Epilepsy Foundation

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GLBT and Epilepsy

A group for the gay, lesbian, bi-sexual, and transgendered epileptic. To offer support for those having to deal with both issues.

Members: 15
Latest Activity: Jun 13

Discussion Forum

iam a caregiver

Started by Charles Shepherd. Last reply by Rourke O'Donnell Jan 29. 2 Replies

my boyfriend has epilepsy for 3 years now tring to find friends cause we dont go out much since bright lights & noice bothers him i work 5days a week  need a break and some friends that understandContinue

Help

Started by Dean Little. Last reply by Allen Rossner Nov 12, 2013. 1 Reply

I'm transgender with undiagnosed siezures, either ADD or epilepsy. I have a MRI and EEG on November 11, but i'm starting to fail classes. Does anybody have any ideas on what I can do?Continue

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Comment by Allen Rossner on June 5, 2014 at 11:32am

Well, everyone, our little group is slowly drawing in members. Time for some storytelling.

I am a 50 yr old gay man who came out approximately 30 years ago. I currently live in Cape May County, NJ and have been working for the Home Depot for 10 years. When I came out was just as AIDS entered our lives and I was living in Philadelphia. The seizures began, and it was suggested I not live alone for awhile, so it was to my parents. During the time with my folks, quite a few friends were either sick, or gone from the disease. The folks were moving to the beach, and I didn't want to move back to a city that had become, to me anyway, a ghost town. Moving to an area without a large GLBT presence has been frustrating, cause those who are here are in relationships, and don't look kindly on a single gay man. Especially one with epilepsy...living with his mother...not driving...how many strikes could I have? (lol) The seizure community is not very prevelant, and the one man who identified himself as epileptic, at least where I worked, suffered a massive seizure and died.

My seizures are currently under control with the help of Keppra and lamictal, but breakthroughs have occurred. I have become strong advocate for the EEOC and ADA laws (please familiarize yourselves to these important laws as they cover us as both epileptics and gay) much to the frustration of some members of Home Depot management. I am currently under consideration for surgery, but am hesitant as I am quite comfortable the way things are....the quiet life I don't want to screw around with.

How about you others??

Comment by Eugina G Herrera on May 21, 2014 at 8:11am

Hello Allen, All is well here.  What 'bout yourself?  How is all?  Seizure wise?  Have you been to any clubs lately without the worries of seizure's?  I can't seem to go to clubs, from strobing of lights. I do other things.  A little here, and a little there, and off i go playing it by ear.

I'll be here for some cooking chats, unless your apron is still on with your boss, (do you still work)?  I haven't for a while.  I really hate it, to wear apron for my boss, I would like my former boss to wear an apron to catch the apples.  I prefer oranges,  much sweeter...  ( :

I really guess depending what job you have and how well you get along, my last employment, i got along with everybody.

i'll chat with you later.

Comment by Allen Rossner on May 1, 2014 at 3:44pm

Eugina...what is going on? between you and AC?

Comment by Allen Rossner on December 12, 2013 at 12:13pm

My goodness, Eugina, I didn't think anyone was interested in this group. It's been some time. Well, welcome! I hope we can interest others, again, cause having seizures is one thing, but sometimes we need to talk about other parts ourselves.

Comment by Eugina G Herrera on December 12, 2013 at 11:36am

Always Fab to know that we are always accepted as cousins not to spook each other to always educate without the ignorance that I see in my neighborhood.  

Thank you Allen & all here for your wonderful support always seizure free 4ever!

~Eugina

Comment by Adam James Zacherl on August 23, 2013 at 11:14am
Comment by Allen Rossner on August 22, 2013 at 5:01pm

Welcome, Adam...we gotta get the word out...this door seems to stay shut!

Comment by Adam James Zacherl on August 17, 2013 at 9:18pm

Hey Kids, Nice to see there is a lil group for us. Thanks Allen

Comment by Monica Perez on May 22, 2013 at 7:13pm

Dear Friends,

Just moved 70 miles north of NYC to upstate NY which is a small town.  Am very discreet.  See a few Gay people here but they are deeply closeted.  Presently looking for a part time job for psycho-social reasons.  Have put in an application to all public housing here and elsewhere.  Anybody Gay live in a small town and how did you cope with it?  Thank you for the feedback.

Comment by Allen Rossner on September 12, 2012 at 10:58am

And a big welcom to JaneE as well.

 

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