Parents Talking w/Parents

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Comment by donald burger on June 11, 2013 at 9:50pm

@kim
http://4pawsforability.org/
They are not cheap and there is a waiting list. I meet a person with one of there dogs and the dog was really well trained. Also our local epilepsy foundation went to our daughters school and had a seminar for all the teachers on what to look for and how to deal with sz. And they did it for free

Comment by Kim Bolden on June 11, 2013 at 9:41pm

@ Donald, you have been so helpful :)  how do I go about looking for a seizure alert dog?  I did speak with her this morning and we discovered that before a big seizure, she feels like her body becomes jello, so i told her to look out for those feelings and go to a safe place right away or tell someone...

Comment by donald burger on June 11, 2013 at 9:31pm

@kim u might want to think about getting a sz alert dog. If they can't get better control of them. My dd will have 1000's of sz a day when she is bad or she is pretty much sz free. The only times she has break throughs is when she is sick or when the doctors play with the meds. My daughter is 3 1/2 she goes to a special needs school and has a one on one aid. Who has seen videos of her smaller sz. And they call if they think anything is going on its a little hard with her because she does not talk at all. The text thing is a good idea. You might want her good friends to know what her sz look like so if your daughter has a sz they can call u

Comment by Kim Bolden on June 11, 2013 at 4:32pm

@Donald, My daughters eyes become lost...and she says each time she wonders how she got there, and extremely confused. my fear probably like everyone else, is when shes not with me and has a seizure and no will know what to do. However, she is 15 and I cant keep her locked in the house. We have a 20min check in via text right now. But because she has just had another huge episode three days ago, I am not comfortable and the panic is overwhelming to her and to me.

Comment by Chantal Schutz on June 11, 2013 at 2:42pm

@Renee and @Kim, reading your posts brought tears to my eyes as I have been in your shoes with my daughter.  I am now helping other parents by supporting them through my coaching practice.  While I am not a doctor and can't make your child well, I am a parent who has lived this and is now using my professional skills and experience to good use in supporting others.  Please when you have a moment, pop over to my website www.parentpower.ca and see if I may be offering something that you might find helpful:)  

Light and love to each of you,

Chantal

Comment by donald burger on June 11, 2013 at 1:12pm

I know when my dd has small sz I can't see any thing but I notice that her heart rate drops 10 beats a min. She is 3 1/2 I don't know if its true for every one. Worth a try.

Comment by Kim Bolden on June 11, 2013 at 12:52pm

@Renee, That sounds similar to our situation with my 15 year old daughter who also takes Keppra. When she was little she would stare at you as though she hated you for speaking to her, but later found out these were seizures and she really didn't have such a bad attitude. She is such a love and is so scared of having one at school or in front of anyone who isn't family, but they seem to be more frequent as her life becomes more stressful...

Comment by Kim Bolden on June 11, 2013 at 12:40pm

I have had many questions, and have been trying to find some other people to discuss with. For instance, my daughter missed her entire graduation this past Friday, she doesn’t remember a thing. It breaks my heart and I cannot always spot when she is having a smaller seizure that is leading up to a grand mal. Every time she enters into a stressful situation, they occur, and I am certain that she has missed so much of her life. How am I to know for sure she is having a smaller seizure? Sometimes I can see it but I would have to watch her day and night to know for sure.

Comment by marcia mendez on June 10, 2013 at 9:40am

it was a very emotional weekend. my daughter who has epilepsy went camping for the first time. i was a little worried with her episodes and seizures but she did great. she had a blast. here i was gonna go home but i didnt. and im glad i camped out she had a blast. 

Comment by Angela Doescher on June 7, 2013 at 12:10pm

I tried to vote Allison but I got this:

• Based on the Zip/Postal code that you entered you are not eligible to participate. Please check the Terms and Conditions for eligibility requirements

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