Epilepsy Foundation

Living Well With Epilepsy


Living Well With Epilepsy

For those of us interested in living well- physically, mentally and emotionally.  A place to talk about the joys in life, as well as physical and mental well-being.


Members: 767
Latest Activity: Aug 22

Discussion Forum

Epilepsy Symptoms

Started by Deborah Dingess. Last reply by Deborah Dingess Aug 5. 10 Replies

Hello. I've had two grand mal seizures and have an appointment scheduled for January 15th where I will find out results from my EEG and meet with a neurologist. I've had a CT scan and blood work, which came back normal. I've researched to tried to…Continue

Generic Meds caused many side effects with me. Now on Brand Name only !

Started by Rob Leverenz. Last reply by Tammi Zavardino Jun 23. 2 Replies

My neurologist noticed that was always tired shaky, and unsteady when on generic (Dilantin)Since those changes I'm feeling so much better. I used to have dry itchy eyes, always felt tired, and shaky. Since my changes in December I feel so much…Continue

Epileptologist said I'm not allergic to any meds because I just itch like crazy!!!!!

Started by Belinda sarah Brown. Last reply by Timothy Davis Jun 14. 22 Replies

I have severe itching and my neurologist   says I'm allergic to Lamictal,Keppra,Gabitril,Depakote, and Vimpat.When this doc said this I looked it up on line and on the Mayo clinic  web site it says that itching is an allergic reaction.I guess this…Continue

pretend it's not a seizure

Started by Melissa. Last reply by Timothy Davis Jun 14. 22 Replies

I have a trick.  It may just work. An aura is happening, like it does.  I have the sensation of this has already happened.  I know what he’s about to say, yes, he’s said it. I’m having a seizure, he doesn't notice that I am having one.  I feel my…Continue

Tags: aura

Comment Wall


You need to be a member of Living Well With Epilepsy to add comments!

Comment by Tammi Zavardino on June 29, 2014 at 2:12am

Thanks all for your kind thoughts but I was pretty much alone when I met her and she became such a good friend that it is taking a much longer time to get over this and the seizure activity has been increased since so I went to the doctor and had my medication for depression increased and am doing better. I just feel so lost. But things will get better I know.

Comment by Monica Bernstein on June 23, 2014 at 10:15am


Sorry about your loss.

Comment by Tammi Zavardino on June 23, 2014 at 12:15am

Some people don't have aura's or any feelings to tell them a seizure is going to happen and that is what I go through and its frustrating but there is nothing I can do but live with it. I know afterwards that something happened but would rather know ahead of time so I could do something to stop it since I have the Vagus nerve stimulator but can't use the magnet if I don't know when a seizure is going to happen. I usually know if I am very upset or stressed that later on I will have a seizure at some point and was not suprized here lately that I have had a few since I have been so upset by losing a good friend. I am now a lone and its really hard for me but am trying to stay strong.

Comment by Kevin McClure on June 14, 2014 at 11:53am

  I would agree with you Kay. If she drops things, falls and blacks out. I would say she is having a seizure . Not an aura . Because that is what I do when I have a seizure.

Comment by Kay Irving Kramer on June 14, 2014 at 11:40am

Valerie, I agree that we and our systems are all different.

However, if you have that feeling most of the day, "I would as your neurologist to check your blood levels to see if your seizures are under control, or if these things might be a type of seizure?"

Comment by Josh Ledbetter on June 14, 2014 at 9:51am

Valerie, I agree that it might vary with the individual.  I will have a warning that lasts a short time and I know that I'm okay. Then when they stay with me for a long period I know I'm going to have a seizure.

Comment by Amy on June 14, 2014 at 2:43am

My daughter's auras are simple partial seizures (usually in isolation). If she has them before a complex partial, there is no way to know as she has no memory of it. There is some kind of longer prodrome our daughter can exhibit. Maybe Valerie is very in tune with her body but maybe her use of the word aura/warning is broader than commonly used.

Comment by Valerie Morrison on June 14, 2014 at 2:32am

Kevin it might vary with the individual. We're all unique. What works for me but might not work for someone else. My warnings can come on and stay with me most of the day. If i ignore them and keep going I will have a seizure several hours after the warnings start. I have learned to stop ignoring them.




Comment by Kevin McClure on June 13, 2014 at 9:34pm

Valerie, One thing I will have to disagree with is. Most auras happen immediately before a seizure. Medicine takes quite a while to absorb into your system. I don't think taking an extra one will make a difference .

Comment by Valerie Morrison on June 13, 2014 at 5:30pm

The warnings.... aka aura i get is like having a short circuit in my thoughts at the time... I would drop things and sometimes fall then black out if i ignore then warnings. If I take an extra med and go lay down in bed and sleep I can detour the impending seizure


Members (767)


Terms of Service Update 6/4/2012

We have updated our Terms of Service for eCommunities Groups.


December 2014

© 2014   Created by EF Admin.

Badges  |  Report an Issue  |  Privacy Policy  |  Terms of Service