Tell Us how you plan to help others get seizure smart. We'd love to hear ideas!
Latest Activity: Nov 26
Beth happy to hear things are going well for you and that you have so many who care and support you we all know how important that is and can help so much. I wish you the best in the future.
It sounds great, your gaining so much control with potentially no side effects. I am very happy for you. Thanks for your support.
Yea!..I'm home again!..I think I spent 2 hours in the shower first thing in the door!...Well my 6 day EEG this time showed 6 seizures originating from the right side which is just what they hoped it was going to be..Nothing was coming from the left at all which is where my last surgery was done....I never felt a single one at all...4 of them happened at one time and the only way i found out was that they came in and put a drug ankara immediatly into the iv in my arm to stop them right away...the other one was only for 15 seconds and again I had no idea as usual that it was even happening....The surgeons and my neurologists will be reviewing all of the teting results this week and next tuesday we have a meeting with a decision on the best surgery to go for...I am also going to use the marijuana in the one since it seems to be working so tremendously on seizures from the right side of the temporal lobe...I don't care how I take it, pill, oil, or however.....My memory was tested every single day and all psych testing was done too...they missed nothing at all...The neuro center here is such a great place....After getting a roommate on my 4th day with something far worse than me who was only 25 years old made me feel like Epilepsy was something I could deal with no matter what happens....So next tuesday is the real biggie for me....But again, man it was so good to sleep in my own bed last night!..All my friends kept popping in after work last night and today to make sure I was still alive....and some mysterious person blew all the leaves in my yard but no one would tell me who did it....They kept saying maybe it was a halloween ghost...It's great to have so many friends and good neighbors...Everyone in my family had called at least twice to hear everything and make jokes,which we all find funny...So I'll let you all know....I told them at the neuro center about this site and all the people on here who talk and they thought it was great to hear.....And Sam, I was the Documentary for the neuro center 2 years ago and a speaker..I never have a problem with that one...Gotta give someone hope.....Right?...On the board in my room that the nurses list the Dr. and the on duty nurses name, I told one to add 5% of the winning mega numbers I was picking while under meds...She cracked up and put it up there!...Everone who saw it got a great laugh for the day, even the Dr's noticed it...
Help others get seizure smart. My next documentary "Greeting Epilepsy" will record each person's most memorable seizure in public. The personalities and events will first interest the general public and then they will learn. Only we care what the dr's and machines say in all past films. Watch my preview on KickStarter or YouTube.
Robert the medicine you were put on was it called keppra I have never heard of kappa?
Well folks...It's off to the Neuro center on Wednesday this week for testing prior to my second surgery....I'll go for anything to stop these damn seizures...Hopefully I am a candidate for the new type of surgery...If I'm not...I am going to go for the marijuana...The website is amazing...Read it!..Its called Charlottes Web....Read the story and also the comments from the many people here whose seizures it is stopping....I'll have it shipped to good old NJ and I don't care....My testing will see if I can go for the new temporal lobe surgery since the first didn't work except for a little over a year....I'm already packed!...A friend is driving me in..Its only 45 mins from my house thank God...So I'll let ya know what happens...They said I'll be in for at least 4 to 6 days...I had originall chosen the VNS but I guess its not for me after all...Oh welll...They all went to med school I didn't...and I trust my Dr. Implicitly, he's a wonderful man...Talk to soon...
I had a very bad day today I was taken to the Hospital by ambulance from Chuch My blood count drop and was at 4 it should be 16
My Doctor is moving Me over to Kappa but I/m still on my
old med at the same time i'm taken Kappa the new med
Beth, yes I am very interested. Whatcha got?
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