Epilepsy Foundation

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Lamictal Users

Members: 305
Latest Activity: Jul 5

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Reducing the side effects...

Started by Amy. Last reply by Amy Jul 5. 4 Replies

Hi, my 8yo added lamotrigine (teva generic) about a year ago to her oxcarbazepine. It has helped reduce seizures but she still gets simple and complex partials. It has taken a while and we've…Continue

Has anyone one experienced this side effect on lamictal?

Started by 1cooldude. Last reply by Rena99 Jun 30. 28 Replies

My friend has come to notice at times I can't seem to register the information. My friend said that it seems like I don't take the info unless I hear it the info in the way I would like to hear it. I…Continue

Memory Loss

Started by Dagan Lynch. Last reply by Jennifer Bagley Apr 20. 119 Replies

Has anyone had memory loss from lamictal use?  After the seizures I find it hard to remember events in my life.  But I am not sure if it is from the seizures or the drug as I have been taking the…Continue

Lamictal and Birth Control

Started by Emilia Pollauf. Last reply by Jennifer Bagley Apr 20. 3 Replies

Ladies, just wondering what methods of birth control you are using? My neuro says nothing with hormones because the Lamictal interacts with the hormones and vice versa, leaving both less effective.…Continue

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Comment by Amy on July 5, 2015 at 5:08pm
Any partial seizure can generalize but something like 10% of people with TLE never have a TC, so not everyone gets them. EEG spikes are commonly seen epileptic discharges, I've never seen anywhere that links them to secondary generalization so if you have a link explaining that, that'd be interesting. (Our 8yo has partial seizures, SPs and CPs, and no generalization so far, only EEG activity seen was temporal spikes, hasn't had a seizure during an EEG so far).

Expect the dose to go up slowly on the lamotrigine and not be near target dose for a while, better to avoid SJS/TEN type problems. We saw toxic effects at a midrange dose recently, bear to figure out what was happening. Otherwise it was a easy drug to that point, but only reduced the seizures we saw.

Our child started with trileptal and has stayed on that during lamotrigine and now keppra. Most common trileptal SE complaint is tiredness but our child only had problems for a few days after each dose increase. It stopped most of the seizures, fixed a lot of cognitive problems that started after seizures. While staying on trileptal, keppra had bigger impact than the lamotrigine.

Epi we last saw suggested we switch lamotrigine to keppra and if keppra doesn't work then topamax but really think the cognitive impacts to topamax sound bad. Keppra helped a lot, although trying to see if it's causing non stop headaches. No drug has worked completely for us so long term keppra might not do the job either.
Comment by Laurel on July 5, 2015 at 1:25am
My 7 yr old has been on lamictal for 4 years. We added topomax in December due to breakthru seizures. He has lots of spikes on his EEG now. He lost his reading ability.
Comment by Zola McIntosh on July 3, 2015 at 10:36am

My 10 year old is once again on lamictal. This was the first medicine the doctors put him on a 5 years of age. The stopped it because they said it did not help with one of the two types of seizures he has. Partial complex and absence seizures. This is a different doctor than the first and I think each doctor reads out of different medical books and don't what they are talking about. Since the lamictal we have had to increase the dose twice and looks like there will have to be another increase because he is still having small but still noticeable seizure activity. He could be reading to me and stop mid-sentence while reading and come back to me saying "huh" as if i said something to him. He is going in for am EEG next week to check to see if he is still showing "spikes" which I am told can be worse than seizures because spikes can lead to having a grand mal seizure which he has never had and I pray he never will. His doctor said if the higher dose of lamictal did not work then we would have to consider adding a second medication to the mix.  

Comment by Patricia Hodges on October 3, 2014 at 8:25pm

I've been on Lamictal for over 15 years. Last year I had only 2 seizures, one with injuries. Keppra was added. I've had many seizures in the last few months, so I'm going on trial with Topamax (sp?)  I guess I became immune to Lamictal, but it worked well for many years.  Seizures starting again, with injuries, is causing a lot of anxiety this time.

Comment by Patricia Hodges on October 3, 2014 at 8:19pm

I've been on Lamictal for over 15 years. Last year I had only 2 seizures, one with injuries. Keppra was added. I've had many seizures in the last few months, so I'm going on trial with Topamax (sp?)  I guess I became immune to Lamictal, but it worked well for many years.  Seizures starting again, with injuries, is causing a lot of anxiety this time.

Comment by Jennifer on July 21, 2014 at 11:37pm

I had my EEG today. I can't wait to see what the doctor says. My goal less seizures!!! YAAA

Comment by Jennifer on July 17, 2014 at 3:54pm

Well I can tell you I have been on the tegretol (Carbamazepine) since I was 21 years old and the only side affects I have with that one are being a little more tired and more migranes. But I don't have grandmal seizures every day like I used to.

Comment by Sudden on July 17, 2014 at 4:28am

My tight pressure in my chest is not really painful, it's very mild, so I will continue on my meds for now. One thing is for sure it has not changed by taking my new meds carbamazepine.

Comment by Jennifer on July 17, 2014 at 4:04am

I think even though I'm off of the lamictal and I'm still on the Topamax I'm still having the chest problems. I think I'm going to give it a few days to see. Its so frustrating.  

Comment by Jennifer on July 16, 2014 at 9:37pm

Sudden I guess it all depends on how it affects you and if you can take the pain. And also if its helping your seizures because if its not get off of it. Its not worth having all those side affects just to see if you will lose seizures. If your in pain all the time, is that worth it to you? You have to ask yourself questions like that? I hope you understand me

 

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