Epilepsy Foundation

My Spouse has Epilepsy

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My Spouse has Epilepsy

A place for those of us who are married to a person with epilepsy. Our lives are greatly affected as well by this disease and this is our place to find support and an opportunity to 'vent'.

Members: 110
Latest Activity: Jul 7

Discussion Forum

Mood Altering effects of Epilepsy Medications

Started by Terry Hackworth. Last reply by denise gordon Jan 30. 26 Replies

Does anyone else out there have trouble dealing with mood altering effects of their spouses medications? My husband is often so irritable that it is difficult to live with him. I sometimes feel…Continue

Changing medication?

Started by Lauren K. Last reply by Concerned Spouse Jan 15. 6 Replies

My husband's neurologist wants him to switch to brand name Keppra from generic. He had 3 years of success with one form of the generic, not as much with the second. I know there is a huge risk of the…Continue

is there a way to figure out if a relapse is likely?

Started by Concerned Spouse Jan 15. 0 Replies

Hi all.New to this site. My husband just started experiencing seizures 10/2013. He is 48 years old.  He was transferred to the local teaching hospital because he was in status and the community…Continue

Tags: vimpat, undiagnosed, seizures, tompomax, keppra

Does living with someone with Epilepsy make your feelings change toward them?

Started by Tammi Zavardino. Last reply by Tammi Zavardino Oct 3, 2013. 24 Replies

I have Epilepsy my seizures are usually controlled but when I do have one I don't remember what has happened, how long it was ect... My first husband left me when I became pregnant and I didn't go…Continue

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Comment by Laday on May 1, 2014 at 12:00pm
My husband's seizures are out of control. The problem is, he's one of those people who appears completely lucid post ictal, so there's nothing I can do when he refuses medical treatment, even when he suffers head injuries as a result of a seizure.
No one helps. I believe he's going to die. I don't know how to help anymore.
Comment by Leslie Robbins on January 8, 2014 at 2:48pm

My husband developed left temporal seizures (grand mal/tonic-clonic) when he was 13.  He is now 45.  He has been on medication since then and has had pretty good control, although he has had break through seizures over the years.  This October was the 1st time he has status epileptus and was hosptilazed in the ICU on a respirator after have 7 consecutive seizures.  He was able to come home after 8 days and went back to work after 5 weeeks.  Then, on December 27th, he experienced another episode of staus epilepticus, having 4 seizures in a row, and requiring him to again be put on a respirator in the ICU.

I completely understand the PTSD references.  When I try to explain how I feel to people, that's exactly the phrase I use.  Sometimes, my husband will make a noise or facial expression that replicates something he does when he has a seizure and it FREAKS ME OUT!  I know he can help it, esp. since he has no idea what he looks/sounds like while he's seizing!

This has been very traumatic for my whole family, esp. our 2 children.  His neurologists want him to explore surgical options, removing the affected portion of the brain.  I really don't know what to do- we are filled w/stress and worry about brain surgery, finances, etc.  And that is not good for him either!

Comment by Matt Johnson on January 6, 2014 at 4:36am

my wife and I have been married for a year and half and have known each other for 5 years total( dated/married 3 of them) anyway, knew she had seizures can't work bc of her epilepsy and it didn't bother me till we had our little girl 13 weeks ago. she had 2 mini seizures the week leading up to the doctors inducing her but other than that a normal pregnancy. 2 days before christmas she had a pretty big seizure that put her in the hospital just about all day and literally tonight( exactly 2 weeks later) she has had 2 silent seizures and a mini seizure. its 3:24am and they started at 11:45pm. I love my wife but right now im just needing some support because I feel like im doing this on my own. just like right now im literally 2 hrs from having to get up for work and Im torn between calling in( I work at large retailer) or going to work. obviously no one understands until they are pout in this situation, I've even went to hr and checked to see if there was fmla or something that would cover absences when it involves her seizures bc of the baby but they tell me since its not something that can be predicted I have no choice but to take the consequences of calling in which means that I could lose my job if I must take off bc you get points and once you hit a certain number you get " coached" and eventually terminated. plus our one car is acting up and im just under a lot right now,  but I digress, I know this sounds bad but im afraid I may start resenting my wife for something that obviously she has no control over. I usually wake up in the night and check on her and the baby multiple times a night but shes also wanting to plan a trip to Disney for when our daughter turns  7 ( 6 years from now) but I don't see how we can do this with her epilepsy

Comment by Tammi Zavardino on October 6, 2013 at 9:59pm

Jessica you must love your husband very much but what is going on with him is very hard to handle at times and you probably wish things were different but it would be a lot lonelier without him. I don't know much about the brain surgery but if he needs it than look into it and you could see a big change in your lives.

Comment by Tammi Zavardino on August 29, 2013 at 12:17pm

Roe you have to reason with her and make her see she is not thinking right and that coming off her medicines would be a big mistake and that you don't want to lose her. We have all been down that long road and it is frustrating but if she has someone who loves her and lets her know it make her understand she has something to live for!!!

Comment by Tammi Zavardino on December 27, 2012 at 3:48pm

Melissa my best information or advice to give you is he has got to get rid of the stress in his life or the seizure activity will not quit. No medicine is going to control that completly he has to. And I know it is rough but you can help by not getting upset. Help him get his stress under control and you will see a big difference.

Comment by Tammi Zavardino on November 7, 2012 at 11:26pm

Crystal I know it is scary but in the long run your child will be stronger growing up around this and will be able to help others understand and wont tease others because she or he will understand and want to help others understand. I know because my son is that way and I worried too but he has been great and who knows maybe your husband will be better by the time the baby arrives. Keep the faith and you will go far.

Comment by jennifer key on November 2, 2012 at 1:46pm

oh, he was Super Seizure Dog for Halloween!

Comment by jennifer key on November 2, 2012 at 1:45pm

Brad got Hank!  LOVE HIM!  Hank is a seizure response dog, he will stay/go with Brad, my husband, it is going to take so much stress and worry off of me (and our sons).  We went to meet Hank last week and were able to take him home with us for a few months, he is only 5 month old so still has much to learn but very very calm, and already knows to stay with Brad!  he is starting to pick on i think pre-seizure stuff, which can happen in time.... unfortuntely he gets diahrea! yikes, its all ok, he sill mature and learn how to handle and what to do with what he senses, until feb. they are just to bond, then he goes back for fine tune training, back with Brad by end of summer, it will be hard to let him go, but knowing how much he is already helping is so much fun to watch, he is our hope right now!

Comment by Debbie Kelly on October 27, 2012 at 9:08pm

Hi,
I'm new the group and was wondering what experiences
have other had after having siezure resection surgery.  Last year my husband had surgery to remove a seizure focus to help stop his multiple seizures he was having regularly.  The surgeonand neurolgist both considered this surgery a success, however I have to wonder at what cost.  He still has seizures (although much less frequently), has short-tem memory loss and the surgery has greatly impacted his executive functioning area of the brain. He's not been able to work for almost three years and hasn't driven in five.  In fact this year he actually was not able to renew his license.  My husband also teds to be a Meningioma tumor producer which relly doesn't help. Needless to say I have to wonder just how successful this surgery really was and at what cost. Anybody have any experience in this area?

 

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