Epilepsy Foundation

Life after Brain Surgery- Epilepsy


Life after Brain Surgery- Epilepsy

Looking to chat and hear from others around the world. Also help if I can in any way. I had complex-partial seizures since age 3. Then had my surgery in May 22nd 2008 on my (Left Temporal Lobe). Since then been seizure free.

Members: 231
Latest Activity: Sep 4

Discussion Forum

seem to be riding the scariest rollercoaster!

Started by Kathy Tedesco. Last reply by Kathy Tedesco Sep 4. 8 Replies

Two months ago I was happy and looked mostly at the positives but now can only think of the others. Really was thinking I was getting excatly everything I wanted. Now I've had two more seizures, had…Continue

Multiple Brain Surgeries

Started by Andrew Cooper. Last reply by Brian P. Lund Jul 30. 1 Reply

Hello, I have had seizures since I was 9 years old.  I have tried every medication that there is and have a VNS installed as well.  I eventually got to the point where I decided to try brain surgery.…Continue

Cognition After Brain Surgery

Started by Ann L Barbour. Last reply by Robin Link Jul 15. 4 Replies

Hello- It has been eight years since I had unsuccessful temporal lobectomy surgery and I have been disappointed from just after the surgery and still today in my neurologist and neurosurgeon. It…Continue

seizures returned less than 3 months after surgery

Started by Maureen Kosin. Last reply by Brian P. Lund May 24. 6 Replies

Hi everyone,My little boy had surgery at the end of February. He had a left temporal lobectomy for complex partial seizures that were occurring on a daily basis lasting 2 -3 minutes. . It has been…Continue

Comment Wall


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Comment by Paco Martinez on March 6, 2012 at 1:05pm

Have any of yall develped any mental disorders after surgery I did I develpoed depression anxiety and schizophrenia/phycosis

Comment by Patti Gines on March 5, 2012 at 1:00am

What I want to know does any one have pain where they had there brain removed. Does there hole hurt, it is like the pain of a hurt knee, or elbow.. a pressure. You might at first think you are having a migraine, but it is not if you really look at the differences..

Does your part of your brain removed hurt?or as I put it Does your HOLE hurt?

Comment by Patti Gines on March 5, 2012 at 12:53am

Thanks every one. Yes I do pray everyday!. The last doctors I seen only keep raising my topamax and  that does not help. I need to get back to the right new brain doc. as soon as I can afford one! You know the money issue...

Comment by Robin Link on March 4, 2012 at 10:02pm
Patti I am so sorry you r going they all of this pain. Please research h Cleveland clinic.
Comment by Robin Link on March 4, 2012 at 9:58pm
Pari I brides the test name was misspell it is seeg
Comment by Robin Link on March 4, 2012 at 9:56pm
My stepsister started having seizures about there years ago. She is awake but can not speak. She does not convolse etc. she is scared.
Comment by Robin Link on March 4, 2012 at 9:57am
Travis keep us updated
Comment by Robin Link on March 4, 2012 at 9:51am
Pari The invasive test I had was at Cleveland clinic. The test is called dreg and they are the only one in the USA that does it. They have been doing it in Europe for twenty years. They have been testing me for forty plus years and finally found where the seizures begin.
Comment by Karen J. Goodwin on March 4, 2012 at 1:04am
Oh Patti! First I want to say I am so sorry this is happenin to you. Second - I am praying for you right now to have relief from this. God can and does heal, sometimes thru medicine. Finally - have you been seeing your doctor about this? What does he say?
Comment by Patti Gines on March 3, 2012 at 10:52pm


I am not sure how to go about to do this.

I have had epilepsy since 1982 I got it from a car wreck, a concussion. I did not have many grand mal in the beginning, as years went on the grand mal add up. To where I was have one every other day or every day. The petiti mal I was have hundreds of.

The doctors were saying I was faking epilepsy because they could not find where it was located in my brain. Ya, like I enjoyed biting by tongue and peeing my pants for the fun of it.

But I did find one!  Doctor Robert Cash, out of Idaho Falls, Idaho. He found it in my Left temporal Lobe. So he removed a golf ball size of my Left temporal lobe. It went great for about 3 years, no seizures.

Then I had one. A new world for me started. I stared to have a pain on my left side of my head also. I also started to have small seizures, very weird ones. they feel like I am going to have a grand mal but I don't pass out. I have aura ones all the time. Ones where my head will pull one direction and my speech is gone, like a grand mal. I wish I  would pass out. One of the worse feeling I have is the pressure on the left side of my head. It is getting worse after each grand mal.

Last month I had 3 grand mals in one day and I feel like I have gone down fast...

The pressure is non-stop on the left side, I am crying the pain hurts so bad. Plus Migraines also, they are two complete differed pains.  The things I stated I am going through have tripled in the last month too.  Where they took out my brain is also caving in more.  


Does this make any sense??????



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