Epilepsy Foundation

Parents Talking w/Parents


Parents Talking w/Parents

A place where parents can post information about their beautiful children who have Epilepsy.

Members: 1175
Latest Activity: yesterday

Discussion Forum


Started by Nicole Heideman yesterday. 0 Replies

Does anyone have a child on Amitriptylin

Started by marivel perez. Last reply by Jennifer Henry yesterday. 1 Reply


Started by ChristinaO. Last reply by Angie Sussdorff on Friday. 5 Replies

Comment Wall


You need to be a member of Parents Talking w/Parents to add comments!

Comment by Missi Wallace on April 8, 2014 at 11:10pm

Rachel, my gs gets a sinus infection every time we try anything like Sudafed....it's not an allergy med but just dries mucus, allowing a buildup of dry yuck in the upper sinus cavities that doesn't drain, but that irritates worse than the dribbling nose draining the excess. We've had success with a low dose of Zyrtec (1/2 a child's pill once a day) and Nasonex ( 1 squirt each nostril once a day, easy sniff  - not pulling it into the upper sinus cavities). He's cleared up so he only needs the regemine every few days instead of daily, with no infections.

Ask your doc about the strength of the allergy meds, and cut them back to just where they work without causing other issues....sometimes "less is more". Just IMHO from what I've been thru. 

Comment by Amy on April 3, 2014 at 5:27pm

I picked up a script and asked the pharmacist about the next medication pill options (chew/dissolve/etc) and from that start the pharmacist was a font of useful information about all sorts of things (much of which I've heard here), but also there was affirmation that medication issues people talk about going through isn't strange.  Hope you all know a good pharmacist!

Comment by Andrew Gennuso on April 2, 2014 at 4:52pm

If anyone in Nevada is looking for a Cannabidiol (CBD) specialist, I highly recommend this group.  Below is a link to their website.

CBD Saves

Comment by Lauren H on March 19, 2014 at 6:13pm

Rachel- My guy was on Zyrtec till we learned that being on many allergy medicines (Zyrtec included) really can increase seizures.... That could be what happened....no Benadryl no Claritin no Zyrtec :(

Comment by Rachel Fuller on March 19, 2014 at 2:22pm

Right now he is on Zrytec we will try the allegra and sudafed to see if one might be better.  We had seen the allergist in February she mentioned shots but did not want to look at them until after the tree season.  She started him on the zrytec both seizures happened after he started it.  We cant compare to last year because his seizures were not controlled then.


Comment by Jaclyn Weston on March 19, 2014 at 12:18pm

My daughter has increases as well with allergies.  I suspect it is because the body is trying to fight the allergies as if they were an infection.  I gave her childrens sudafed and she did great.  I only use it as a last resort but there is a noticable difference after taking it.

Comment by Lauren H on March 19, 2014 at 11:59am

Rachel- my son also has a ton of allergies and his seizures increase when those allergens are high. We actually started allergy shots to see if it makes a difference. The allergist did say that the only allergy med to not cross the brain barrier is Allegra - so maybe that is a better option than the others out there....good luck to you!

Comment by Rachel Fuller on March 19, 2014 at 11:53am

Hi everyone.  I was wondering my son Malachai 6 has some allergies to trees I have noticed in the past 3-4 weeks he has had a lot of trouble with his allergies and the 2 worst days he had seizures too.  Has anyone else had trouble with allergies and seizures?  or is it maybe a coinciedence.  We have an appointment next week to check him.

Comment by Monica jaime on March 17, 2014 at 10:43am
Hi BarbaraLSM. Im Monica only I can tell u is I went ti live to Argentina with my daughter who is epileptic and take 3 diferent nedicines . they have these medicines but look luke are generics my daughter can take generics because they dont stop seizures. so over there she start having everything again: absencies , jerks and the grandmal seizures . my reconendation is ask your daughter if there are brand o generics o I dont know if your daughter can take generics. Good luck.
Comment by BarbaraLSM on March 16, 2014 at 5:14pm

Hi, I am new to the group and looking forward to it! I have a concern. My daughter who is 25 is in Spain and on Topamax. Before she went I got her a 3 month supply, and now am sending another 3 months. However I have learned that sending packages to Spain is very unreliable! She said she is able to get Topamax over the counter there. Does anyone know the effectiveness of Topamax in Spain? Thanks for any advise! Barb


Members (1175)


Terms of Service Update 6/4/2012

We have updated our Terms of Service for eCommunities Groups.

© 2014   Created by EF Admin.

Badges  |  Report an Issue  |  Privacy Policy  |  Terms of Service