Epilepsy Foundation

Living Well With Epilepsy


Living Well With Epilepsy

For those of us interested in living well- physically, mentally and emotionally.  A place to talk about the joys in life, as well as physical and mental well-being.


Members: 767
Latest Activity: Aug 22

Discussion Forum

Epilepsy Symptoms

Started by Deborah Dingess. Last reply by Deborah Dingess Aug 5. 10 Replies

Hello. I've had two grand mal seizures and have an appointment scheduled for January 15th where I will find out results from my EEG and meet with a neurologist. I've had a CT scan and blood work, which came back normal. I've researched to tried to…Continue

Generic Meds caused many side effects with me. Now on Brand Name only !

Started by Rob Leverenz. Last reply by Tammi Zavardino Jun 23. 2 Replies

My neurologist noticed that was always tired shaky, and unsteady when on generic (Dilantin)Since those changes I'm feeling so much better. I used to have dry itchy eyes, always felt tired, and shaky. Since my changes in December I feel so much…Continue

Epileptologist said I'm not allergic to any meds because I just itch like crazy!!!!!

Started by Belinda sarah Brown. Last reply by Timothy Davis Jun 14. 22 Replies

I have severe itching and my neurologist   says I'm allergic to Lamictal,Keppra,Gabitril,Depakote, and Vimpat.When this doc said this I looked it up on line and on the Mayo clinic  web site it says that itching is an allergic reaction.I guess this…Continue

pretend it's not a seizure

Started by Melissa. Last reply by Timothy Davis Jun 14. 22 Replies

I have a trick.  It may just work. An aura is happening, like it does.  I have the sensation of this has already happened.  I know what he’s about to say, yes, he’s said it. I’m having a seizure, he doesn't notice that I am having one.  I feel my…Continue

Tags: aura

Comment Wall


You need to be a member of Living Well With Epilepsy to add comments!

Comment by Julie Thompson on February 8, 2012 at 11:29pm

A lot of antibiotics don't work for me anymore and I have a team of specialist around me all the time they have told me the best thing you can do for a sinus infection is to stand over a pot of boiling water and let the steam clear it out, but it is hard to do, but it is affective. I hope you get to feeling better

Comment by Susan Sleeper on February 8, 2012 at 10:38pm

Has anyone ever heard anything about thyroid problems or low blood pressure bringing on seizures?

Comment by bryan shane moore on February 8, 2012 at 10:24pm
How r yall doing tonight
Comment by Carlton Zeigler on February 7, 2012 at 9:59pm

I am glad that my doctor took me off the Keppra.

Comment by bryan shane moore on February 7, 2012 at 9:10pm
I no that iv been on keepra i had a lot of sez on it to k
Comment by Brandy on February 7, 2012 at 6:39pm

Keppra has been doing well for me. I am having fewer and fewer issues as time goes on with this med. I am having very few side affects at this point. I'm kind of excited but fewer isn't zero.

Comment by bryan shane moore on February 7, 2012 at 5:21pm
I no that man it suck when that happenss
Comment by Carlton Zeigler on February 6, 2012 at 11:33pm


I am like that as well.  I have high seizure activity days, and low seizure activity days.

Comment by bryan shane moore on February 6, 2012 at 9:26pm
Been having a lot of sez in the past to days
Comment by Carlton Zeigler on February 6, 2012 at 6:16pm


The disorientation is rough to endure.


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