Epilepsy Foundation

Life after Brain Surgery- Epilepsy


Life after Brain Surgery- Epilepsy

Looking to chat and hear from others around the world. Also help if I can in any way. I had complex-partial seizures since age 3. Then had my surgery in May 22nd 2008 on my (Left Temporal Lobe). Since then been seizure free.

Members: 235
Latest Activity: Feb 17

Discussion Forum

Back after many years away

Started by txtiger. Last reply by ejl1558 Feb 17. 6 Replies

I was active in the "old" EF ecommunities.  I had left temporal lobe surgery in August 2006 after 10+ years with complex partial seizures.  I had one breakthrough a week after surgery, then was fine…Continue

Did anyone try this. Surgery didn't work now maybe removable scar tissue

Started by Kathy Tedesco. Last reply by Susan Sherman Jan 2. 3 Replies

Sorry of this post about 5x. It wasn't working. Ok, I'll try again. I seen my epileptologist this past Friday. He seemed very optimistic when he said they may have missed some scar tissue and if so…Continue

Question for the ladies

Started by Jamie. Last reply by Jamie Jul 16, 2015. 2 Replies

I had a left temporal lobectomy in '04 and, after 8yrs, am having seizures again. I'm wondering if these come back seizures, some of which have been very damaging, could cause PMDD (premenstrual…Continue

seizures returned less than 3 months after surgery

Started by Maureen Kosin. Last reply by Robin Link May 14, 2015. 10 Replies

Hi everyone,My little boy had surgery at the end of February. He had a left temporal lobectomy for complex partial seizures that were occurring on a daily basis lasting 2 -3 minutes. . It has been…Continue

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Comment by Patti Gines on March 7, 2012 at 2:55am

Rachel, I know what you mean, I thought it was a headache too. The more I compare mine, it feels more like pressure aches than headaches. Mine feels like something is pushing inside my head. It hurts. One think you do need to do is have the Lord in your mind all the time. It helps keeps the depression out! Try to go help others too. I hurt bad, but we have to put our hands out and help others. The Lord will help us!!

Comment by deborah ruppert on March 6, 2012 at 11:06pm

Hey no meds no seziors. But no Friends Surgery in 1984,

Their was nothing for me in the way of support. No body new alot.

People were not understaniing. I GREW UP with seziors and gid all the stuff not to do lol lol lol, Scary to think on it, Yet it was good , No one yet gets what it is like with no one, Keep on an do not dout what you might run up against.

Comment by Rachel Thompson on March 6, 2012 at 4:24pm

I had a right frontal lobectomy two years ago. I have bad headaches and complex partial seizures. My energy level has never returned to the way it was. Right now I have been going through a pattern of aura seizure sleep aura seizure sleep.. I found that after my surgery I had very bad depression.

Comment by Deborah D. Howard on March 6, 2012 at 1:16pm

Paco in answer to your question, I had surgery about 10 years ago, and I did not have any mental disorders after my surgery-or since then.  If any other questions please just ask.


Comment by Paco Martinez on March 6, 2012 at 1:05pm

Have any of yall develped any mental disorders after surgery I did I develpoed depression anxiety and schizophrenia/phycosis

Comment by Patti Gines on March 5, 2012 at 1:00am

What I want to know does any one have pain where they had there brain removed. Does there hole hurt, it is like the pain of a hurt knee, or elbow.. a pressure. You might at first think you are having a migraine, but it is not if you really look at the differences..

Does your part of your brain removed hurt?or as I put it Does your HOLE hurt?

Comment by Patti Gines on March 5, 2012 at 12:53am

Thanks every one. Yes I do pray everyday!. The last doctors I seen only keep raising my topamax and  that does not help. I need to get back to the right new brain doc. as soon as I can afford one! You know the money issue...

Comment by Robin Link on March 4, 2012 at 10:02pm
Patti I am so sorry you r going they all of this pain. Please research h Cleveland clinic.
Comment by Robin Link on March 4, 2012 at 9:58pm
Pari I brides the test name was misspell it is seeg
Comment by Robin Link on March 4, 2012 at 9:56pm
My stepsister started having seizures about there years ago. She is awake but can not speak. She does not convolse etc. she is scared.

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