Epilepsy Foundation

Living Well With Epilepsy


Living Well With Epilepsy

For those of us interested in living well- physically, mentally and emotionally.  A place to talk about the joys in life, as well as physical and mental well-being.


Members: 775
Latest Activity: Sep 22

Discussion Forum

Not sure it's a seizure

Started by Julie McRight. Last reply by Julie McRight Jul 29. 19 Replies

I am coming off of keppra and going on Lamictal. Since changing meds, I have been having some "episodes". They usually (but not always) happen in late afternoon. I get a little dizzy and get this warm feeling all over. Sometime break out in a sweat.…Continue

Tuff Days

Started by Leslie's dad. Last reply by carey Jul 29. 17 Replies

Dear Community,I have posted on here on and off since 2009! It's been a long road.I am not personally suffering from E, it is my now 20 year old DD that has it.I just want to say to all of you how much I admire your courage and perseverance in the…Continue

Assisant Dogs

Started by Whitley Joachim. Last reply by Brooke Mar 8. 10 Replies

Hi!Recently, I was diagnosed with anxiety and depression, and it has manifested itself into panic attacks, which terrifies me because now I don't only have seizures but also panic attacks, and this feeling of lack of control.  The treatment is…Continue

Epileptologist said I'm not allergic to any meds because I just itch like crazy!!!!!

Started by Belinda sarah Brown. Last reply by Brooke Mar 4. 24 Replies

I have severe itching and my neurologist   says I'm allergic to Lamictal,Keppra,Gabitril,Depakote, and Vimpat.When this doc said this I looked it up on line and on the Mayo clinic  web site it says that itching is an allergic reaction.I guess this…Continue

Comment Wall


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Comment by Carlton Zeigler on February 9, 2012 at 9:17pm


I used Lyrica for a short time.  One of the listed side effects hit me so badly, that my doctor told me to stop taking it after just three months.

Comment by kathy on February 9, 2012 at 7:42pm

Hello, this is Kathy Adams. I was wondering if anyone is taking Lyrica for their seizure disorder. I am having a bad side effect for Lyrica. I was wondering if anyone else was having problems with it. I didn't know that Lyrica was also for seizures. Please answer me back. Thank you

Comment by Julie Thompson on February 8, 2012 at 11:29pm

A lot of antibiotics don't work for me anymore and I have a team of specialist around me all the time they have told me the best thing you can do for a sinus infection is to stand over a pot of boiling water and let the steam clear it out, but it is hard to do, but it is affective. I hope you get to feeling better

Comment by Susan Sleeper on February 8, 2012 at 10:38pm

Has anyone ever heard anything about thyroid problems or low blood pressure bringing on seizures?

Comment by bryan shane moore on February 8, 2012 at 10:24pm
How r yall doing tonight
Comment by Carlton Zeigler on February 7, 2012 at 9:59pm

I am glad that my doctor took me off the Keppra.

Comment by bryan shane moore on February 7, 2012 at 9:10pm
I no that iv been on keepra i had a lot of sez on it to k
Comment by Brandy on February 7, 2012 at 6:39pm

Keppra has been doing well for me. I am having fewer and fewer issues as time goes on with this med. I am having very few side affects at this point. I'm kind of excited but fewer isn't zero.

Comment by bryan shane moore on February 7, 2012 at 5:21pm
I no that man it suck when that happenss
Comment by Carlton Zeigler on February 6, 2012 at 11:33pm


I am like that as well.  I have high seizure activity days, and low seizure activity days.


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