Living Well With Epilepsy

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Comment by Eugina G Herrera on May 21, 2012 at 6:25pm

Hi everyone!

I'm a very happy person, BUt don't like to be put down with so much negativity, let us all continue being POsitive and Seizure Free!  

Stay Safe and Seizure Free!

 Eugina  :)

Comment by Eugina G Herrera on May 21, 2012 at 5:37pm

Hey Cassidy!

Thank you for realizing the stupidity here, I mean really, you would think it will stop, enough is enough, all the bullying, names calling, the back and forth, stress, have put an impact on my health with "e" I have submitted numerous complaints to 311, local precinct, I've been put thru so much, the false accusations of the year 2001 and 2002(9/11, April 19, 2002) up until today in my own Community where I reside, like if that is not enough, is not an icing on the cake, especially my small minded ignorant neighbors, than here too, REally Cassidy, This is a site to help and support one another with all kind of issues and "e" too, but my strong will to survive, my very strong ego,  "all power to me" have pull my will to other directions, to do more, like power walking, Yoga exercises, sketching, hanging out with friend and  helping those with special needs. I always thank G-d before I retire.  Upon Awakening I say Modeh.......

You take care too

Eugina :(

Comment by Cassidy Waggoner on May 21, 2012 at 4:45pm

Ah Eugina, you just dont get a break it sounds like. No pitty party I just sincerly feel bad. As if E isint bad enough. I pray no one on this site (which is meant to encourage and help others) is discriminating against any one else... If they are they should eb banned in my opinion. Discrimination in any form or for any reason is bad and stupid plain and simple. I know you as a supportive sweet person who has issues just like ALL of us. Please try your best to ignore the ignorance and remember you are a good person who dosnet need or deserve to dwell on stupidity. Take care

Comment by Eugina G Herrera on May 21, 2012 at 12:20pm

I'm the victim of bias-hate crime in my community of Washington Heights here in New York City, not because of my "e" the reason of my "t"  I remembered when I started here on this site with "e" that nobody knew what I'm until I mentioned about my "t"  Some rejected and stop altogether replying, other's continued, and some attacked me here, I really didn't get the support from the Epilepsy Foundation, that I really expected, However, I'm still participating no matter who you are, or what you are.  "We" are all different with many stories and issues, but when I saw few here on this site, I realized how many here on this "e" site started to reply when I mentioned about "discrimination and Ignorance"  Many here changed their stories, and that is one thing about me, I don't like head games, is a big turn off, Honesty is the best policy, be honest with yourself and other's about what honestly happened here a while ago, with few members "e" here too.  I do have a memory.  

Someday I would like the "discrimination and Ignorance" to stop, not just for "e"  for "t"  too.

Stay Safe and Seizure Free!

  :)

Comment by Cassidy Waggoner on May 21, 2012 at 11:51am

lol sorry Allen: But I know what you mean. I know my seizures are back and my Dr's ask If im loosing consiousness... How would I know if I am then Im out of it?!? lol. We did a EEG last Jan. just in case and it only showed lil' SP's. So I still have my liscense but dont drive when I have seizures I can feel.

Comment by Allen Rossner on May 20, 2012 at 9:39pm

When I 've had TC's my brain is so wiped out that any memory of any trigger or warning is gone. Docs/neuros/eps always ask: "Did you notice anything strange before the seizure?" Hell, all I know/remember is that somebody was helping me off the floor.

Comment by Tammi Zavardino on May 18, 2012 at 2:26pm

Eugina congratulations and I hope you stay seizure free lord knows we all pray for that to happen but many of us are still waiting. I don't have the seizures I used to and am very thankful for that but still am not completly seizure free but think eventually that day will come. I am on Keppra also but only take 1500 mg twice a day. Good luck to you and have a wonderful day.

Comment by Eugina G Herrera on May 18, 2012 at 1:55pm

Hi everyone! 

I was diagnosed at age of 6months with petit-mal (phenobarbital) at age 2 many numerous tests were performed, tonic-clonic, absence seizures, remembering when teachers thought I was daydreaming when in reality, was having seizures. 49 years old with grand-mal seizures taking (Levetiracetam) generics, was on brand name (Keppra) 4,000 mg a day since the year 2002, had new seizures, and other side effects.  I have been 4 months and 4 days seizure free.

I  have been keeping busy power walking, sketching, and helping out those with special needs.

Stay Safe!

Eugina  :)

Comment by Christine M. Kaas on May 18, 2012 at 12:57am

I have been off the site for awhile. I had some things going on that I have not had time to get on. Everything is ok, still dealing with both dr's with my epilepsy, and had a small bout with depression, again. But I am doing much better now. I see that I had lost some friends on here that is understandable. I sent friend requeswt to those I could remeber. I if I missed anyone please let me know. I will keep  up more often now.  I am still taking 3 meds a day and dealing with some other issues is what caused my depression. Hopefully when I go to the dr at Johns Hopkins on Monday all of this will get woried out. I wll keep you posted.

Comment by Marianne Anderson on May 17, 2012 at 6:41pm

Thank you all so much for your input. When I was a teen and had the petit mal seizures, I was able to tell because I had an electric feeling that started at the top of my head an exited my spine. When I had the 6 and 1/2 hour seizure I believe I felt a terrible pain in my head then nothing. I don't get auras or anything. This is why I am so afraid to drive. I just don't know when or what to expect. Will I graduate to a gran mal or will I still have an absence seizure? will I go back to short seizures or can I expect another long one? I just don't know for sure. I get scared now anytime I get a pain in my head--even if it's the sharp shooting ones I have had all my life. I guess I just have to continue to research and hear stories on here. I am very thankful for all of you who have commented. It really helps.

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