Parents Talking w/Parents

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Comment by Jennifer Longstreet 7 hours ago

thank u all but he is his own person and i laghed my ass off reading ur comments thanks u should think of a career as a comeden this is he sezurie by the way

Comment by Paula Berends 9 hours ago

I am now 43, and when i started menopause at 32 i began having many more problems with my seizures. It is very common for the cycle to change seizure patterns. I hate to hear that your daughter is having these troubles, but there is help. 8 months ago i started on bio identical hormones. Last month my doctor added oxytocin and DHEA because my testosterone level dropped even with hormone replacement therapy. I believe that the key is he keeps a monthly check on my estrogen, progesterone, and testosterone levels. Sounds expensive, but it really isn't. My meds now cost about half of what they did before even with the insurance not covering my bio identical compounds. The brain is a very mysterious puzzle. Find a doctor, most likely GYN who specializes in bio identical hormones or a doctor who uses them to treat chronic illnesses, maybe a endocronolgist. Do not stop looking these doctors are out there, mine just happens to be a forward thinking well informed GP. I have been looking for these answers for 25 years and now I have found them. Even my doctor is surprised at how I have responded to my treatment. I know that many doctors don't agree with this type of treatment options, but i wanted as normal a life as i could possibly have. It has been used for many years in California, but being in the south it is new. For me it was worth a try, read as much as you can and become informed in your treatment options.i knew I found the right Dr when I said to him one day " what ever you think" and he explained to me that my treatment was a partnership and we have to work together to get it just right. Keep looking, keep your hopes up!

Comment by Cindy Gohman 12 hours ago

Has any one ever heard of seizures becoming worse during a menstrual cycle. My 24 year olds seizures have been getting worse it seems during these. The last one lasted 3 hours and alot of medication that the local hospital was also administering. They wouldn't stop so they had to fly her by air to rochester. They are finding spikes in different parts of her brain but don't know exactly were they are coming from. They have found one in the front left temporal lobe one in the left front hemisphere and one in the center of her brain now. They just aren't sure what they are at this time. I have since quit working tobe home with her because I am so afraid that she will have another one and no one will be with her if it happens again this is the fourth time she has had one lasting over an hour. I have come home from work to her having one and that one lasted two hours after I got home from work.

Comment by Angela Grip 17 hours ago

Kari Lynne,

I echo your thoughts on prayer....I have always been a faithful person but since our daughter's epilepsy diagnosis I pray so much more. It does help me gain perspective and does help help me find peace.

Angela

Comment by Kari Lynne Brauer 23 hours ago

As parents we want the best for our kids.... our families. We find ourselves getting so wrapped up in the issue, we forget about the person. His/ her feelings, thoughts, we want to resolve the problem and be done with it. We have to remember that these are only stepping stones to help us grow stronger in character so that we may in some time help others in need. 

   I am a firm believer in prayer, a parent who is constantly praying for their children and family. I believe this helps relieve fear, tension, opens doors to communication and other avenues.

  Before you take on the challenges of your son, you must first put yourself together. If you can not take care of your own self how can you care for the needs of your son? Take time to gt yourself together. Go out with your husband, have lunch and shopping with a  friend, go visit your mother and dad for a weekend.... Your son is alot more stronger and independent than you realize right now. Find a way to get your perspective straight first then take on his needs.

  Your son needs a mom who is going to be strong and courageous!

Comment by Misty Sunshyne yesterday

@Jennifer Gandee- if you can't afford an Emfit monitor- check out The Danny Did Foundation. They got my son a monitor at no cost to us. Good luck - there is a light at the end of the tunnel. Breathe and if you can't handle "a day at a time"- try an hour at a time.

Comment by Jennifer C Gandee yesterday

I hope there is a light at the end of this tunnel. I can't seem to get ahold of myself. I don't sleep, I haven't eaten a full meal in 10 days. I am so scared for my son! I have a million questions running through my mind, and they scare me beyond belief. Was better/more sleep and a little more medicine all he needed, or was this the first convulsive, with many more to come. How do I sleep, if I can't afford a monitor or the Emfit. How do I make it through this? How do I get him through this, if I can't get a grip on myself?

Comment by Kari Lynne Brauer on Monday

you  should not  emit your son from playing sport because of your fear.  You should sit down with your husband, son, family and talk about what is impotant to each of you and come to a compermise. Make sure you are listening to your son, not just half way. At your sons' age communication is extremely important, not making all the calls yourself. I used to be your sons' age with the same problem. My parents and doctor had other ideas for me. I felt like a loser and no one wanted to be friends with me. My parents did not communicate with me and I decided to prove things and learn how to care for myself when I was a teen. Communication is huge, make your son apart of the plan, let him help make the decessions. After all this is his life and he needs to learn how to make the right choices as a teen, like any other kid. Ask yourself this; how would you like to be treated if you were your son?

Comment by Amy Schlenker on Monday

So sorry Jennifer.  I know how you feel, our daughter made it 6 months after her brain surgery, and it was the best time we have had in 4 years.  Hugs sent to you.

Comment by Jennifer Longstreet on Sunday

third day straight of 4 to 5 min tonic clonic after being seizure free for five months................just had emts here feel so helpless and sad for him.. all he wants is to play baseball and be able to drive i hate this

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