Epilepsy Foundation

Natural Remedies for Epilepsy

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Natural Remedies for Epilepsy

Discuss possible natural alternatives to drugs treating epilepsy. This could include diet, vitamins, herbs, acupuncture, etc.

Members: 68
Latest Activity: Jun 26

Discussion Forum

Epilepsy and Celiacs

Started by Beth Collins. Last reply by Stephanie Simpson Aug 20, 2013. 3 Replies

I found this interesting article.  I wonder if it isn't worthwhile, especially in children, to be tested for Celiacs disease. …Continue

B6 vitamins

Started by Ms Miracle. Last reply by Jessica Robinson Apr 19, 2013. 9 Replies

Has anyone just took B6 Vitamins for their seizures and has been successful with it.Continue

Visiting a naturopath next week. Advice on what to ask

Started by Erica Jensen. Last reply by Erica Jensen Mar 22, 2013. 13 Replies

Hi.  My name is Erica.  My 6 yr old started having grand mal seizures last year & now my 15 yr old is doing the same.  I can't figure out what's going on.  We are visiting a naturopath next week…Continue

What do other Cultures do for Epilespy?

Started by jennifer key. Last reply by Craig Davis Dec 18, 2012. 1 Reply

In all my research, which we are continually doing.... our Holistic dr. told us yesterday that she heard but couldnt find out where, in India (somewhere) the practice of putting a tattoo  in a…Continue

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Comment by Pat Bruce on June 26, 2014 at 4:43pm

Hi, Jolly ! I am sorry no one ever answered you. I hope you are doing ok. Good luck with your meds. 

Comment by Jolly grace on April 25, 2013 at 6:02am

Hi everyone. My name is Jolly from the Philippines.I was diagnosed to have a seizure disorder when i was 19. Last February I had my MRI and it shows that the gray matter on my brain migrated on the other side of my brain why i have seizures.Specifically, subependymal  heterotopia and i need to take medications for life.Thank you so much for the great info and tips. I'm happy i am now a member of this group. God bless everyone.

Comment by kari faller on November 21, 2012 at 5:39pm

Hi Again Amber, I'm 50 honey, I've been at this for about 20 years but only have been on meds very recently because I am going through menopause and my seizures are caused by hormones, blood sugar fluctuations, sleep deprivation, and stress... most of all stress. I have never found a neurologist that helped me... I just did plenty of research and followed my heart and found a general practitioner who would listen to me. I can't take any of the anti-convusives because they make me so sick so in the end we figured out that a low dose of clonazepam settles my brain down enough that if I am careful I stay seizure free. I spent a lot of time learning about my aura and the pre-seizure signs. I still have bad days where I feel crappy but I know when to lay down, ice or heat my head and let go of whatever I am worried about. It isn't a perfect life, I still have days I am afraid to be alone or to swim but in the end I seem to have figured out a way around the actual seizure. Don't give up, the book I recommended is on Amazon if you want to order it. It is so supportive and if you follow all the steps and do the "homework" you will feel better. I found it 20 years ago and I still refer to it regularly to keep myself on track. Keep me posted sweetie,  xo kari

Comment by Amber on November 21, 2012 at 5:06pm

Dear Craig

Where and how did you gather this information. Did you hire a nutrition expert? thank you for your help.

Comment by Amber on November 21, 2012 at 5:00pm

Thanks Kari, I will get that book as soon as I am able. Right now Im trying to find and alternitive med doc that can help me become more harmonious with my E. Was this a step you have taken in your journey? Are you still on meds? When did you decide to totally stop taking you meds? I f you dont mind me asking.

 

Comment by Amber on November 18, 2012 at 12:47pm

Hi everyone my name is Amber and I believe that food and natrual herb can have a stronger effect than docs think.I have partial complex seizures for two yrs now and take the generic of keppra.But I am not very knowledgeable about natural healing. Any tips and or advice to share? THANK YOU.

Comment by Angie Coffman on November 4, 2012 at 8:19pm

Wow that is alot of information thank you so much.  My boss has been following the Kauffman diet and she said it has changed every aspect even just the food prep. itself is completely different.  The way she put it basically is if you didn't grow it you shouldn't put it in your mouth.  I haven't read the book yet but have been trying to find ways to help my daughter with her picky eating. 

Again, thank you so much for the information :)  God bless you in your journey.

 

Comment by Angie Coffman on November 4, 2012 at 11:33am

My daughter's teacher told her that he had a friend with seizures and he takes Super B complex and Ginko and it helps him.  Any thoughts or experiences with this or something different?  She is a super picky eater so she doesn't eat the best or drink enough water so I want her to get the supplements she needs just don't know what to get.  Her neurologist sent her for bloodwork and her thyroid levels and B-12 are fine.  Don't want to give her too much.

Comment by Mike on January 13, 2012 at 4:27pm

Wow Jennifer, that was a lot to read and assimilate must be tired, my eyes sure are.

One thing before I forget, I'm guessing our comments have been wandering afar from the title of this section, "Natural Remedies for Epilepsy" so to not hog them I'll just invite you to be a friend and we can stay in touch there for sure.  If you'd rather not, we can just keep on here.  If I forget in the next hours or days to invite you, please invite me, my short term memory got whacked pretty good by the viral encephalitis.

Oh, the other thing I remembered.  In the week or so before I went to the hospital with encephalitis I was having many seizures/day and didn't even have a clue what was happening.  Two nights of the 3 nights before I went in I woke up shivering like I had the flu and Judy took my temp., no fever on both occasions.  The day I drove to see my Dr., not having a clue something was seriously wrong the seizures were occurring round the clock at 15 minute intervals.  By the time I finally was sitting in front of my Dr., I was trying to explain what was going on and that these weird sensations were coming at exactly 15 minute intervals and looked at my watch and said, one will start in 20 seconds" and it did.  That is when it dawned on her that I was in deep doo-doo and she immediately sent me to the hospital next door for a spinal tap and many other tests, yippee!!!   Oh BTW, I drove myself to that Dr. appt., 45 min. from home but in retrospect, would NEVER do that again, I was a horrible mess and didn't have a clue, go figure.

God I feel for you Brad, sleep is so precious and necessary.  For you to have gone so long with yours screwed up reminds me of the time I went not knowing the encephalitis was melting my brain down and not getting to a Dr.  The misdiagnosis on your epilepsy for so long combined with lousy sleep would have sure left me in a sorry state.

Oh yeah, the head sensations, tingling and pressure, they come and go based on stress I think.  glad you mentioned the BRAIN STAB, I get what feels like a micro. lightening bolt hitting my brain at one tiny spot and it radiates out from there all told for about 2 seconds every once in a long while,  oh yeah, kinda makes you wince don't they?

The little girls have to be a pitch thing but they are the only example of pitch I have experienced that bothers me and lots of different, much louder volumes don't bother me at all.

Brad, are you an avid gardener?  I've been one for decades and got my degree in Horticulture.  Lately I've branched out (no pun intended) into growing apples, peaches and raspberries.  Most of my background before school and during was in vegetables and ornamentals, after school it was in vegetable crops research.

That stinks not having  clue when your seizures are coming, I'm lucky to have the auras first, strange as they are.

I understand the reluctance to hop back on the computer after staring at one all day.  In 1989 I had the opportunity to take free HTML classes but turned them down because I too sat in front of one of those old EGA screens all day and it fried my eyes on a daily basis.  Mind you, at the time it was obvious to me that learning HTML would have possibly opened many lucrative doors for me down the road.  Oh well, that's life, funny how something like sore eyes can make a huge difference in one's life further down the road.

Comment by jennifer key on January 13, 2012 at 12:01pm

Mike, yes, Brad most definately has them in his sleep, he usally sleeps through them, that is why he was "diagnosed" with a sleeping disorder 12-13 years ago....most likely always epilepsy! argh!!!!  so then goes the story, due to not getting into REM sleep very often depression ect, that is why he was on antidepressants and anti anxieties, now knowing what we know, that lights and noise ect are effecting him, that is how he was poseing his symptoms with the wrong drugs in his system!!!  a long road we have been on, at least now we are working on the right one, at least we think for now.  Quite possibly the Lamicatal could have done a "quick fix" for you, how great would that be! ya!  it did really help brad, but we are just trying depakote at this time.  His seizures have really changed lately were he wanders around more walks and fidgets, still sits and has them but seeing changes, it is what it is...

so glad you said something about your head sensations brad has been having more of something lately they are different, fuzziness, maybe your pressure feeling stuff, and sometimes the BRAIN STAB, he doesnt like that!

so he gets what you say about the 7 year old girl scream noise, we have 9 and 5 year old boys, and they arent as high pitched but i'll say it can get to me without seizures!  heeheee 

a backhoe, i dont think brad could do that noise, we have a tractor, i have done most of the tractor work the past year since we have been figuring things out, more that i'm afraid he'll run into our pasture fence and we will have to run around getting our 3 horses!  that stresses me out, he can do the garden and that is about it, we will see in time:) 

I wish he had a sign that he knew when he had seizures, he has them so very often sometimes it is hard to know when they are happening due to the low cognition, foggy, fuzzy after seizure stuff that all goes with it, sometimes more than others. 

He is on a list for a dog i think i said that, that will make it much less stressful for me and our boys to leave "daddy" and go somewhere, we have great neighbors but he still needs to know he can do things, and has been having battles with will he be able to do his job at the work place, meaning building, he will only start one day a week and see how it goes but not for a month or so, we have a dr. appt our first one with the the nerologist since diagnosis, so it will be good, next wed! cant wait! our list of questions is SO LONG! hoping the answers to all of them wont be we'll have to wait and see or i dont know everyone is different.  this dr. is good, we like him he is open and knows we try things, after the medicine works good we will introduce some acupuncture and who knows what else and see if it helps. little steps it what we do. 

Brad had a few questions for you, he is going to eventually get on the computer and post something, just after working on a computer all day he doenst always want to site more and type at the end of the day after playing with our boys and the noise his brain is a bit scrambled, he knows everyone here understands that!

the country roads are bad for brad because i think the turny twistiness gets to him and then at night if there are headlights they are really in your eyes.  Found out that when snow is on the ground he wears sunglasses all the time! 

Im going to have brad answer your lamital question for himself..... then i'll give you my 2 cents, it did really help him.  keep in mind he didnt know he had seizures at this time, and was dianosed with depression and sleeping disorder,craziness!  it helped tremdously with the depression, he had to switch off one and needed something so he started lamitcal he was on it for at least 4 or 5 years, on some other really bad stuff too, he feels great off of them, and depression is not around at all, it is fabulous, so he was truly misdiagnosed and on teh wrong medications! the past year has really made our not so foundness of medical doctors grow even more, i know you need some and a we use a mix of medical and non medical but certainly trust the non medical the most.

happy no siezure day to you!  just putting that out there, i dont want anymore in our household today, i think we've had enough, it think one is going to happen soon, our dog is next to him.

Jenny

 

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