Epilepsy Foundation

Life after Brain Surgery- Epilepsy


Life after Brain Surgery- Epilepsy

Looking to chat and hear from others around the world. Also help if I can in any way. I had complex-partial seizures since age 3. Then had my surgery in May 22nd 2008 on my (Left Temporal Lobe). Since then been seizure free.

Members: 235
Latest Activity: Feb 17

Discussion Forum

Back after many years away

Started by txtiger. Last reply by ejl1558 Feb 17. 6 Replies

I was active in the "old" EF ecommunities.  I had left temporal lobe surgery in August 2006 after 10+ years with complex partial seizures.  I had one breakthrough a week after surgery, then was fine…Continue

Did anyone try this. Surgery didn't work now maybe removable scar tissue

Started by Kathy Tedesco. Last reply by Susan Sherman Jan 2. 3 Replies

Sorry of this post about 5x. It wasn't working. Ok, I'll try again. I seen my epileptologist this past Friday. He seemed very optimistic when he said they may have missed some scar tissue and if so…Continue

Question for the ladies

Started by Jamie. Last reply by Jamie Jul 16, 2015. 2 Replies

I had a left temporal lobectomy in '04 and, after 8yrs, am having seizures again. I'm wondering if these come back seizures, some of which have been very damaging, could cause PMDD (premenstrual…Continue

seizures returned less than 3 months after surgery

Started by Maureen Kosin. Last reply by Robin Link May 14, 2015. 10 Replies

Hi everyone,My little boy had surgery at the end of February. He had a left temporal lobectomy for complex partial seizures that were occurring on a daily basis lasting 2 -3 minutes. . It has been…Continue

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Comment by Susan Sherman on January 2, 2016 at 3:25pm

I had surgery this December 17th to remove my left hippocampus. It was at Yale and they used a laser to "burn" it out. I was in the hospital for 3 days. They did not give me seizure medicine the day of surgery and the next morning I had a small seizure in the hospital. I pray that was just from exhaustion and swelling and surgery and no medicine and I hope I will remain seizure free from now on. I'm a bit more tired than before surgery but I "appear" back to normal to family. This surgery is supposedly faster recovery than the traditional type - which was what was done 6 years ago to remove my left amygdala. I was really scared about the left hippocampus being removed, but thankfully my speach appears about the same - and I guess memory is OK. There was basically no pain. They are going to start psychological testing in January.

Comment by Brian Cassady on August 8, 2015 at 8:46pm

My name is Brian and I'm 23 years old, I have complex partial epilepsy.  I would like to talk to people around my age who have epilepsy.

Comment by beetle on July 19, 2015 at 9:57am

Hi Brian.Sorry about the late reply.I also had complex partial seizures.I had surgery in 2000.I was seizure free for almost 2 years.When seizures started 2 years after surgery,they were not occuring as often as beforethe operation.I tried more meds which didn't help.The seizures then started occuring more often.I had a second temporal lobe surgery in 2006.I have been seizure free since.

Comment by Sabine Erice on October 15, 2014 at 5:09pm

Hi all, my daughter 4 years old born with problems in her brain and they said is a frontal cortical dysplasia. Now she is a candidate to a surgery. Thats any one here with the same problem and had a surgery? I would like to talk about it.


Comment by ejl1558 on July 28, 2014 at 7:12pm

Kathy, in the early months, I felt chills down my left side.  I got the feeling they were auras but I wasn't complaining.  Then I went in for my six-month eeg and my epi was looking at it as well as me.  I asked about the spikes I saw and he told me they were surgery-related.  He told me there was no sign of seizures.  I had trouble believing him after 40 years of seizures but I eventually decided to accept what he said until some thing happened that proved him wrong.  Fortunately, he was right and I've learned to believe he knows what he's doing and saying.  The next time I got a scare was the night before my five-year appointment.  I explained how I felt, convinced him I wanted an eeg to convince myself I was OK then heard the same thing again...there's no sign of seizures.

Hope all works out for you, too.


Comment by Kathy Tedesco on July 28, 2014 at 10:58am
Travis and Ed congratulations on how well it's going. Jennifer I am very sorry..hope things get better!!!
Comment by Kathy Tedesco on July 28, 2014 at 10:54am
Thank you guys so much. .sorry I didn't respond sooner..still figuring this site out.
I have had 4 seizures since the surgery, but that is much much less than before and the last one I had was after going 6 months and 2wks seizure free. I do seem to always find a reason these occurred, forgot to take meds, etc, not sure if I'm justifying them. It could just be a coincidence that each have had a reason why. I hope this happening doesn't mean surgery didn't work. Sorry, to ask but is this how it started for you. I do feel I shouldn't complain, much much better than before. Was just kinda hoping they were all the way gone. Again, thanks so very much
Comment by Jennifer Jacobs on July 27, 2014 at 10:42pm

Amen. I am glad you are seizure free. I had surgery, only I wasn't as lucky. They said they couldn't stop it because the brain waves were moving to fast. Like you, Ashley, I have been having them since I was 3 but I think mine only got worse. They told me I had partial seizures, but now I have Grand Mal. My memory has gotten worse since then even though everyone has been telling me it hasn't. Many times I tell my family I never went somewhere and they tell me I did. Why don't I remember? I think I've gotten worse since the surgery, not better. God Bless all you who have become seizure free.

Comment by ejl1558 on July 27, 2014 at 11:00am

Kathy, the surgery comes with a lot of changes and some hang on forever...or so it seems.  I saw a nose-dive in memory just after surgery...like it could get any worse but it got much better.  I'd say I went from a 30% memory before surgery to 15% just after surgery to about 60% now.  I would say my moods are more noticeable but could that be because without the need to worry about seizures, other things are now on your mind?

One thing I want to keep in mind is how my attitude has changed.  As I went off meds, my sons were pointing out positive changes in my attitude.  I used to be about 80% serious but now it's about 5%.  I got a second chance at life and I can't let anything that goes wrong take away from that.

Changes are numerous in the early stages after surgery but eventually they taper and hopefully you'll reach my position (13 1/2 years seizure-free) and feel the best part of your life is on its way.  I just enjoyed a week with my first grandchild, have another on the way in about three weeks and they have the opportunity to see a healthy grandpa...and grandpa gets to watch them alone at times when that was never a chance before the surgery.  Good luck!


Comment by TravisEd on July 25, 2014 at 12:00am

Kathy, I had an anterior temporal lobectomy and removal of a good chunk of the left hippocampus (left hemisphere obviously).  No problems with memory or emotional issues thankfully.  It took me over a year to get back on track.  I'd suggest give yourself time...but keep notes to bring up with the doctor.

It's coming up on 2 1/2 years for me NeXT month.  I'm just starting to get back on track it feels like.  Still have no idea what I want to do with my life now that I am seizure free.



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