Epilepsy Foundation

Living Well With Epilepsy


Living Well With Epilepsy

For those of us interested in living well- physically, mentally and emotionally.  A place to talk about the joys in life, as well as physical and mental well-being.


Members: 775
Latest Activity: Sep 22

Discussion Forum

Not sure it's a seizure

Started by Julie McRight. Last reply by Julie McRight Jul 29. 19 Replies

I am coming off of keppra and going on Lamictal. Since changing meds, I have been having some "episodes". They usually (but not always) happen in late afternoon. I get a little dizzy and get this warm feeling all over. Sometime break out in a sweat.…Continue

Tuff Days

Started by Leslie's dad. Last reply by carey Jul 29. 17 Replies

Dear Community,I have posted on here on and off since 2009! It's been a long road.I am not personally suffering from E, it is my now 20 year old DD that has it.I just want to say to all of you how much I admire your courage and perseverance in the…Continue

Assisant Dogs

Started by Whitley Joachim. Last reply by Brooke Mar 8. 10 Replies

Hi!Recently, I was diagnosed with anxiety and depression, and it has manifested itself into panic attacks, which terrifies me because now I don't only have seizures but also panic attacks, and this feeling of lack of control.  The treatment is…Continue

Epileptologist said I'm not allergic to any meds because I just itch like crazy!!!!!

Started by Belinda sarah Brown. Last reply by Brooke Mar 4. 24 Replies

I have severe itching and my neurologist   says I'm allergic to Lamictal,Keppra,Gabitril,Depakote, and Vimpat.When this doc said this I looked it up on line and on the Mayo clinic  web site it says that itching is an allergic reaction.I guess this…Continue

Comment Wall


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Comment by veronique brito on September 22, 2015 at 10:05am

spent the day checking out insurances yesterday. what kind of insurances to you guys have that work for you?

Comment by carey on July 29, 2015 at 2:22am

I love reading this it shows how smart all of you are and how much all of you pay attention!!!

Comment by Erica Barker on July 15, 2015 at 1:12pm

Today is my first GM in around 5-7 months. Was a bad one but for me and my seizures lately is a long time. Feeling good otherwise.

Comment by Kay Irving Kramer on May 31, 2015 at 11:35am

it's arrythmia, with occasional skipped beats.  EKG can pick it up, as can stress test.

Comment by Monica Bernstein on May 30, 2015 at 11:44pm


My aura is intense fear. So, I will feel fear for no reason. It's a physiological symptom of my seizures--simple partial and complex partial. Sometimes, the feeling will last throughout the day. It's not psychological. It's physical. Maybe, what you have is similar.

Comment by Kevin McClure on May 30, 2015 at 11:30pm

Erica ....... What ????????????

Comment by Erica Barker on May 30, 2015 at 10:41pm

One thing I think it could be is the thing with your heart were it can skip a beat and/or beat too hard. And the bad thing is is that it doesn't have to be from health/heart problems. This runs in my family. But I may think about it if it happens again. And say how I felt earlier was bad (which it was) now it's around a say 2 or 3. BUT I STILL FEEL it. It's like I'm lonely and yet I'm happy with just my dog. Do any of you feel like you're lonely but know you're happy/just fine? And no seizure/aura is the same.

Comment by Kay Irving Kramer on May 30, 2015 at 9:32pm

One thing I noticed was a dip or raise in my blood pressure. The doctor suggested I get a monitor and it told us a lot.

Comment by Erica Barker on May 30, 2015 at 8:26pm

Do any of you get a nervous/anxious/scared like feeling just any time or anywhere? Say it only lasts 2 or 3 hours and then it's gone. Maybe it's an aura?

Comment by Kay Irving Kramer on May 28, 2015 at 10:14am

Tammi, your right, because the generic medicines all use different fillers with their mandated medicines; that's why they are cheaper.  Also, I disagree with Kevin about muscle activity.  In a seizure your tonic and clonic parts of it are controlled by the brain.  Muscle actvity is also detectable on EEG's and MRI's. This happens with MS, Parkinsons and so on.  Your muscle use like throwing a baseball is different.


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