Epilepsy Foundation

Living Well With Epilepsy

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Living Well With Epilepsy

For those of us interested in living well- physically, mentally and emotionally.  A place to talk about the joys in life, as well as physical and mental well-being.

 

Members: 653
Latest Activity: 2 hours ago

Discussion Forum

Epilepsy monitoring

Started by Melissa Williams. Last reply by Terrance Lee Fields on Thursday. 23 Replies

Has anyone ever been admitted to the hospital for epilepsy monitoring?  My husband is scheduled to go in next week.  We are being told that they will hook him up to an EEG and then try to provoke seizures by flashing lights, sleep deprivation and…Continue

advice on driving, school, and working

Started by nicole mead. Last reply by lavegan248 May 18. 11 Replies

hi everybody, im new to this site and this seems like the best place for advice, because I don't know anyone else with epilepsy and have spent my whole life feeling alone in dealing with all the ups and downs that come along with having do deal with…Continue

does your story relate to mine ?

Started by christian tapia. Last reply by Thia May May 17. 14 Replies

 Hey group members         It has been almost 2 years that i had my first an last seizure. I was put on keppra right away after being diagnose with epilepsy in my left temporal lobe and was on 1000mg in the morning and 500mg in the afternoon, then i…Continue

My son stopped meds!

Started by Annette Davis. Last reply by Annette Davis Apr 29. 8 Replies

My 18 year old decided to stop his Lamictal cold turkey. He had two tonic-clonics yesterday because of it. I learned he had been off of his meds for four days! Anyhow my question is this. How long does it take for Lamictal to build up in one's…Continue

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Comment by bryan shane moore on February 13, 2012 at 7:55pm
Denise this is true k
Comment by bryan shane moore on February 13, 2012 at 7:54pm
Man that bad my body and sez. Just get use to the medc. My sez.just break out the medss dont work they take me off of it k
Comment by Carlton Zeigler on February 13, 2012 at 6:51pm

Denise

I endured the irregular sleep patterns while taking Keppra.  When the kidney damage showed up, my doctor took me off of it rather quickly.

Comment by Denise M Ray on February 13, 2012 at 6:16pm

Hi, everyone!  I take Keppra and topomax.  Recently, I have noticed a change in my sleep patterns (sometimes I sleep too much and sometimes I do not sleep at all). I also seem to be having more more mood swings as well.  Can the medication cause these kind of side effects? 

Comment by bryan shane moore on February 12, 2012 at 9:20pm
Pollaarz lens ok
Comment by kevin teen on February 11, 2012 at 2:48pm

Hello Everyone, It's me kevin. How is everybody ? Doing well I hope. It has been a while since I left my last post. Good news I will be receiving ssdi benefits in a few weeks. That will help pay for rent and other things like medicine. God Bless, Kevin

Comment by Carlton Zeigler on February 9, 2012 at 9:17pm

Kathy

I used Lyrica for a short time.  One of the listed side effects hit me so badly, that my doctor told me to stop taking it after just three months.

Comment by kathy on February 9, 2012 at 7:42pm

Hello, this is Kathy Adams. I was wondering if anyone is taking Lyrica for their seizure disorder. I am having a bad side effect for Lyrica. I was wondering if anyone else was having problems with it. I didn't know that Lyrica was also for seizures. Please answer me back. Thank you

Comment by Julie Thompson on February 8, 2012 at 11:29pm

A lot of antibiotics don't work for me anymore and I have a team of specialist around me all the time they have told me the best thing you can do for a sinus infection is to stand over a pot of boiling water and let the steam clear it out, but it is hard to do, but it is affective. I hope you get to feeling better

Comment by Susan Sleeper on February 8, 2012 at 10:38pm

Has anyone ever heard anything about thyroid problems or low blood pressure bringing on seizures?

 

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