergies as if they were an infection. I gave her childrens sudafed and she did great. I only use it as a last resort but there is a noticable difference after taking it.
Rachel- my son also has a ton of allergies and his seizures increase when those allergens are high. We actually started allergy shots to see if it makes a difference. The allergist did say that the only allergy med to not cross the brain barrier is Allegra - so maybe that is a better option than the others out there....good luck to you!
Hi everyone. I was wondering my son Malachai 6 has some allergies to trees I have noticed in the past 3-4 weeks he has had a lot of trouble with his allergies and the 2 worst days he had seizures too. Has anyone else had trouble with allergies and seizures? or is it maybe a coinciedence. We have an appointment next week to check him.
Hi, I am new to the group and looking forward to it! I have a concern. My daughter who is 25 is in Spain and on Topamax. Before she went I got her a 3 month supply, and now am sending another 3 months. However I have learned that sending packages to Spain is very unreliable! She said she is able to get Topamax over the counter there. Does anyone know the effectiveness of Topamax in Spain? Thanks for any advise! Barb
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