Life after Brain Surgery- Epilepsy

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Looking to chat and hear from others around the world. Also help if I can in any way. I had complex-partial seizures since age 3. Then had my surgery in May 22nd 2008 on my (Left Temporal Lobe). Since then been seizure free.

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FLE PLEASE HELP ME THANK YOU.

Started by feras alsaffar. Last reply by marqus fischer 22 hours ago. 1 Reply 0 Likes

hey guys my name's FERAS and i have so many Q about frontal right lobehas anyone had FLE surgery and he/she is completely ok after surgery ?are they cured or still on meds ? i really need those…Continue

This is why you consider surgery

Started by ejl1558. Last reply by ejl1558 May 13. 13 Replies 5 Likes

When you think about surgery, you have to look at the chances of positive results. You weigh in the possible negative results and then decide if the positive far outweighs the negative. I was given…Continue

Medical Alert Jewelry

Started by Karen J. Goodwin. Last reply by Beth Apr 10. 5 Replies 0 Likes

I had epilepsy surgery January 19, 2011. I've been seizure free ever since. After surgery, I got a new necklace since my situation had changed. The question is this... How long do u need to continue…Continue

18 months post-op

Started by Debi Langsdale. Last reply by Lrjg Mar 20. 7 Replies 6 Likes

I haven't been on here in a long time.It has been 18 months now since my son's left temporal lobectomy. He was 13 at the time of surgery and is now 15 years old.The last few months have been a…Continue

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Comment by Ann L Barbour on March 7, 2012 at 5:44am: Rachel Thompson, I can greatly relate to what you are experiencing post lobectomy. My post surgery effects have been very similiar to yours. My energy level is not near the same as it was before surgery (I had temporal lobectomy, in 2003), I get headaches often (especially with change of weather, pressure) and 99.9% of my seizures I have occur at night when I am sleeping (and I have been tested for sleep disorders and found I do not have any) and my depression has worsened and now I have anxiety which before the surgery I did not have. Have your doctors done anything to try to help your energy? About 6 months ago I was put on Provigil (generic of Nuvigil), which is most commonly used for sleep disorders, it has helped some. Life has not been what doctors told me it would be before the surgery, its been a struggle. I would like to chat sometime with you Rachel, I think our situations are very similiar. Hope to hear from you. Best wishes to everyone.

Comment by Patti Gines on March 7, 2012 at 2:55am: Rachel, I know what you mean, I thought it was a headache too. The more I compare mine, it feels more like pressure aches than headaches. Mine feels like something is pushing inside my head. It hurts. One think you do need to do is have the Lord in your mind all the time. It helps keeps the depression out! Try to go help others too. I hurt bad, but we have to put our hands out and help others. The Lord will help us!!

Comment by deborah ruppert on March 6, 2012 at 11:06pm: Hey no meds no seziors. But no Friends Surgery in 1984,

Their was nothing for me in the way of support. No body new alot.

People were not understaniing. I GREW UP with seziors and gid all the stuff not to do lol lol lol, Scary to think on it, Yet it was good , No one yet gets what it is like with no one, Keep on an do not dout what you might run up against.

Comment by Rachel Thompson on March 6, 2012 at 4:24pm: I had a right frontal lobectomy two years ago. I have bad headaches and complex partial seizures. My energy level has never returned to the way it was. Right now I have been going through a pattern of aura seizure sleep aura seizure sleep.. I found that after my surgery I had very bad depression.

Comment by Deborah D. Howard on March 6, 2012 at 1:16pm: Paco in answer to your question, I had surgery about 10 years ago, and I did not have any mental disorders after my surgery-or since then. If any other questions please just ask.

Debbie

Comment by Paco Martinez on March 6, 2012 at 1:05pm: Have any of yall develped any mental disorders after surgery I did I develpoed depression anxiety and schizophrenia/phycosis

Comment by Patti Gines on March 5, 2012 at 1:00am: What I want to know does any one have pain where they had there brain removed. Does there hole hurt, it is like the pain of a hurt knee, or elbow.. a pressure. You might at first think you are having a migraine, but it is not if you really look at the differences..

Does your part of your brain removed hurt?or as I put it Does your HOLE hurt?

Comment by Patti Gines on March 5, 2012 at 12:53am: Thanks every one. Yes I do pray everyday!. The last doctors I seen only keep raising my topamax and that does not help. I need to get back to the right new brain doc. as soon as I can afford one! You know the money issue...