Epilepsy Foundation

Living Well With Epilepsy


Living Well With Epilepsy

For those of us interested in living well- physically, mentally and emotionally.  A place to talk about the joys in life, as well as physical and mental well-being.


Members: 775
Latest Activity: May 5

Discussion Forum

Learning and growing with epilepsy

Started by Mandi Weberski. Last reply by veronique brito May 5. 33 Replies

Hello, I am new to everything! My daughter was diagnosed with epilepsy this week after a year long battle of trying to find out what was wrong with her. This process has been so emotional and exhausting that when the doctor called to tell me her mri…Continue

pretend it's not a seizure

Started by Melissa. Last reply by Suri Mar 26. 23 Replies

I have a trick.  It may just work. An aura is happening, like it does.  I have the sensation of this has already happened.  I know what he’s about to say, yes, he’s said it. I’m having a seizure, he doesn't notice that I am having one.  I feel my…Continue

Tags: aura

Assisant Dogs

Started by Whitley Joachim. Last reply by Whitley Joachim Jan 18. 13 Replies

Hi!Recently, I was diagnosed with anxiety and depression, and it has manifested itself into panic attacks, which terrifies me because now I don't only have seizures but also panic attacks, and this feeling of lack of control.  The treatment is…Continue

Not sure it's a seizure

Started by Julie McRight. Last reply by Jessica W Jan 15. 20 Replies

I am coming off of keppra and going on Lamictal. Since changing meds, I have been having some "episodes". They usually (but not always) happen in late afternoon. I get a little dizzy and get this warm feeling all over. Sometime break out in a sweat.…Continue

Comment Wall


You need to be a member of Living Well With Epilepsy to add comments!

Comment by bryan shane moore on February 13, 2012 at 7:54pm
Man that bad my body and sez. Just get use to the medc. My sez.just break out the medss dont work they take me off of it k
Comment by Carlton Zeigler on February 13, 2012 at 6:51pm


I endured the irregular sleep patterns while taking Keppra.  When the kidney damage showed up, my doctor took me off of it rather quickly.

Comment by Denise M Ray on February 13, 2012 at 6:16pm

Hi, everyone!  I take Keppra and topomax.  Recently, I have noticed a change in my sleep patterns (sometimes I sleep too much and sometimes I do not sleep at all). I also seem to be having more more mood swings as well.  Can the medication cause these kind of side effects? 

Comment by bryan shane moore on February 12, 2012 at 9:20pm
Pollaarz lens ok
Comment by kevin teen on February 11, 2012 at 2:48pm

Hello Everyone, It's me kevin. How is everybody ? Doing well I hope. It has been a while since I left my last post. Good news I will be receiving ssdi benefits in a few weeks. That will help pay for rent and other things like medicine. God Bless, Kevin

Comment by Carlton Zeigler on February 9, 2012 at 9:17pm


I used Lyrica for a short time.  One of the listed side effects hit me so badly, that my doctor told me to stop taking it after just three months.

Comment by kathy on February 9, 2012 at 7:42pm

Hello, this is Kathy Adams. I was wondering if anyone is taking Lyrica for their seizure disorder. I am having a bad side effect for Lyrica. I was wondering if anyone else was having problems with it. I didn't know that Lyrica was also for seizures. Please answer me back. Thank you

Comment by Julie Thompson on February 8, 2012 at 11:29pm

A lot of antibiotics don't work for me anymore and I have a team of specialist around me all the time they have told me the best thing you can do for a sinus infection is to stand over a pot of boiling water and let the steam clear it out, but it is hard to do, but it is affective. I hope you get to feeling better

Comment by Susan Sleeper on February 8, 2012 at 10:38pm

Has anyone ever heard anything about thyroid problems or low blood pressure bringing on seizures?

Comment by bryan shane moore on February 8, 2012 at 10:24pm
How r yall doing tonight

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