Parents of Teens

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This forum is for parents of teenagers with epilepsy. The special issues facing teenagers - driving, dating, college, independence - can be difficult for any parent and are multiplied for epileptic teens. Lets talk about it and share!

Members: 34
Latest Activity: May 15

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Discussion Forum

Education question

Started by Stephanie Scheeren. Last reply by Stephanie Scheeren May 15. 17 Replies 0 Likes

My 14 year old daughter was just diagnosed last month. Since a seizure in January of this year and the start of her medication in early February, she has had increased difficulty completing school…Continue

Does Your Teenager Take Epilepsy Medication?

Started by David Heilman. Last reply by Teresa May 10. 1 Reply 0 Likes

Hey everyone, I am part of a study at Columbia University which hopes to build upon the collected wisdom of people living with epilepsy to inform research about how people take control of their…Continue

Tags: phenobarbital, klonopin, neurotonin, topamax, clonazepam

Research Paper...Please Help!

Started by Lauren. Last reply by Melinda Powers Feb 23. 2 Replies 1 Like

I am currently in College getting my degree in psychology. I am taking what is called a seminar course right now, which is all about families. We are required to write a 20 page research paper on…Continue

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Comment by It's big but not bigger than me on May 11, 2012 at 2:02pm: Well almost 2 weeks on new seizure medicine and I can totally see a difference in my Taylor. She seems more rested and happy dear Lord let it continue to improve. This is her first weekend away from me since she was diagnosed with the seizure disorder so I'm a little nervous but I am trying so hard not to smother her or let her see just how much I do worry. I have tried to stress the importance of her taking her medicine on time while she is away but I'm a little ehhh about her actually doing it. Can you tell I have some control issues?! lol laugh or cry I guess. Say a little prayer for us and my sanity to make it through the days when she is not with me. God give me strength and knowledge.

Comment by Jennifer Longstreet on March 5, 2012 at 1:50pm: Thank You, Jennifer

Comment by susan walter on March 5, 2012 at 12:01pm: @Ruthanne,

Thanks. I'll look into it.

Comment by Ruthanne Iliff on March 5, 2012 at 11:49am: Neurofeedback is a way of training the brain so that the electrical impulses that go awry and cause seizures are taught to stay within the norms of the frequencies used in the brain. It is non invasive and very powerful. It's like taking the brain to the gym. But after a certain number of times, the brain stays in the more healthy place and the seizures go away. There is a book called "A Symphony in the Brain" by Robbins, that explains it beautifully. Neurofeedback has been a life saver for our family.

Comment by Jennifer Longstreet on March 5, 2012 at 11:26am: yes please let me know

Comment by susan walter on March 5, 2012 at 11:17am: @ Ruthanne,

What is neurofeedback?

Thanks,

Susan

Comment by Ruthanne Iliff on March 5, 2012 at 10:41am: Jennifer..

I don't know if this will help, but I have a 16 year old daughter who started getting seizures at about age 12. The medication did not seem to help at all. We have been doing neurofeedback and she started playing soccer without any problems. It has truly been a miracle.

Comment by Jennifer Longstreet on March 4, 2012 at 11:58pm: Again thank you all have not reach out untill now. Sorry for my anger

Comment by Jennifer Longstreet on March 4, 2012 at 11:57pm: O not my only child.....so i dont have mommy god syndrome. Just know that baseball has saved his life and they r trying to take it away.