Epilepsy Foundation

Generic Medicine Issues


Generic Medicine Issues

Epileptics who have switched to Generic Brands of their drug and they don't work.

Website: http://genericmedicineissues
Members: 35
Latest Activity: Nov 14, 2014

Discussion Forum


Started by Rebecca Veasman. Last reply by Rebecca Veasman Mar 12, 2011. 7 Replies

Lamotrigine (Lamactal) & Levitiracetam (Keppra)

Started by Tom. Last reply by Vickie Kelley Feb 6, 2011. 1 Reply

Lamictal &Vimpat

Started by Vickie Kelley Jun 7, 2010. 0 Replies

Comment Wall


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Comment by Vickie Kelley on November 14, 2014 at 11:23am

Glad to hear that news! Hopefully mine will turn out that way. Will not really know until January when it goes into effect. But I already have a letter from my doctor plus an article on the computer regarding generics. Take care
Comment by Terrance Lee Fields on November 12, 2014 at 10:39pm

They tried to get me take that but I called my dr he told insurance and then that day insurance is paiding for xr been takeing 18 yrs now still take and sz free since taking  brand name plus brand name tegretol, used to hav to call dr once a yr and he call insurance and the insur called phar and approve it but hadn't a problem with insur being they know hope never do no more other wise back to calling dr

Comment by Vickie Kelley on November 12, 2014 at 4:23pm
I am taking lamictal XR but the insurance will not pay unless I take generic. I am having to get a letter from my neuro saying that generic meds are not as effective as brand names. I also have to back her letter up with one from myself. My husband and I have done some research on the computer that generic meds for seizures can be just a very, very small tad off, but that tad DOES matter. Is anyone else having trouble with insurance ?
Comment by Vickie Kelley on September 29, 2013 at 8:42am

Becky, Have your doctor put "Brand necessary" Lamictal XR (Glaxosmithline who manufactures it) will send send you a coupon for 12 refills each year. So send an e-mail to Glasoxmithine and they will do that. I have done it 4 times also.

59 seconds ago
Comment by Becky on September 28, 2013 at 1:26pm
I can only afford generic and they did change the generic brand once
Comment by Terrance Lee Fields on June 25, 2013 at 11:11pm

That's all I been taking is Brand,I take Tegertol 400 and Lamitcial 200 ben free 20 yrs,pharmist try to get me on generic,I call my dr told him he call pharmis told them never give me generic,there is a difference,my dr told me that,

Comment by Ian Anttila on June 25, 2013 at 10:37pm

I presently (THANK GOD!) do not use generic medication anymore as the ONE time that my drug store changed suppliers without informing me, when I was on 1000 of Tegretol, 1600 of Neurontin, 70 of Frisium was generic had a strange "G" on it, I took it though back in 92, and had a HUGE flare.  We confirmed it was the Med. The pharmacy blamed the supplier.  I changed phamacies, as my M.D. constantly writes "NAME BRAND Section 8" and the req. limited use code

Comment by Karen on March 11, 2011 at 8:57am
Your'e right it is not for Lamictal XR.  Let me know if there is anything new in coupons or deals for it.  Thanks!
Comment by Craig on March 9, 2011 at 8:23pm


I'm new, but not to epilepsy.  What I am trying to do is help by asking people to sign a petition on Change.org that helps improve epilepsy treatment.  The link is below.  You will have to join, possibly search for "epilepsy" and sign.  No cost.



Comment by Vickie Kelley on February 16, 2011 at 1:58pm
It will not hurt to give it a cry.  I work for a school system and hve insurance, but my doctor had the trial samples of Lamictal XR and they had a card to fill out.  Last year they offered it also (through Smithkline) but when I telephoned it, they no longer offer it.  However, in June after retirement, I have no idea what I will do.  My doctor prefers me to stay on brand name, not on generic.  Let me know how you come out!

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