Epilepsy Foundation

Helping Others Get Seizure Smart

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Helping Others Get Seizure Smart

Tell Us how you plan to help others get seizure smart. We'd love to hear ideas!

Website: http://www.getseizuresmart.org
Members: 291
Latest Activity: Aug 22

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Comment by Kay Irving Kramer on May 6, 2013 at 10:04am

Hypotension, anxiety, fear, even enjoyment can and often does cause higher degrees of electricity in the brain, that have the ability to cause a seizure.  The brain itself communicates (per neurons and microtransmitters) to other area's of the brain which cause us to do or think on or about certain tings.  That is why doctors will sometimes treat epilepsy with 2 medicines.

Comment by Hesham Hafiz on May 6, 2013 at 9:41am
3 days ago my best friend and I had a bit too much to drink adding to that he did not have much sleep and food plus he was on a lot of stress'on the second day at noon he woke up with a strong headache and had 2 pandoll extra with out food, half an hour later he had a seizure then after 4 hours another one note that still no food, after he came through I dropped him home to his families place and he took brofen 600mg, then another seizure happened we went to the dr had CTscan MIR and all what is needed, the dr said that nothing is wrong with him but he has more electricity in his brain than normal, and that was the reason that provoked a seizure, he told us if it happened again with out anything that may provoke it then he will prescribe medication, can anyone please tell me there thoughts about this, I am terrified and way to much worried about him, thank you
Comment by Kay Irving Kramer on May 6, 2013 at 9:36am

Tammi, your right.  I found out they had a routine years ago, when mine was ignored not once but twice.  I told the hospital, my doctor and withdrew my membership from Medic Alert. Where I live now in a Senior Residence, anytime a person goes to the hospital, their file goes with them.

Comment by Tammi Zavardino on May 6, 2013 at 8:41am

Kay yes I have a medical I D bracelet that I used to wear but now I just have a bracelet with the Epilepsy emblem on it and they understand when they see that they know. The ambulance men were annoyed because they had to come and actually work and they knew what to do but chose not too and therefore we are going to turn them in for the kind of behavior they displayed and I noticed just recently when they had to come pick up someone else I was there and they must have gotten spoken too because they used the right procedure on him and they saw me watching and knew they better or I would turn them in again. We have a hard problem for others to understand but I don't let that get me down and wont let others put me down because of it and the treatment these men showed when they should have been more professional was uncalled for and they knew it. Now we are going around and educating others in many different fields so that treatment like this doesn't happen to anyone else. Have a wonderful Day!

Comment by Kay Irving Kramer on May 4, 2013 at 2:09pm

Tammi, do you have "a Medical I D Bracelet?"  Get one and wear it, you can have Epilepsy engraved on the back and EMS will look at it and know what to do. Without one they could think you were diabetic, or even having a heart attack.  It won't advertise your condition because that will be on the back.

Comment by Tammi Zavardino on May 4, 2013 at 1:08pm

We are the ones that have to stand up and educate others about what we live with or things are not going to get better. Its a shame but even the medical field can be just as disrespectful about our situation as everyone else so that is why I am doing as much as possible where I live to get more understanding and training to those who need it and try to help us out more. I was treated very badly by an ambulance crew that came to pick me up after I had a seizure and passed out. I was later told how these men treated me and I guess one man thought I was just faking the whole thing and so instead of using the right procedure picked me up by the head,feet and belt loops and dropped me onto the gurney to take me into the hospital. The head of the Epilepsy foundation in my community was appalled by this and is going to make sure none of this is going to happen to anyone else so we are writing a letter telling what happened and going after them. We are doing a lot of educating people here to make this more understood and that is the answer if we are going to get any action! So anything you can do where you live is appreciated by all.

Comment by Shirley Bracken on May 4, 2013 at 1:12am

I am writing a book that will go to the publisher soon. I have had seizures for 34 years. I was nurse for many years but had to stop in 2008 when my seizures became worse. In my book I discuss my seizures and what I have learned, what I have taught other people and how it has affected my family over the years. I also wrote poems in the books about auras. I will post when my book is out.  My sister also has seizures. I hope everyone has a great weekend.

Comment by Candi Vandegrift on May 3, 2013 at 11:51pm
I just joined this group and began my first discussion a few minutes ago but I would like to spread the story and gain as much support as I can. The world needs to be educated on epilepsy and I believe that includes supporting those of us who suffer from it as well as recognizing individuals who help take care of us or even save our lives. So please if you get a moment check out my discussion titled "Hero Recognition"
Thank you!
Comment by Tina Marek on April 14, 2013 at 2:19pm

Sam, I participated in a video made a few years ago where they interviewed 4 of us. My doctor asked me to participate because I have always remained positive and didn't let my seizures stop me from being in organizations in high school, going to college, working and going out to public activities. We were filmed and followed for 3 days. A great experience to be a part of. This film was distributed among other Support Groups throughout the Texas Region. Other videos have been made, but as we all say, it needs to be publicized to the public more and you have a great idea. I would love to be a part of it or be glad to share with you what we did in my video. Don't stop striving for your goal!

 

Comment by Kay Irving Kramer on March 30, 2013 at 12:44pm

Congratulations Ian, that's what it takes.  Our epilepsy foundations have these resources but when their not called for, they sit idle until people like you or me request.

 

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