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Life after Brain Surgery- Epilepsy

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Life after Brain Surgery- Epilepsy

Looking to chat and hear from others around the world. Also help if I can in any way. I had complex-partial seizures since age 3. Then had my surgery in May 22nd 2008 on my (Left Temporal Lobe). Since then been seizure free.

Members: 230
Latest Activity: 21 hours ago

Discussion Forum

Cognition After Brain Surgery

Started by Ann L Barbour. Last reply by Robin Link Jul 15. 4 Replies

Hello- It has been eight years since I had unsuccessful temporal lobectomy surgery and I have been disappointed from just after the surgery and still today in my neurologist and neurosurgeon. It…Continue

seizures returned less than 3 months after surgery

Started by Maureen Kosin. Last reply by Brian P. Lund May 24. 6 Replies

Hi everyone,My little boy had surgery at the end of February. He had a left temporal lobectomy for complex partial seizures that were occurring on a daily basis lasting 2 -3 minutes. . It has been…Continue

Laser Surgery

Started by Stacie Hatton. Last reply by Brian P. Lund Apr 9. 1 Reply

I recently had laser surgery performed on my brain to remove scar tissue that may be the cause of my seizures. I was diagnosed at 2 years old with epilepsy, having grand-mal seizures. I was…Continue

Petrified at 49

Started by Robin Link. Last reply by ejl1558 Feb 24. 12 Replies

I have had seizures since I was 4 and am almost 50.  I am going for a second evaluation at Clevelan Clinic.  I had one 7 years ago but they didn't have MEG and mapping tools they have now.  I have…Continue

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Comment by TravisEd 21 hours ago

Kathy, I had an anterior temporal lobectomy and removal of a good chunk of the left hippocampus (left hemisphere obviously).  No problems with memory or emotional issues thankfully.  It took me over a year to get back on track.  I'd suggest give yourself time...but keep notes to bring up with the doctor.

It's coming up on 2 1/2 years for me NeXT month.  I'm just starting to get back on track it feels like.  Still have no idea what I want to do with my life now that I am seizure free.

--Travis

Comment by Kathy Tedesco yesterday
Thanks Pam!!!
Comment by Pam Sullens yesterday

Kathy, This is the first time I"ve read this. -I am not a "blog" person either. Kathy-I can tell you what my neuosurgeions tol me regarding the TL-and the possible side effects of having the damage removed from that area of the brain.-The reseach out there states that memory-and be affected-and moods-Have you talked with your neurolgist about this?

Your brain may be just healing? It takes the mylon (the protective layer or tissue that surrounded your damaged-nerves-so-that may be why you have not had seizures-but still have the memory loss- It's kind of like umbrella that has a small hole in it-(the umbrella is the mylon and the person holding the umbrella represents the brain tissue/nerve endings that the umbrella is protecting. It's kind of a weird example-but I hope that may help. Before I had my right frontal lobe I spoke to someone who had TLS-her memory was affected as well. She did know that risk but took it anyway-Her moods were not affected-

I am sure you may know this-but it can take up to 2 years for brains to fully heal after having surgury. That brain heals much slower than the rest of our tissues-

I am sorry that you are feeling a bit overwhelmed> Are you doing things to exercise your brain? Any type of word puzzles or games will help-There is site-Luminosity. You can try it for free and the membership does not seem that expensive.- Maybe that is an investment that would help you? I wish ;you the best.

I have not have any seizures for 14 months and am going off my Keppra in August!

Take care now-=and I hope this information helps you.

Blessings, Pam

Comment by Kathy Tedesco yesterday
Sorry if you guys are reading my question for 3rd time. I'm not sure how these blogs work. I had brain surgery (left temporal lobectomy and left hippocampus) it has worked very well so far. Had this done a yr and 5 months ago. My memory, moods, emotions, etc have changed. Was wondering if this has happened to anyone else. My memory and all that were worse about a yr ago, seems slowly but surely am becoming myself again. Hoping maybe that come with time. Have to point out, very happy that I am doing so well, just sometimes overwhelmed with these things, that I know are smaller than where I was before.
Comment by Pam Sullens on December 7, 2013 at 10:49pm

I had a right frontal lobe re section. I think a re section is taking a smaller area of the brain? You may want to clarify that with your neurosurgeon. Blessings, Pam

Comment by beetle on December 7, 2013 at 8:03am
Is there any difference between a temporal lobectomy and a temporal lobe resection?I have had a temporal lobectomy.I have read that some have had a temporal lobectomy and others have had a resection.Just curious.
Comment by Jennifer Jacobs on November 29, 2013 at 7:50pm

That sounds like a great idea Josh. Thank you for the advice. God Bless you. Amen.

Comment by Josh Ledbetter on November 29, 2013 at 9:56am

Jennifer,                                                                                                                                                                                      Yes I have seizures in my sleep, but the Onfi 10mg has prevented that from happening.  When I saw my doctor in June he told me that Onfi was new and he believed it would work.  Last month I saw my doctor again and he said now that I am on a seizure free path he doesn't need to see me until August.  When I am seizure free for a year I will be able to get my drivers license.  In February when you see your doctor you should talk to you should talk to him about Onfi.

Comment by Jennifer Jacobs on November 27, 2013 at 1:12pm

Josh,

Do you have seizures in your sleep? I just had one last night. So, I don't know if the Onfi 10mg would help. If it might I will talk to my doctor the next time I see him in February. I want to be seizure free, because I can't have my drivers license until I am seizure free for a year.

Comment by Josh Ledbetter on November 26, 2013 at 9:56am

Jennifer,                                                                                                                                                                                      I had my surgery in 1997 and that didn't work.  Then in 2000 I had a VNS implanted. My seizures changed, but they didn't stop.  My doctor has been adjusting my VNS.  I am also on Lamictal  250mg and Keppra 750mg and my doctor couldn't get my VNS adjusted right, but in June I started taken Onfi 10mg and I have now been seizure free for 5 months.  I know God has help me find the right medication for me.  God will help you make everything better.                                                                                                         Josh

 

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