Epilepsy Foundation

Living Well With Epilepsy


Living Well With Epilepsy

For those of us interested in living well- physically, mentally and emotionally.  A place to talk about the joys in life, as well as physical and mental well-being.


Members: 765
Latest Activity: Apr 4

Discussion Forum

How would you feel if you knew someone was driving with epilepsy that shouldn't?

Started by Belinda sarah Brown. Last reply by Art Apr 1. 127 Replies

Hello everyone,I ask this because I have a neighbor who  was diagnosed with epilepsy in July and you have to go 6 months seizure free in the state I live before you can drive again.I know she's driving because I thought she was and one day I saw her…Continue

pretend it's not a seizure

Started by Melissa. Last reply by Nancy Young Apr 1. 21 Replies

I have a trick.  It may just work. An aura is happening, like it does.  I have the sensation of this has already happened.  I know what he’s about to say, yes, he’s said it. I’m having a seizure, he doesn't notice that I am having one.  I feel my…Continue

Tags: aura

I think weather can effect or affect how a seizure is when of....

Started by Eugina G Herrera. Last reply by Eugina G Herrera Mar 25. 17 Replies

  WEATHER:  I think can effect how our seizure's triggers from different backgrounds (the lighting).   Triggered from lights and clouds in comparison when we are composing on our computer.  The weather effects me when I see clouds it brings on an…Continue

Epileptologist said I'm not allergic to any meds because I just itch like crazy!!!!!

Started by Belinda sarah Brown. Last reply by Suzanne Porter Mar 15. 23 Replies

I have severe itching and my neurologist   says I'm allergic to Lamictal,Keppra,Gabitril,Depakote, and Vimpat.When this doc said this I looked it up on line and on the Mayo clinic  web site it says that itching is an allergic reaction.I guess this…Continue

Comment Wall


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Comment by RANDY SHERMAN on April 4, 2014 at 6:10pm

Hi Danielle, 

is it everything i mention or certain ones ?   

Comment by Danielle Lynn Isaacs on April 4, 2014 at 1:23pm

Wow Randy, I do the same thing!!!

Comment by RANDY SHERMAN on April 4, 2014 at 2:37am

Hi Eugina,

I never experienced the zapping sensation , but I understand alot about the trembling , feeling drained and exhausted . Even feeling confused. I have complex partial seizures and I have petti mals seizures. It's normal for any of these to hspprn after having onr ore more spells. Most of the time, I don't  know when I have a spell . Unless my fmily anr/or friends witnessed me having one. The only way I do know , when having a spell is when or if I do tremble or feel drowsy. Especially if I was feeling wide awake before that. Many times I have been confused when Something gets moved away from me . For example I would be on my computer and I would go into a spell , not knowing that I did , then I would come out of it. I would be a little confused , when not too long go my computer was on my lap , and I see it a few feet away from me . Then a fmily member or friend would explain why my computer ws moved.      

Comment by Eugina G Herrera on April 3, 2014 at 9:10am

Any feedback would be appreciated.

Thank you.

Comment by Eugina G Herrera on April 3, 2014 at 9:04am

Good Morning E-verybody!

 Back to the point. Having many absence seizure's while asleep. Never had any for over since childhood and adulthood.  Not anxiety, stress, tension.  Thank G-d, didn't have the huge one, g-mal.  Since this year 2014 have been having many absence seizure's follow by zapping behind my ear and neck,  Has left me very confused follow by absence seizure's. Not in my head, do know i'm making sense.  More of electric harassment (zapping) also related this topic to my rite aid pharmaceutical (Ragaa), very confused after my power walk.  Never had this during childhood and adulthood years.  Started this year of 2014 (zapping and electricity behind my ear and neck), some people would be very shock to hear news when hearing my right hand during composing on computer started to tremble. Keep in mind I don't (drink alcohol, Not under influence of drugs and not a smoker). Not side effects.  This is all news and very new to me.  Never had this happened before.  Never did i have absence or and seizure's while asleep to awaken with gums bitten inside, persistent headaches, and very depleted.  As though something or someone has left me drained from my energy. 

Will continue supporting and helping with my knowledge (sz's disorders) and moving forward 4ver Sz Free!

Would like to know, has anyone here have had similar after many years not having one.  Anyone?  ) - :

~Eugina       ( :  Moving forward with my strong will and faith always Sz Free!

Comment by Danielle Lynn Isaacs on March 28, 2014 at 1:18pm

I am on tegretrol and lyrica now :)

Comment by Danielle Lynn Isaacs on March 28, 2014 at 1:17pm

Thanks Sam!!!

Comment by Sam Inglese on March 28, 2014 at 12:58pm

No issues for me, but I suspect the Caffeine may be making issues with one or more of your meds

Comment by Danielle Lynn Isaacs on March 28, 2014 at 12:18pm

Guess I should shy away from it then, normally I'm not a big chocolate eater but the truffles were calling me this morning. Thanks Monica!!!!

Comment by Monica Bernstein on March 28, 2014 at 12:13pm


I believe caffeine can be a trigger for some people and chocolate has caffeine.


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